Angel Ackerman's Blog, page 17

Have you ever had brain surgery before?

Today I received a paycheck. I haven’t had one of those in two months. I have been keeping my house afloat on $900 in disability payments (and denied the last $450 I was entitled to because the absence management company keeps losing the fax), savings and credit cards.

In two hours I will be leaving to drive over to my hand specialist/orthopedic surgeon about my sprained pinky. Despite the therapy, despite the time that has elapsed, it’s still tender, doesn’t bend all the way and has a rather distorted knuckle. Monday is my first appointment with my cardiologist.

My heart rate has been normal most of this week. But yesterday was a little rough– heart rate variations and fatigue throughout the day. I had a lot of muscular pain in my right hip, which extended into my back and quad, and worked overtime at the Bizzy Hizzy. So, I ate a lot of snacks, took ibuprofen, drank a lot of water, and ate my sorrow in the form of about 2,000 calories of burger, onion rings and blizzard at Dairy Queen.

My boss asked me if anything had changed to cause my discomfort. And as usual, Angel hadn’t changed one thing but several. I had worked hard the day before and perhaps I overdid it, because I had been behind in my numbers. Then, I went to the chiropractor, and when she touched me, it felt different. She often has to do things to my legs I don’t understand, but that right hip often feels like my pelvic bone is at the wrong angle. And when she touched it, the way she does every week, it burned instead of ached.

After the chiropractor, I went to the gym. And Andrew subjected me to leg-and-core day. Because he loves me.

I had a nice dinner after that of kale, potatoes and chicken. And I was in bed by 8 p.m. (Don’t judge me! I wake at 4 a.m.) At a minute or two before 9, I had to use the bathroom. And these days, I can’t take my chances. For some reason, I can’t always hold it. I have some retrolisthesis, and there is some theorizing that it might press on a nerve occasionally that interrupts that signal.

I stumbled from my bed, entered the bathroom, and next thing I knew I was kissing my ceramic tile and my Apple Watch was having a tantrum on my wrist. The Teenager ran up the stairs.

“Mom, are you okay?”

The shower shelf had started to fall off the wall earlier in the day. I had decided to be proactive and I removed it. I set it against the bathroom wall to rehang. In my evening stupor, I did not have my glasses on. The pale silver shelf blended in with the beige tile and I stepped right on the damn thing.

“Mom?” the Teenager said. “Why is your watch freaking out?”

Apple Fall Detection has received some mixed reviews. But this time it nailed it. My watch progressively buzzed until I looked at the screen and responded to it.

“It looks like you have taken a hard fall.”

And there were two options. “I’m okay.” And a big red emergency button. I hit “I’m okay.”

That’s how I went from 50 days without a fall to one. Sigh.

In the last of the medical update, I’ve been receiving a lot of repeated phone calls that never leave messages. So, I answered one yesterday that looked like an important phone number. And it was 11:22, so close enough to work lunch that I could step off the floor if I needed to,

It was the neurosurgeon. My neurologist had told me she was going to refer me to neurovascular to have my aneurysm checked. Apparently, they call you and ask your symptoms so the doctor can decide if your head is going to explode and if he needs to see you tomorrow versus in a couple months. So, I answered her questions.

“Have you ever had brain surgery before?”

Oh, I don’t intend to have brain surgery at all, I think. “No.”

“Do you have any allergies to the dye used in MRIs or CTs?”

“No,” I said. “I just had my first CT with contrast and tolerated the dye well. But I have a tooth implant, so an MRI might be out of the question.”

(Which is a shame as I would love to see my brain via an fMRI.)

Questions about my symptoms. Headaches? Yes. Vision trouble? Not really. Weak arms? No. But I have a tingling pinky no one can explain. Lightheadedness or dizziness? Yes, but we attributed that to low blood pressure and side effects of the beta blocker. Slurring words? Not slurring, but completely losing. But I have a history of anemia. Incontinence? Lately, yes.

“Do you have difficulty walking?”

I chuckled. “That’s loaded question. I have cerebral palsy.”

“Oh, let me write that down for the doctor.”

“Spastic diplegia if you want to be specific,” I told her.

“When did your symptoms start?”

“Well…”

I told her they found the aneurysm after a CT scan meant to check if blood wasn’t getting to my brain properly after my second fall in March landed me in the hospital. And here we are.

