Hollye Jacobs's Blog, page 13

October 31, 2014

Healthy Alternative to Halloween Candy

Halloween Candy | The Silver Pen


The biggest Silver Lining of the week was being introduced to Foodbabe.com.  Holy moly do I ever have a hugmongous girl crush! Before our daughters went to yoga, a mom and I were talking about our dread of Halloween…and the candy. In addition to trepidation about the manic excitement and the ingestion of sugar, we shared a mutual dread of exposure to the candy with GMO’s (genetically modified organisms), controversial chemicals and other additives like artificial food dyes. Almost instantaneously, my friend turned me onto the FoodBabe who (like me!) votes for more healthy ingredients with her dollars each and every day.


The FoodBabe is Vani Hari. For most of her life, she ate anything she wanted. Vani was a candy addict, drank soda, never ate green vegetables, frequented fast-food restaurants and ate an abundance processed food. Her typical American diet landed her where that diet typically does, in a hospital. It was then, in the hospital bed more than ten years ago, that she decided to make health her number one priority.


Vani used her new found inspiration for living a healthy life to drive my energy into investigating what is really in our food, how is it grown and what chemicals are used in its production. She had to teach herself everything.  As she began to learn more, she was no longer duped by big business marketing tactics, confused by lengthy food labels, and it became easier for me to live in this over-processed world. Most importantly, the more she learned and the more lessons she put into action, the better she felt and wanted to tell everyone about it!  This is the Silver Lining for all of us!


One of my favorite parts of her site is offering better alternatives to ingredients currently on the market.  Below are her recommendations that I am following this Halloween and holiday season and am all too excited to share with you!


Safer Halloween Candy | The Silver Pen


Many of the better and GMO free candy options are available to purchase at local health food stores, on the internet and at even some mainstream stores like Target.



Endangered Species Organic Chocolate
UnReal Candy #54 and UnReal Candy #41
UnReal #8
Panda Raspberry or Cherry Licorice
Annie’s Organic Bunny Fruit Snacks – (FYI – Annie’s was bought by General Mills, Lovely Candy Company is another great alternative that tastes like Starbursts)
Yummy Earth Organic Gummy Bears
UnReal #77 Peanut Butter Cups
Surf Sweets Sour Berry Bears
Yummy Earth Organic Candy

For some other ideas that are not candy, consider handing out:



Organic Granola Bars
Organic raisins
Small Tangerines
Glow Sticks
Stickers
Cookie Cutters
Hot Cocoa Mix 

For party snacks to enjoy while the trick or treaters come by, check out the recipes below:



Creamy Kale & Artichoke Dip with Homemade Chips (One of my favorite snacks to make for a party!!!)
Halloween Stuffed Sweet Potatoes and Fudge Treats
Pumpkin Soup
Pumpkin Spiced Nuts
Raw Cacao Candy Crunch
Almond Chocolate Freezer Fudge
Almond Butter Brownies
Chocolate Goji Berry Drops
White Chocolate Coconut Crispy Treats

Hope you enjoy checking out these links and be sure to check out FoodBabe.com!!



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Published on October 31, 2014 14:40

October 28, 2014

Being Present in Your Own Life

Being Present | The Silver Pen


In the last week, I have had  no less than three wham-bam-a-ha moments that have centered me – in a wonderful way. Each has left me asking myself: Am I really present in my own life?


Here is a prime example: last weekend, I attended a beautiful – and I mean BEAUUUUUTIFUL, over-the-top – birthday party. Every single solitary detail was spectacular and planned to the tee.  Instead of just taking it all in, I was the one (of many!) people who (now regrettably!) pulled out my phone to take photos.  I started to share on social media a photo of the (very famous) performer….


BUT, the Silver Lining is that I gave myself a snap out of it moment and stopped myself. Feeling like a complete shuck, I wondered: Why on earth am I going to do this?  Fortunately, I made the right decision NOT to share.  I reminded myself that I never post a photo of anyone or any event without expressed permission.  I wasn’t going to name-names, but stilllllll….


Another downer was that by futzing with my f-bomb phone, I managed to miss being in the moment: enjoying the music, dancing and being fully present. Ugh.


This reminds me of a few years ago when the HOTY and I had a big blow-out party. Unfortunately (for us!), many people shared photos from the event on social media.  The backlash from the sharing was sad & yucky. Too many people asked: Why wasn’t I invited? How could we say: We had a limited guest list? without further hurting their feelings? It gives me knots in my tummy just thinking about it. What was a celebratory event for us required damage control and inevitably hurt people’s feelings, both of which took away from our celebratory spirit. Double Ugh.


