Jane Roper's Blog, page 17
February 27, 2014
Super Sib
As I’ve written here many times before, it’s hard to be a sib. Throughout this crappy little boat trip, Clio has gotten so much more attention than Elsa, of so many different sorts. She’s been the recipient of countless gifts and treats, only some of which have come in duplicate. She’s spent endless hours more... Read the Rest »
February 19, 2014
Pretty Girl
I dropped the girls off at their February vacation day camp yesterday, and at first Clio didn’t want to take her (winter) hat off. It took me by surprise. She hardly ever wears a hat indoors anymore, and has enough hair now that it *almost* looks like she just has short hair on purpose. But... Read the Rest »
February 9, 2014
The End is Nigh
In less than five months, Clio’s treatment will be done. No more chemo, no more steroids, no more need to call the clinic or get pumped full of antibiotics or spend time in the hospital if she gets a fever. They’ll remove the port that’s been in her chest since three days after her diagnosis.... Read the Rest »
February 2, 2014
We won!
OK, OK, Alastair didn’t win the Grammy. But we still had a great time in LA (by ourselves! No kids!). And he still gets to say for the rest of his life that he’s Grammy-nominated. And all the Gramminess aside, he made a kickass album (in my unbiased opinion) that’s touching thousands of lives. Like... Read the Rest »
January 23, 2014
Grammys, here we come.
Temps are in the low teens here in Boston right now. I’m not a wimp about winter, but I’m not a fan of when it gets frigid like this. Today, though, I couldn’t care less. It just makes it all that much sweeter that tomorrow morning we head for sunny, 80-degree Los Angeles. Woohooo! I’ve... Read the Rest »
January 15, 2014
The ‘Roid Routine
Every three weeks, Clio starts a new treatment cycle. It’s been this way since November 2012, and will continue to be this way through July, when she’ll finish treatment. A key ingredient in each treatment cycle is steroids. (Dexamethazone, specifically.) Last year, she got insanely high doses of it; this year she gets a third... Read the Rest »
January 10, 2014
Hello, Young Doctors, Whoever You Are
Yesterday I participated in a presentation and Q & A for medical students at Harvard, in which I recounted the story of Clio’s diagnosis and treatment, starting with the first symptoms she had — intermittent fevers, leg pain, belly pain — and going right through to her current treatment, and thoughts about what the future... Read the Rest »
December 31, 2013
When One is Lost
We realized very soon after Clio’s diagnosis that at some point in the course of her treatment, we were going to be confronted with the death of some other child with cancer. Maybe it would be someone we knew well, whose family we’d gotten to be friendly with. Or maybe just someone who happened to... Read the Rest »
December 17, 2013
Christmas Crafts for the Lazy
The other day, I rustled up our wreath from the depths of our basement to put on the front door. If you’ve been reading since back when I was blogging on Babble, you may recall that I gave a step by step account of how I made it so that you, too, could create a... Read the Rest »
December 8, 2013
Crazy Good News and a Giveaway
Hello there! So, I’ve been kind of a slacker blogger lately. But this is, in fact, a good sign: It means nobody else in my family has been diagnosed with cancer! Nothing is driving me to the brink of insanity! Nobody is in the hospital! I’m just busy. But today, I have a couple of... Read the Rest »