I need this weekend. Badly. And I’ll be taking Nan, my blind friend the space nerd, to Lehigh Valley Space Fest on Sunday.

Barbells and heart rates

It happened again yesterday. A work colleague reminded me that she was old and 50, at which point I had to say, “well so am I.”

After some back and forth, it was determined that I am a year younger than her, as my 48th birthday is in less that three weeks and her 49th is in June.

I have so much to say, and so much on my mind, that the words overwhelm me and don’t emerge as they should. But, here is my attempt.

Let me just say– so it looks less like I am whining– that yesterday was probably the first day since late January that I did not feel my heart pounding in my chest. Even at the gym. The Apple Watch reports that even as Andrew had me standing on balance trainers while swinging the heavy ropes, my heart rate stayed at around 150 beats per minute.

Yesterday I also felt strong and steady walking around all day. My back and hip pain never got over a three, and dissipated as soon as I got home from work. I didn’t feel like I was swaying standing there at my table.

Which, if you are curious, the Apple Watch counts folding clothes as steps, especially when it’s the aerobic clothes folding we do at Stitch Fix. So, I’m now routinely getting 15,000+ steps a day. I know they are not steps, per se, but it is activity. And about five minutes a day of folding clothes the watch registers as exercise.

My blood pressure has consistently been about 98/54 upon waking, 125/80 most of the working day, and 115/70 in the evening. I keep an electrolyte beverage at my bedside (electrolyte powder plus if you are curious) and chug about six ounces before getting out of bed. I’d have more, as the doctor suggested a full 16 ounces, but I have noticed that I have a tendency toward incontinence these days. If I feel I need to use the restroom, I have to go right away or I might pee myself on the way to the bathroom. It’s happened at home several times that once I registered the sensation, I just can’t hold it until I reach the toilet. Not fun.

And my pinky still tingles at work, during exercise and during postural changes– or so I think. I’m trying to figure it out.

The tilt table test to rule out Postural Orthostatic Tachycardia Syndrome (POTS) is May 17. And my neurologist will be referring me to neurovascular for the aneurysm they found in my head on my CT scan. But good news, she said, is that she doesn’t think the aneurysm has anything to do with my symptoms.

My short term disability provided by my employer only provided two weeks pay of my one month leave, and it was only 66% of my wage at that. I’m still bickering with them over the last week, because they claim my doctor hasn’t sent appropriate notes to justify my last week. I know my doctor’s office faxed the forms twice and I sent screen shots of the office notes. Now the absence management company has switched my examiner.

This remains extra frustrating because my initial fall, on Stitch Fix property, happened March 1. I filed a claim at that point, and missed some working time because of the incident but no full days. I don’t think. They canceled that claim, and when I ended up in the hospital the evening of March 13, I had worked a full day that day so that meant my waiting week started March 14. All this bickering over $450.

In the meantime, my car insurance had been due on the day I ended up in the hospital and I ended up paying it from my hospital bed by credit card. Because I hadn’t anticipated being out of work mostly unpaid for a month, I had business and other household expenses, primarily groceries, on that card, with The Teenager’s unexpected car repairs, and a balance from the ceiling repair we had last year. By the end of April, I had $5,000 on my American Express. And not a dime in my checkbook or savings account.

I used my rest time during the weekend to research a personal loan. And I closed on that with my bank of 20+ years yesterday. I’ve been paying $300+ a month on credit card debt. This allows me to pay them off, have a bit of a cushion, and repay at a rate of 6%. That’s the one good thing about having a high credit score in a bad economy, it’s cheap and easy to borrow money. It certainly makes me uncomfortable to have “more debt” but I have to remind myself it’s the same amount of debt, just more manageable.

It’s a lot. It’s a lot to think about when you balance it all with the fact that I have a disability, work full-time, have a side business where many people depend on me, and I’m a mom. The jury is still out on whether whatever happened to be in March was a “single” event or whether now on top of everything else, I have a chronic condition.

Whatever it is, I’ll keep coming.

Scary words

I almost didn’t write this one. It’s been a long day, and I’m tired, and achy, and cranky. This morning started off-kilter when I couldn’t find my car keys (they were in my pants pocket in the dirty laundry basket), had left my sweatshirt in the car and it was cold, and I should have had more breakfast.