Beyond the whole privacy issue (that’s another post in and of itself!), thanks to our omnipresent technology, it seems as though so many of us have become habituated to passing through our life with little or no presence.


Now, I fully acknowledge (and am learning firsthand myself!) that being present takes time and effort and goes against the grain of our multitasking society. However, taking this time and effort – and some snap out of it moments! –  will help me/us see that being present to our life is more important than the passage of events in our life (especially when captured digitally).


I learned this the hard way last week, but the Silver Lining is that it was indeed a very valuable lesson!


* A beautiful party photographed by Elizabeth Messina, of course and styled by Merryl Brown!


 


 


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Published on October 28, 2014 14:20

October 27, 2014

Be Astonished

The Silver PenI love love love this!  That Volatire was definitely onto something!  When we pay attention and are fully present in life, we WILL be astonished!


 


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Published on October 27, 2014 17:24

October 23, 2014

This Weekend: Choose Hope

This has been a pretty intense (ok, insane) week. I have been on the road in Chicago and New York sharing The Companion Guide.  Despite the hectic nature of the days (not sure what town I’m writing this from!), I have had the great and wonderful opportunity to meet lots of  people and hear the most incredible stories. Hearing about people’s life experiences is always such an inspiration to me (after all, I am Irish!).


This week, I have given many talks and interviews. My oh my oh my. On Tuesday, I did something called a “Satellite Media Tour” during which Stacy Sharpe, the beautiful and smart and amazing VP of Corporate relations at Allstate and I told the story (about ten times in a row to different television & radio stations) of The Companion Guide  and Allstate’s commitment to give away companion guides for FREE to each and every person impacted by FBC between October of 2014 and October of 2015.  By the way, if you haven’t downloaded your free copy, you can do so here:  http://www.directrelief.org/silverlining


During each and every one of the interviews, hope is the recurring theme. After all, looking for (and then inevitably finding!) Silver Linings is what has always and continues to give me hope to get through the difficult times, even just a tough day. I believe that each and every one of us can do this, whether it is a diagnosis, heartbreak, job loss…What I know with absolute certainty is that pain is pain. We are all going to face pain in life. It is inevitable. What I also know for sure is that


So, this weekend, I hope that you will make the active decision to choose hope.


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Published on October 23, 2014 07:00

October 20, 2014

A Lesson in Subtraction

A Lesson in Subtraction



Our daughter, a/k/a Excitedly Eight would much rather put her nose in a book than do math.  That apple didn’t fall far from her Mommy’s tree!  When it comes to her math lessons, subtraction has been more challenging for her than addition. Her teacher told us that this is quite common.


While this is a practical issue for her, it is a philosophical one for me and, quite frankly, a metaphor for life. Lately the HOTY (Husband Of The Year) and I have been feeling the same way, which is a Silver Lining in and of itself. We have been talking a lot about subtracting things from our life and actually making our life smaller physically so that it can be bigger intellectually, emotionally, spiritually and physically.


I began this weekend by cleaning my closet and my office. Well, I started to anyway. I still have a long way to go, but just beginning the process felt absolutely terrific. I have to admit that cleaning and decluttering, for me, are mindfulness practices. They are not chores that I dread, nor ways to strive for a perfect living environment, but ways to practice living in the present moment. As such, they are some of my favorite things to do.


Now, I have to admit that I did feel quite overwhelmed when I started the process, but the way that I began was by sitting at my desk and assessing (the piles). I picked up a few things that I don’t need or use, and put them in a bag to be donated or recycled. I started slowly and little by little, I saw a clean surface and I have to say that it felt great!


Next weekend, I plan on doing a bit more…and then a little more until I become better at Subtraction than Addition!


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Published on October 20, 2014 15:01

Beautycounter to the Rescue!

I don’t know about you… but after reading all of those facts my stomach got a bit queezy. The reality is that when it comes to beauty products it is oh-so-very difficult to know exactly what ingredients are actually in the product and further, what those products are capable of doing to our bodies.


For those of us who have had FBC (or any other cancer for that matter!), it is EXTREMELY important to know what specific ingredients we are putting on our skin. Knowing that companies these days are allowed to use toxins that have been linked to cancer, reproductive issues, and hormone disruptions…WITHOUT TELLING US… is super scary (not to mention the – ahem – morality issue!).


So what can we do? To begin with, I look for beauty products that are estrogen, gluten, and parabin free. This standard is hard to come by these days because most beauty products contain at least one of the three! However, there is a Silver Lining!  The new company Beautycounter is on a mission to get safe products into the hands of everyone. Literally. That is their mission.


