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you're a writer, work it into a story, seriously I think that might do the most good

What a good idea Jim.

My first effort - I wrote the surgeon this weekend and just read her response - didn't penetrate: she said she was sorry I had so much pain.

I have a video appointment with my own doctor to discuss pain relief, but she isn't available until Thursday, so I'll grit my teeth and make it until then with what I have.
Meanwhile, pain keeps me from getting anything else done, and from good sleep.
The surgeon did her job well, from what I can tell - at least that part is probably finished.


Under normal conditions, it's not great. Right now it's erratic and pitiful. I take 3-5 naps daily anyway; after each, my brain feels a little better for a while - that's when I can write.
It's not a way I would have chosen to live, but you make do with what you get!

I certainly understand the term 'unrefreshing sleep', can't remember the last time I did wake up feeling refreshed, even if it feels like I've slept through. Wish I could learn how to nap though, if I try after 3pm, I don't sleep again till 3am! You certainly do have to make do with what you get, I don't see the point of being 'woe is me', it is what it is, and accepting it is better than getting annoyed at limitations.

But take it from me, that if erratic chunks of sleep all night and naps several times a day are what it takes, you learn to appreciate that you have a way to get rest and reset your brain (by blocking input to it for even a half an hour), and you CAN function. Fighting naps would be a very bad idea for me - I get progressively psychotic (not exaggerating) if I try. WITH the naps, I can write fiction.
Most people don't need naps; some need naps as they get older; I have no other choice. Shrug.
But I do resent them a bit: I'm not a toddler! Just a bit.

Desley! As usual you seem to have been properly busy! It sounds as if life is good though, which is great to hear. :-)
Life has been very hectic for me which is why I haven't dropped in but it's good hectic. Mum was on great form today and Neil out of The Young Ones (Nigel Planer) bought a copy of my book at the weekend. He seems a genuinely lovely chap. Some author friends and I took a stall opposite him at Norcon and he appeared to enjoy watching us having larks, and came over to say hello. He also took a sneaky photograph of my costume. Yes (MTM pumps air). I have managed to write blogs the last two weekends and I think I'm in a position to sort of plan my next book, or at least, work out what scenes I know are in, make a list and write them. Should keep me busy for a bit.

And I am positively emerald with envy of you in that cape and hat.

And I am positively emerald with envy of you in that cape and hat."
Mwahahahrgh! Yeh! I LOVE that cloak and the goggles just added to the hat so I've written them into the w.i.p. Only for a moment, but a moment is enough, right? (More mwaahahahrgh!).

I'm actually jealous of people who can nap Alicia - one of my colleagues can get home at 5, have a nap and still sleep through the night, I wish I could do that (heck, I wish I could just sleep through the night!). Really MT, it's felt fairly quiet in my life?? Life is good though, thanks. Glad you had a good weekend at NorCon, even if you didn't sell that much. Glad your mum seems on good form and you can get down to writing for a bit.

It took me YEARS of sticking with it to get where I am - it's one of the few things which has helped with the ME/CFS, but it takes a while to learn to quiet your mind, how long a good nap is for you, to live with going to bed and getting up that many times a day, and to figure out how to use my mind to count breaths so it would stop thinking!
And now I benefit from it, hope I'm noticing the crash symptoms sooner so I don't waste time awake that isn't useful time, and can sleep almost anywhere at any time (where sleep is sometimes deep, sometimes just resting).
Necessity is the Mother of Invention - and after years of saying "I cannot learn to do this stupid thing," I learned - because it helps me.
I have no idea if it helps people who are not sick, but I had no good other choices than turning my mind off periodically, to let it catch up.
If you're curious, even ME/CFS people I tell what I do, often reply they couldn't possibly.

Quieting my mind is part of the reason I struggle with sleep, I woke up early this morning thinking about work, wish I could switch it off!

Glad you took time to rest and care for yourself (isn't that what a good book is - self care?).
Hope it was a good one!


Sayers taught me SO much about believable romantics.



who needs food when there is a book to read :-)
Sounds like you've had a busy week but I suspect you prefer that to just sitting about getting nothing done

Well, I suppose there is that Jim! I do think there is nice busy and crazy busy though, I much prefer the former. And also, the task I've had this week isn't really part of my job, but a director asked me to get involved, so I suppose I should be pleased they think enough of me to help, it's quite an important thing for the business.

Feels a bit like I've been on a journey of self discovery and quite like the new me, I do feel so much better without her in my life and I like how I'm spending my extra spare time, and I think the cats do too - couldn't get Lucy off my knee the other day!
I don't regret not being the one to walk away, I think that worked out for the best, but I do regret allowing her to control me for so long. Ironic that one of the things that stopped me walking away was a fear of being bored and lonely, and in fact it's been the complete opposite!

I hope some day she can fix that - for her own benefit - but it's really hard to become self-aware and change yourself, and she doesn't sound as if she has developed that capacity.
You've done a great job of taking care of yourself in this long year.

There's a lesson in that for all of us. Actually walking away can just open new horizons and provide new opportunities. Good on you :-)


that is good :-)



Sadly Alicia, there are lots of dog owners who don't clear up after themselves, it seems a bit worse along the canal, maybe because there aren't people to notice.

Makes you wonder what else they neglect in taking care of their animal friend.

I know Alicia, the fisherman said he pulled one bloke and his logic for leaving it was that it was on the grassy canal bank, so would break down naturally!

Didn't occur to that guy that some little kid would step in the half-broken-down dog stuff before it all became one with the Earth.
And that some harried young mother would have to clean the kid up before letting her cranky (and now smelly) youngster into the car to take him home to feed him when she was already late. Along with their dog who loves to roll in it...
Etc.



The book you've been looking for was karma's reward to you.

There have to be rewards, or humans would long ago have learned not to risk anything.
But the rewards can't be too easy or too common , or humans will take them for granted.
Pesky humans.

Aww, that's such a lovely thought Alicia, thank you. Taking them out again this weekend, but this one is child oriented, so they'll have much more fun.

Your munchkins will remember how you made them feel.

Hopefully they will Alicia, they certainly seem to enjoy seeing me.



As you say, it's barely daylight at times

Sorry it has been so long. Feeles like a month or two and is actually been a couple of years!
Hope everyone is well
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Thanks, Desley. Yesterday, not so good. Today is MUCH better - little by little regaining pain control and slowly moving toward 'better' - but it is such a relief to have the operation over with.
Have had long talks with my four sisters in Mexico - got a lot of the stuff that happened out of my head that way (and because I'm regaining some control). It all helps, and the surgery result is still stellar, and my ME/CFS body seems to be getting the right ideas now that I'm off the opioids.
Not so worried any more, don't have a temperature which might indicate an infection, gut is starting to behave...
But I will try to give them some useful feedback about pain control pre- and post-surgery - for people like me who already live with a lot of pain - because they didn't do it particularly well.