Understanding the lived experience of eczema
On September 23, 2019, hundreds of members of the eczema community gathered in person and by live webcast to share their experiences at the More Than Skin Deep patient-focused drug development (PFDD) meeting held in Silver Spring, MD. This meeting and a web-based survey was the first initiative of its kind for eczema.
It was hosted by five organisations serving the eczema community (Allergy & Asthma Network, Asthma and Allergy Foundation of America, Global
Parents for Eczema Research, International Topical Steroid Awareness Network, and National Eczema Association) in collaboration with the U.S. Food and Drug Administration (FDA).
It talks about all the challenges faced by those living with eczema and their caregivers. From the horrendous burden of the itch to challenging treatments and the future.
The burden of itch went far beyond a simple sensation. It contributes to long-lasting physical, mental, emotional, social, and financial tolls on the individual and family.
More than skin deep report 2020
You can download your copy of the More than Skin Deep – Voice of the Patient report here:
More than skin deep reportSpecial thanks to Linette, Kelly and Keri for allowing me to share this.
References
The Allergy and Asthma Network
Asthma and Allergy Foundation of America
Global Parents for Eczema Research
ITSAN
National Eczema Association