In fact, they have already banned more than 1,500 ingredients… setting a new health and safety standard for everyone. How great is that?


Also, their ingredient selection process is the strictest in the country. This is done by using an ingredient screen which looks for data on skin irritation, carcinogeniity, reproductive toxicity, and cumulative exposure. This process eliminates the “mystery ingredients” within products and allows Beautycounter to only use ingredients that are safe and functional.


I have had the opportunity to spend time with the founder, Gregg Renfrew and I can tell you firsthand that she and the company are the real deal. That my friends, is an awesome Silver Lining!!



For more information on Beautycounter products check out their website: http://www.beautycounter.com 


PS – I don’t ever get paid for what I write.  If I love something, then I tell you about it just as I would a friend. Well, many of you are indeed my friends!


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Published on October 20, 2014 14:33

Musical Monday: Stand By Me

Musical Monday: Stand By Me


Happy Monday! This song is one of my favorites becasue it reminds me of the amazing people in my life who have always stood by my side through the best of times and the most difficult of times. I don’t know how I would of gotten through FBC if  I didn’t have them to stand by me! I feel so much gratitude each and every day for my family and friends!


“Stand By Me”- Ben E. King


When the night has come

And the land is dark

And the moon is the only light we’ll see

No I won’t be afraid

Oh, I won’t be afraid

Just as long as you stand, stand by meSo darling, darling

Stand by me, oh stand by me

Oh stand, stand by me

Stand by meIf the sky that we look upon

Should tumble and fall

All the mountains should crumble to the sea

I won’t cry, I won’t cry

No, I won’t shed a tear

Just as long as you stand, stand by meAnd darling, darling

Stand by me, oh stand by me

Oh stand now, stand by me

Stand by me

So darling, darling

Stand by me, oh stand by me

Oh stand now, stand by me, stand by me

Whenever you’re in trouble won’t you stand by me

Oh stand by me, oh won’t you stand now, stand

Stand by me




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Published on October 20, 2014 01:57

October 15, 2014

4th Cancerversary: The Breast Cancer Diagnosis

Four years ago today, I was diagnosed with FBC, known to many of you as f-bomb breast cancer. Today is a day of great reflection for me. I remember October 15th, 2010 as if it were yesterday. Amazing how four long years have passed since the moment that my life was changed forever. In some ways I still can’t believe it. However, I am reminded – every time I take a shower or change my clothes or wonder what why I have an ache or pain – that yes, indeed, I did have breast cancer.


I consider the day of my diagnosis to be my “Cancerversary.” Kind of a strange term, I know; however, having FBC in and of itself is awfully strange. And awful.


In the time leading up to my 1st Cancerversary, I decided that I wanted to find – yes, you guessed it – Silver Linings and wholly balance the negative associations of the day with the positive ones. I thought that there would be no better way to do so than to challenge myself – really challenge myself – physically and emotionally. So:



On my 1st Cancerversary, I ran a 1/2 Marathon.
On my 2nd Cancerversary, I hiked to the top of Inspiration Point in Santa Barbara.
On my 3rd Cancerversary, I climbed 3500 feet up to the top of Inspiration Point again.
On this 4th Cancerversary, I am still recovering from my hysterectomy and therefore unable to do something physically taxing; however, the Silver Lining is that I feel hopeful and know that I will do something really special to celebrate this year.

Recently someone said to me, “Isn’t it great that you are 1/2 way to being ‘cured’?”  This goes in the What NOT to say to someone category. After all, I can name 5 people off the top of my head who were diagnosed with a recurrence 6+ years after their diagnosis. To quote one of my dear readers, this “makes me feel like I am on the edge of a precipice and could fall at any moment”


The thing of it is that my body has stupendously duped me once. I know that it can do it again. BUT, I am choosing to balance that possibility with a Silver Lining philosophy that tells me to live everyday to its fullest, to make healthy lifestyle choices (like eating well and exercising!), and to maintain a positive outlook on life full – always full! – of Silver Linings.


I thought that I would take this opportunity to repost my very first blog post, one that documents my diagnosis. After all, I believe that sometimes it is really good to look back and see just how far you’ve come.


Breast Cancer Diagnosis | The Silver Pen


October 2010

The inspiration for the The Silver Pen is to document my physical, mental, emotional, spiritual and oftentimes hilarious journey through, with, over and around breast cancer.


To clarify:  breast cancer isn’t funny.  Not at all.  However, my journey?  Frequently guffaw inducing.


Another clarification: I prefer to call breast cancer FBC. The “F” stands prominently for the F-Bomb. I’ve dropped quite a few F-Bombs since the diagnosis so, without being overtly crude, just know that when you see an “F” in my writing, you can safely assume what it stands for.