My Apple Watch is doing its job– and it does seem to track significant leaps in heart beat when I rise, 30-35 beats per minute, but I don’t know how long that has to last to qualify as POTS. (And I have a note to call and schedule the tilt table test Tuesday afternoon.) Right now, I am just collecting data. And those numbers tell me when to give my body a minute to right itself. Regardless of what my diagnosis is.

When I got to work, a colleague told me she called the cat rescue and the person she spoke with didn’t know anyone with my name. That was certainly odd.

I started out strong, as I often do in the morning, preparing 8-9 fixes every half hour. But by first break my hip started acting up, which made the day harder and I fell behind. By ONE fix. But of course break is 10 minutes, so then it was four fixes. But by lunch I was only half a fix behind.

I didn’t have many calories with lunch. The portion of hearty vegan barley soup I had left was smaller than I expected. But by second break I was officially at the company numbers, which meant I’d be a little behind when I returned. But I had work that was easier for me, so I was confident that despite my inability to bend, I’d get the job done.

But then I saw a notification from my medical portal. My CT results were in.

Normal. Normal. Normal. That’s what I saw as I skimmed the report. Normal. Normal. Then… “suspected 2 mm laterally directed left paraophthalmic ICA aneurysm. Recommended follow-up with neurovascular service.”I freaked out internally. Started shaking a bit. I was prepared for a lot of things but an aneurysm never entered my mind. Pun intended. Note: I was reading this at work, and I only get ten minute breaks so I wasn’t reading for comprehension. Over the course of the afternoon, I realized this was small. And I calmed down fairly quickly. So this was about surprise. And I told my friends, “Well, now we wait. The faster I get a phone call from the doctor, the worse the news is, right?”

The nerves gave me the energy to finish at my target number to make my employer happy.

I then headed to physical therapy, where I was honest with my physical therapist about everything. And before we got started he fixed my back and hip. Those people are incredible. I noticed while doing my exercises– the clamshells were much harder and the stability exercises… I was falling backwards instead of forward. When I stand on one leg I normally fall forward. I almost fell right off the machine, and backward, which would have been terrible as the physical therapist was with another patient and no one had a gait belt on me.

But remember what I said about lunch? I was starving. And I seemed to be recreating the same scenario as some of my other falls– busy day, discomfort, hunger… if I went home and ate a big meal (which diverts blood into digestion), would I fall?

I went home and The Teenager promised me a big dinner of chicken parm, cheesy garlic bread and brussel sprouts. I warned her that large meals might be part of the fall formula, so she followed me to my room after we ate. She stated that she didn’t like the way I was wobbling.

Good news is I haven’t had any low blood pressure since I ate that entire Little Caesars pizza Saturday night. Bad news is, the binge made me regain the five pounds I lost.

But at least in my dreams last night I had a good time– as I was apparently dating a man with dark hair and a Tesla. I very much enjoyed his company, and he appeared to enjoy mine. This wasn’t our first date, but it was definitely a new relationship.

Naughty girl buys an Apple Watch, series eight (and there will be fun stuff and medical stuff)

If you visited the Parisian Phoenix blog yesterday, you know I had a busy day and really my weekend has been a buzz of activity. The Teenager cleaned the house in hoping not to kill her cat-allergic Uncle Tom when he came to visit today and help her with her many projects she has planned: a catio, fixing the door, and improving some other animal conditions. Plus, he wanted to meet the ratty rats as his wife had rats while they lived in their apartment.

This morning, I was lying in bed, thinking more and more about the possibility of POTS. It makes sense, but at this point I don’t want to get my hopes up on a diagnosis. I’ve been tracking my eating habits, my symptoms, my heart rate, my sleep, my blood pressure and it’s exhausting.

And I’m on a beta blocker now, so what if the doctors are struggling to diagnose me because they don’t have conclusive data.

I wrote a long email to two of my friends and bared my soul amount my medical concerns and how I felt about this current journey I am on.

And then I found myself on Apple.com, looking at the Apple Watch I picked out for myself to buy as soon as I paid off the computer on which I am typing. And then the Teenager’s car insurance doubled. And I ended up in the hospital. And we had the plumber visit. And a fuel oil delivery. And in the last six weeks every dime of my savings has left.

But I need answers.

And with the new Apple Card, the Apple Watch is only $17/month for a series eight.