I believe that breast cancer happens within the ecosystem of family, friends and community. Consequently, I decided to take the holistic approach and write about breast cancer with style, a sense of humor and Silver Linings.


It is important to me that you hear about this journey from my husband (from this point forward, he will be referred to as “The Husband”) and me directly, in our own words.


Throughout this blog, I candidly incorporate my personal and professional experiences as an Oscar de la Renta and Carolina Herrera-wearing Pediatric and Adult Palliative Care Nurse and Social Worker with graduate degrees in Bioethics and Child Development.


Many people have asked how it all began. So, I’ll tell you the story….from the beginning.


On September 28th, I was awakened with shooting pain to my right breast.  I am a person can sleep standing up, with lights on and a live band playing. So, to be awakened is a rare occurrence. I immediately felt a lump. WTF?


I don’t consider myself to be an alarmist and promptly went back to sleep. On September the 30th, the exact same thing happened. WTF – again? Reminding myself that I am NOT an alarmist, I assumed that this lump was a direct result of drinking coffee….a new and unfortunate habit to which I succumbed as a result of total fatigue. Additionally, I assured myself that breast cancer doesn’t typically hurt. So, I wasn’t particularly worried.


I was happy (and a little relieved), however, to already have an appointment with a gynecologist in Santa Barbara for a full checkup the week later.


Fast forward to Monday, October 11th. I had full check-up and I do mean FULL, including blood work and all of the other unmentionable components of a gynecologic exam. I directed my doctor to the lump in my right breast…still prominently palpable.


My doctor asked when my last mammogram was. I told her that I am 39 ¾ and that I had not yet had one. Well, you would have thought that I had committed a mortal sin. “What? You should have had one at 37,” she said. I explained to her that I just moved from the Midwest where women typically don’t have mammograms until age 40. I thought I was actually AHEAD of schedule, as I am apt to be.


She said that the lump was probably nothing, but that she wanted me to have a mammogram and handheld ultrasound as soon as possible. ASAP? Well, I wondered, if she thinks it’s “nothing” then why am I rushing to get these tests?


I called the two places in Santa Barbara that do mammograms and ultrasounds. The first appointment availability was mid-to-end of November at each location. However, one of the two said, “if you come as a walk-in (promptly at 8:30 on Thursday), it is very likely that you will be the first seen.” Okey-dokey. I’ll be there.


The Husband was heading out of town on Wednesday for 5 days with a group of dear friends to Israel. This couples-trip had been planned nearly a year in advance. At the onset of the planning, I knew that I was not supposed to be on this trip. Why? I had no clue. Though I knew it would be an absolutely incredible, over-the-top trip, I just knew that I was not supposed to go. Because it was important to him, I supported his participation 110% (even though I had an inkling that he, too, was not supposed to go). I tell you this because I am a big advocate of intuition. When your inner voice talks, LISTEN.


Before he left, he said, “If you need a biopsy, wait until I get back.” Really? More of this alarmist talk…


On Thursday morning, I drove myself to my tests. Having someone come with me was not even in the realm of thinking. On my way there (at 8:15 am, by the way!), my gynecologist called to ask me when I was going for the mammogram and ultrasound. I told her to relax, that I was on my way there now.Geez.


Well, the mammogram went brilliantly. The tech was kind, gentle and apologetic for smooshing my breasts into the vice-like machine. Much unlike the horror stories I’ve heard from friends.


I asked if I could take a look at the images when she was done and it looked nice and fibrous. I was confident that in no time, I would be told to stop drinking coffee.


Next up: handheld ultrasound. I was taken into a nice, quiet, dark room and given a warm blanket, which had NAP written all over it. Unfortunately, the technician was chatty, chatty, chatty. She was so nice, though, that I couldn’t be grumpy with her. Then, she stopped talking. Silence.  This, I knew, was not a good sign. However, I took it as an opportunity to catch a little shut-eye. When she finished, she asked me to stay in the room because she wanted to ask the radiologist if he wanted a few more images. No problem. She promptly returned 5 minutes later to squirt more gel on my breasts and take more images.


After she finished, she asked me to put my clothes on and wait in the waiting room. I asked her when I would get the results. She told me that the radiologist would see me before I left. Another bad sign. I wondered why the radiologist needed to tell me in person to stop drinking coffee. Seemed a little dramatic since I was only drinking one cup a day at most.


When I was finally called into the radiologist’s office, my images (a lot of them!) were on 4 large monitors before me. He said, “I understand you are a nurse.” Yes, I said. “Then, I assume that I can talk with you more directly and clinically than I would someone else.” Sure, I said (though, I wondered if there was a clinical way to tell me to stop drinking coffee).


I felt as if I was about to be in a car crash, where everything happens before you know it, but it feels like slow motion. “You have 4 lesions in your right breast and 3 in your left. We need to do a biopsy today and an MRI as soon as possible. Here are the images. You can see right here…” WTF? WTF? WTF?


I said, Hold on…let me get my journal out so that I can take notes. I have always prided myself on being a good student, a diligent note taker. As I reached for my Moleskin, I noticed that my hands were shaking.


So, he proceeded to introduce me to my lesions (a/k/a tumors). How the F did they get there so fast? They are BIG, too. I just had a full check up from my internist this summer, including a breast exam, and nothing. Not an inkling of anything.


The radiologist then asked if I was available for a biopsy that afternoon (by now the morning has evaporated and I’ve already had to rearrange preschool pickup). I told him that he just needed to name the time. 3:00. OK, 3:00 it was. He told me that I should probably bring a friend with me. Really? You think?


In the meantime, my husband had just landed in Israel and was getting ready to go to dinner.


My first call was to one of my dearest friends in Chicago, who went through the exact same thing a year and a half ago. No kidding. We went to nursing school together. We think the exact same way. I was with her at her diagnosis appointment, during her surgery, at her last chemo treatment. After a few F-bombs, she said, “This really sucks, but at least we know how to do this.” Yes. We. Do.


After the revelation, my first question: what do I tell The Husband? He just landed-in ISRAEL-for goodness sake. Ironically, her husband was on a weekend-long fishing trip when she received her diagnosis. At the time of her diagnosis, we talked through “Do I tell him or do I let him enjoy what will probably be his last worry-free vacation for a long time?” She decided to wait to tell him when he got home on Sunday night after all, nothing would happen over the weekend. She said that she felt like this was the only wrong decision that she made throughout her treatment and that my husband needed to get is toukis on the plane and come home.


So, driving down the 101 Freeway (which happened to be a construction zone), I called The Husband. In Isarel.  Not the best idea for the delivery of the news. In fact, I’m so grateful that I didn’t crash my car into one of the barriers when I burst into tears. “I’m coming home” is all I remember him saying.


In the meantime, I had already sent an email to my internist to talk through the events of the day, which were now moving at lightening speed. I at least had the wherewithal to realize that I couldn’t see the forest from the trees and needed some level-headed clinical thinking.


My doctor called immediately – love him. His first response was, “Whoa. Whoa. Whoa. Slow down. This is ridiculous. Things are moving way too fast. I’m sure this is nothing, but the first thing you need to do is an MRI. If you do a biopsy first, then, the MRI results can be skewed. You need an MRI and you need a Breast Surgeon overseeing everything.” I immediately breathed a sigh of relief. FINALLY. Someone who is NOT an alarmist. He said, “I’ll call you back in 5 minutes.”


He called back in 5 minutes just like he said he would – love that. He said, “Can you be downtown in 15 minutes to meet with a surgeon?” Absolutely.


Now that I finally had a voice of reason that echoed my own, for the second appointment of the day, it never occurred to me to take someone with me. Back on the 101 Freeway, I felt much more cool, calm and collected. After all, I was on my way to see a surgeon who would certainly tell me that this was just one big misunderstanding.


I arrived at the surgeon’s office and was promptly escorted into an exam room, where my morning mammogram and ultrasound images were already up on the screen. Impressive. The surgeon greeted me with a warm and calming smile….and firm handshake (wimpy handshakes are a sure way to raise doubt in me). I felt instantly comfortable with her. She asked if she could do a breast exam. After whipping off my shirt for the 3rd stranger of the day, I hopped up on the table. When she was finished, she said that she was “worried.” She agreed that both an MRI and biopsy were in order. She gave me two options: 1) I could keep my 3:00 appointment for a biopsy with the radiologist or 2) she would do the biopsy on the spot and then send me for an MRI. She assured me that if she did the biopsy, that there would be no problem in doing an MRI after. I trusted her surgeon’s hands and said: Let’s do this.


At this point, the poor, worry-wart Husband is now flying. No clue where in the world he was. All I knew was that he was unreachable and that I couldn’t wait until he got home to do the biopsy, as he had requested. I knew that he would understand.


After I called to cancel the appointment at the radiology center, the surgeon proceeded to tell me that she would do a fine needle aspiration (FNA) of one of the lesions that was palpable on exam. After, she would do a large core biopsy of the other, larger palpable lesion (the one that woke me up). The location of the lesions were described in terms of a clock, i.e., the smaller lesion requiring the FNA was at 1:00 and the big momma was at 9:00. I don’t think that am or pm really matter, in case you were wondering.