I texted Southern Candy. “I’m about to do something impulsive and I need to talk through it.”

We did.

“I think it would be a good investment if it could help you with all of this,” she said.

So I ordered one.

And said I would pick it up at my local Apple Store.

And when I told Gayle she agreed.

I walked down to Big Papas to meet the girls for breakfast– and this time the girls included one of the guys. It was a group of us from the Bizzy Hizzy and we had a great time laughing and eating the entire place including the biggest pancakes I ever saw in my life.

In the afternoon, the teen and I embarked on our adventures. We put gas in the car at the Penn Jersey Mart which finally has gas again after months of needing new tanks. They have an amazing selection of candy, so of course the Teenager went in and bought candy and sodas, because after those massive pancakes I obviously needed more sugar.

We got stuck in a laborious traffic jam on the highway, so we ate candy and chatted. We picked up my watch and headed to Grocery Outlet because The Teen has restricted grocery budget for this week and I got her so much food last time for $80 she wanted me in charge again. This time I came in at $41. And she added on a handful of items (a cake, a meat and cheese platter, and some meat sticks from Tillamook) that added on another $15.

She’s delighted with the results. Especially since she’s never seen a Pepperidge Farm cake and they had several. And I hate to tell her for the 1800th time that her great-grandmother used to always keep one in the freezer and she never quite managed to thaw it all the way, so frozen cake was common.

So we took it home, invited her father and had partially frozen cake in honor of his grandmother.

“Frozen cake is kind of good,” the Teenager decided.

The sink hole, the medical stuff and the backwards rune

Me, in a chair identical to the one the dog ate, waiting at the hospital

I feel like garbage: exhausted, headachy, ears ringing, like I might come down with some horrible flu at any moment. I just got home from my CT scans, one with contrast, to double check that there is nothing interfering with blood flow between my brain and my heart. And upon attending a follow-up with one of my doctor’s residents today, they want to do a tilt table test to rule out POTS.

Awesome.

I just drank about 16 ounces of water and wolfed down an Abe’s Mom’s Gluten Free coffee cake muffin. I’m pretty sure it was nutritionally void but it tasted amazing. It tasted like the whole thing was made of coffee cake crumb topping.

Work this week has been really good– except for the fact that I was in intense pain Monday, and then I nailed it Tuesday (and discovered the extra energy came from my blood pressure being higher than normal), and then I hurt on Wednesday from overdoing it Tuesday.

I came home from work yesterday, went to the chiropractor, canceled my session at the gym and was asleep by 7 p.m. and I slept until 5 a.m.

Speaking of work… two bits of news from the Bizzy Hizzy. My favorite sinkhole opened again and it got filled again this week. And they were giving out random PVC pipe. Of course, the teenager wanted one.

I used the bathroom at the doctor’s office and I noticed a strange pattern on my favorite jean jacket. It looks like a rune. So, I posted it on social media. And it looks like a potential bad omen. It looks like Raido, “the journey,” backwards.

Mixing business with pleasure

I’ve been making friends in the writing community for decades, and collecting artists along the way. One of those writing friends is William D. Prystauk– from a chance meeting at a literary event for Kaylie Jones hosted by Laurie Lowenstein– which had to be 15 years ago.

Bill and I would meet for coffee at Lafayette College’s Skillman Library and talk writing for hours. We’ve even seen Gorbachev together. And he’s nailed my kid in the face with a frisbee, probably one of the first signs she had ADHD. She couldn’t stop talking long enough to notice the frisbee sailing toward her.

Bill is also the author of the Kink Noir series: Bloodletting, Punishment, Debauchery and Bondage. I asked him if he could bring Parisian Phoenix Publishing some inventory for the upcoming April 29 celebration of National Independent Bookstore Day we are holding in collaboration with Easton’s Book and Puppet.

While Bill is not officially one of the Parisian Phoenix authors, he did appear in our 2022 anthology, Not an Able–Bodied White Man with Money. As publisher at Parisian Phoenix, I try to promote the hard work of authors that appear in our books, even if those other works do not appear in our stable. That’s one of the benefits of working with a tiny craft press.