As a nurse, I was fascinated with the process of both doing and watching a biopsy, especially ON me. (For the record, I do acknowledge how strange and twisted that is to say.) I told her that I am a big advocate of pain management and to “go big” on the lidocaine. So, without pain, I watched as this skilled, gentle and thorough surgeon did biopsies on two of the lesions in my right breast. When she was finished, I asked her what she thought. She said, “I am very, very worried.” She was eager for me to do the MRI that afternoon and was able to squeeze me in.


Then, we had the conversation about a Closed MRI versus an Open MRI. I had the great misfortune of having a Closed MRI when I was pregnant (long story, but because I had migraines every day of my pregnancy-yes, everyday-my OB thought I had a brain tumor and stuck my migraine-laden head into a Closed MRI head to rule out a brain tumor. I later broke up with that OB, by the way.)


A Closed MRI, in case you don’t know, is a medical imaging technique used to visualize internal structures of the body, in this case, my breasts. It feels like being dropped into a deep and narrow well with people jack hammering about 2 inches from your face.  Seriously.


Closed MRI = Claustrophobia [1. http://www.openmriofcanada.com

I tried my darndest to negotiate an Open MRI-essentially the same test but without the claustrophobia-to no avail. “We need the Closed MRI,” she said. Well, then, I’m going to need some serious drugs. “Valium OK?” she asked. Yes, Ma’am. NOW, it’s time to call a friend.

In the meantime, this amazing surgeon told me that she didn’t typically work on Fridays, but that she wanted to come in to discuss the preliminary test results (comprehensive pathology results take several days). I told her that as a Hospice and Palliative Care Nurse, I have been in her chair-delivering bad news-and want to know ahead of time what she was going to tell me. All she said was, “I’m very, very worried.” Enough said. F-Bomb.


So, I called a girlfriend and, in order to ask her to escort my valium-laden head to the MRI, I had to break the news. Now I was sounding like the alarmist, which I did not like one bit. I decided that I actually wasn’t being an alarmist at all. Rather, I was simply delivering factual, but alarming news.


She would meet me at my house in 20 and drive me straight to the exam. In the meantime, I stopped by the pharmacy to pick up the valium. Just having the valium helped me relax. (That first time in the Closed MRI was utterly traumatizing.) As soon as we got in the car, I took the pill. Being opiate naïve (i.e., I am not in the habit of taking drugs) combined with the fact that I forgot to eat that day (a shocking occurrence in and of itself!), the valium took effect almost immediately.


As we were driving to the exam, my surgeon (I now refer to her as “my”) called and asked, “Have you taken the valium yet?” Ohhhhhh, yesssssss. “Oh no,” she said, “The MRI machine just broke.” Toooooo baaaaaad. Then, she said, “It’s too bad because everything was going so well today.” Foooooor whoooom was it going well, dear surgeon? At least we both were able to laugh at that seriously laughable line.


So, MRI was scheduled for the next morning at 7:00 at a different location. Valium buzz still firmly in place. My girlfriend and I decided to just run some plain old errands. After all, not everyone’s world was rocked today and errands still needed to be run. It was actually gift of time for us to process the day.


I need to stop this story to tell you that throughout this process, I have been able to witness (with gratitude) so many Silver Linings (SL’s). So much good is coming out of so much bad. Seriously. It is important that I point these out to you because these Silver Linings are what are helping me maintain perspective and a positive attitude. From this point forward, I will simply refer to them as: SL’s.


Fast forward to 6:45 am Friday morning. Having taken the second valium, I am smooth sailing into this closed MRI. When I arrived, the woman at the desk said that they were going to have to wait to do the MRI because they didn’t have the official doctor’s order. Reaaaaaaaallly? I think that she saw that pathetic, devastated look on my face and said, “I know it’s coming. Let’s get you in, sweetie.” SL


Well, I am here to say that not only did I survive the MRI-I fell asleep in it! The technician had to wake me up. Awesome.


So, I came home to sleep off my valium buzz before my 11:30 doctor’s appointment (to which I have asked my girlfriend to come). At this point I have finally learned to NOT go to a doctor’s office without a friend! Well, my head had barely even hit the pillow and my surgeon’s office called to ask if I would come an hour earlier so “we can have more time to talk.” Another bad sign. Sure, I say, we will be there.


We arrived promptly at the newly-designated time of 10:30 and were escorted almost immediately to my surgeon’s office. Isn’t it wonderful when physicians are on time (SL)? My valium buzz was long-gone. I was ready-well, as ready as I could possibly be. I had my computer AND my journal to take notes. I asked my girlfriend to take notes in my journal while I typed on my computer so that I could accumulate as much information as possible.


Note: anytime you go to a doctor’s office for an important meeting, such as a diagnosis, it is always very important to take as detailed notes as possible. I know that there are statistics (though I can’t put my fingers on them right now, so please don’t quote me) that say that patients only hear a teeny-tiny fraction of what is said in these types of anxiety-filled meetings. The benefit of taking notes, in addition to accumulating valuable information, is that it slows the conversation and allows you to ask clarifying questions.


So there we were. Ready. My surgeon calmly and gently said exactly what I expected her to say, “As I suspected, you do have Breast Cancer.” F-bomb. Because I expected her to say this, at least it didn’t feel like a wrecking ball hitting me in the head-well, it actually still felt like a wrecking ball. What am I saying? I must admit that there was a little part of me that was hoping that someone would please tell me to just stop drinking F-ing coffee.


My surgeon told me that the large core biopsy at 9:00 is invasive ductal cancer associated with DCIS (ductal carcinoma in-situ). The FNA (Fine Needle Aspiration) biopsy at 1:00 shows high cellularity and cancer cells and is most likely also invasive ductal carcinoma (because the other lesion is). I asked about the left breast, the one with the three lesions. “Because they are so hard to reach,” she said, “we would need to do a MRI guided breast biopsy.” Fabulous.


She immediately started talking about the treatment plan: mastectomy immediately, chemotherapy for 3-4 months, and radiation for 6 weeks. Holy Moly. All that kept running through my head was: We. Know. How. To. Do. This.


On a side note, having delivered a whole lot of bad news and taught how to deliver bad news (after all, my professional background is hospice and palliative care), my surgeon did an incredible job. Stellar, in fact: SL.


So, this was Friday. The (exhausted and worried) Husband landed in LA about the time we finished our meeting. My girlfriend and I went out to lunch (yes, I had a gigantic glass of wine) to strategize. My big issue was: How to tell everyone? Calls? I started making a list of the people I needed to tell. The list became bigger and bigger: SL (to have so many loving people in my life).


I decided that I just didn’t have the capacity to call everyone on the list. First of all, I’m generally not too chatty on the phone. Secondly, I was exhausted and the thought of making a gazillion phone calls to retell the story was just too daunting. Then, I decided that I wanted everyone to hear the news directly from me, in my own words. Hence, sending a group email was the choice for me. While it wasn’t quite as personal as a phone call, everyone knew that it came directly from me and didn’t have to hear it from someone else. This was very important to me.


After lunch, I went home to wait for The Husband. While waiting for him, in an effort to make some sense of the news I was told, I went to komen.org. The Susan G. Komen foundation was founded in 1982 by Nancy G. Brinker, Susan’s sister. It is an extraordinary website that has the perfect balance between sophistication and accessibility. I was definitely intellectualizing the situation.


After flying 30 of the previous 48 hours (with a good 8-10 hours spent in airport terminals), The Husband finally rolled into the driveway. I’ve never been happier to see anyone in my life. Well, I was pretty happy to meet my daughter when she was born, but that’s another story. Anyway, we were both pretty numb and exhausted. Quite frankly, I don’t remember much of the rest of the day. That’s what the stress of this FBC has done to me: wiped out my memory bank. This is the reason that I have a tendency to write (or type) everything.


I imagine that there were a few tears when I saw The Husband, but definitely no snot fest. We are both problem solvers and now we had a big, bad problem that needed a plan.


Not sure who has actually slogged through this first BrooksideBuzz blah-blah-blah, but if you have, thanks!


I am in an incredibly good place right now. I feel like I am exactly where I am supposed to be. No, I am not in denial and I don’t think I’m crazy. I feel like I am at an intangible height of emotional bring-it-on-ness.


Next step:  Making a PLAN.


‎Thank you for the reminder to focus on what matters most–finding silver lingings and learning to make sweet lemonade from a bowl of lemons. I am convinced that we all have formative hurdles in life. Our challenges are to make it through, over, around those obstacles holding on to love, kindness, and grace (and cursing like a truck driver when the need arises).


–Dana Jennings


Source:


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Published on October 15, 2014 14:56

October 13, 2014

Musical Monday: I Will Survive

Musical Monday: I Will Survive 


I light of the fact that today is Metastatic Breast Cancer Awareness Day, I thought that I would share one of my all-time favorite songs, one that I listened to over and over again when I had FBC. I believe that this song is meant to empower people who are struggling through the hardest of times….I know that it did for me.  My hope is that this song will  give you hope and remind you of the inner strength and confidence you have! Happy Monday everyone!



“I Will Survive”- Gloria Gaynor
At first I was afraid

I was petrified

Kept thinking I could never live

without you by my side

But then I spent so many nights

thinking how you did me wrong

And I grew strong

And I learned how to get along

and so you’re back

from outer space

I just walked in to find you here

with that sad look upon your face

I should have changed that stupid lock

I should have made you leave your key

If I had known for just one second

you’d be back to bother meGo on now go walk out the door

just turn around now

’cause you’re not welcome anymore

weren’t you the one who tried to hurt me with goodbye

Did you think I’d crumble

Did you think I’d lay down and die

Oh no, not I

I will survive

Oh as long as I know how to love

I know I will stay alive

I’ve got all my life to live

I’ve got all my love to give

and I’ll survive

I will survive (hey-hey)It took all the strength I had

not to fall apart

kept trying hard to mend

the pieces of my broken heart

and I spent oh so many nights

just feeling sorry for myself

I used to cry

But now I hold my head up high

and you see me

somebody new

I’m not that chained up little person

still in love with you

and so you felt like dropping in

and just expect me to be free

and now I’m saving all my loving

for someone who’s loving meGo on now go walk out the door

just turn around now

’cause you’re not welcome anymore

weren’t you the one who tried to break me with goodbye

Did you think I’d crumble

Did you think I’d lay down and die

Oh no, not I

I will survive

Oh as long as I know how to love

I know I will stay alive

I’ve got all my life to live

I’ve got all my love to give

and I’ll survive

I will survive

 



 


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Published on October 13, 2014 11:02

October 12, 2014

Metastatic Breast Cancer Awareness Day

Metastatic Breast Cancer Day


Metastatic Breast Cancer Awareness Day


So many of us – myself included – are a little over the pink ribbons. (For the record, the blog has a lot of pink on it ONLY because it’s my favorite color!) The awareness movement began because there was a need for – well – awareness. No one discussed breast cancer. It was taboo. The Silver Lining is that the founding members of the original breast cancer awareness campaign did a phenomenal – absolutely outstanding! – job because at this point, who isn’t “aware” of FBC (though I haven’t heard it spoken publicly with an f-bomb before it! Just sayin’.)?


The thing that many/most people are unaware of when when comes to breast cancer is metastatic breast cancer. So, there is a new movement upon us. And it is an important one. Today is Metastatic Breast Cancer Awareness day. I really wish that this day didn’t exist. But it does.


In case you’re wondering, metastatic breast cancer, also known as mbc, stage IV or Advanced Breast Cancer, is cancer that has spread beyond the breast and lymph nodes under the arm. The most common sites of metastases are the bones, lungs, liver and brain.


The thing of it is that no one dies from breast cancer that remains in the breast. The lump itself is not what kills. The spread of cancerous cells to a vital organ is what kills. This is called metastasis.


People living with metastatic breast cancer face a unique set of challenges. In fact, I’m going to dedicate an entire post on this very topic because it is so very important.


What I’d like to share with you today is a list of 12 important facts about metastatic breast cancer from the Metastatic Breast Cancer Network: 



No one dies from breast cancer that remains in the breast. Metastasis occurs when cancerous cells travel to a vital organ and that is what threatens life.
Metastasis refers to the spread of cancer to different parts of the body, typically the bones, liver, lungs and brain.
An estimated 155,000 Americans are currently living with metastatic breast cancer. Metastatic breast cancer accounts for approximately 40,000 deaths annually in the U.S.
Treatment for metastatic breast cancer is lifelong and focuses on control of the disease and quality of life.
About 6% to 10% of people are Stage IV from their initial diagnosis.
Early detection does not guarantee a cure. Metastatic breast cancer can occur 5, 10 or 15 years after a person’s original diagnosis and successful treatment checkups and annual mammograms.
20% to 30% of people initially diagnosed with early stage disease will develop metastatic breast cancer.
Young people, as well as men, can be diagnosed with metastatic breast cancer.
Like early stage breast cancer, there are different types of metastatic breast cancer.
Treatment choices are guided by breast cancer type, location and extent of metastasis in the body, previous treatments and other factors.
Metastatic breast cancer is not an automatic death sentence. Although most people will ultimately die of their disease, some will live long and productive lives.
There are no definitive prognostic statistics for metastatic breast cancer. Every patient and their disease is unique.

To learn more about National Metastatic Breast Cancer Awareness Day on October 13 and to access resources specifically for people living with metastatic breast cancer and their caregivers, visit www.mbcn.org.


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Published on October 12, 2014 17:56