Bill and I went to a new business in my neighborhood, Plants & Coffee. They literally opened last week. Bill and I are whores for good conversation, environment and taste-bud experiences. He tried their mango spritzer, and I went for the lavender rose basil spritzer. I love lavender. I love rose. And the mix… greenery surrounding us, the calming lavender and the exoticism of the rose, which reminds me of the Arab sections of Paris…

The shop itself is in a building where I once toured an apartment that could have come straight out of a 1970s porn set. The commercial space was most recently some sort of discount produce stand, and if I remember correctly had some makeshift arcade for a while, and prior to that what Bill referred to as the best Mexican food he’d ever had in this life at a place called “Garibaldi’s.” I remember it, but I never ate there.

So imagine my surprise when I walk into this gleaming space of black, cream and greenery. Small touches like books, retail items and couches providing so much softness and homey feel.

I will be back.

(Meanwhile The Teenager is at home getting her newly adopted rats situated.) They are fitting right in to the menagerie. She adopted them from the Harrisburg Humane Society.

And we also went for sushi at Jasmine, which I often think is Bill’s real reason for coming to see me.

The mysteries of the week: work, physical therapy, a killer workout and an almost fall

Author’s note: It’s my normal bedtime. I’ve been up since 4 a.m. I’m exhausted and my blood pressure has fallen to 103/58 while texting an update to my friend M. But if this is a rambling mess– not my fault.

First Three Days Back

That went fast. I truly love my work colleagues. I love our diversity and how we care about each other. I can honestly say that except for a certain someone I have managed to find the bright side of every person I have met in the warehouse. I hit 100% every day, if we got non-production time for the nine minute emergency meeting about dirty panties. Don’t ask. We all know people are disgusting.

It felt great to move and do again, and I took my blood pressure cuff to work so I could keep an eye on changes in my blood pressure. Standing and working and probably the heat in the warehouse do make my blood pressure rise by the end of the day, 128/87 today, 126/89 yesterday and 121/86 Wednesday at 3 p.m.

But by the time I got home and sat down a bit, that went down.

I have been super careful about what I eat, drinking water, consuming caffeine and sugar, taking my various medicines to my muscle relaxers to my anti-histamines.

My walk has been smooth, and today, my body didn’t even hurt like it often does after work.

Physical Therapy

Even with my blood pressure doing crazy things and having given my all at work, I went to physical therapy yesterday afternoon. My physical therapist pushed me, and it wasn’t easy with my right hip aching and being so fatigued. Because I’ve been doing so well he increased the intensity of my exercises, and I still did really well.

And the youngish, teenish girl at physical therapy beside me saw me on the balance machine and asked, “when do I get to do the fun stuff?”

To which her therapist replied, “Once you have the strength.”

My physical therapist let me go without the last new exercise he was concocting because I looked tired. Tired, I thought, tired??? I was beat. Exhausted. Hurting.

Steak Tacos

I’m not a big meat eater. And I was so completely wiped I was really tempted to have a bowl of raisin bran for dinner and call it a day. But I forced myself to stagger into the kitchen and slowly, but surely, brown and season some blackened sirloin and roast some cherry tomatoes for tacos. I sliced some jalapeno cheddar. Heated the corn tortillas by covering the meat with them. And then I stuffed the tomatoes, cheese and meat into the tortilla and put it all in the air fryer, hoping to make the tortillas crispy and the cheese melty.

(Author’s note, again: Speaking of cheese, The Teenager is driving to the Humane Society of Harrisburg tomorrow to meet a bonded pair of rats she has been approved to adopt. They are named Cheetos and Tostito– I suggested keeping the names and referring to Tostito as Toast, to which The Teen replied, “and Cheetos could be cheese!”)

When I took the tacos out of the air fryer, I arranged them nicely on a plate, arranged some potatoes beside them. I topped them with lettuce, herb cream cheese (we didn’t have sour cream) and my favorite fresh salsa. I went to carry them to the table and I tilted the plate and the tacos slid off.

To the floor.

Our very dirty kitchen floor.

I collapsed beside the pieces of my tacos. Then, I moved aside and told the dog to go ahead.

I wanted to cry. I reassembled a couple more tacos, but no air fryer, no herb cream cheese, and everything was cold.

Tonight’s Workout

Andrew at Apex Training worked me hard tonight. We did upper body strength, some cardio and some balance and stability. He even mentioned he order new tiny balance trainer/balls for individual feet because “we might need them.” I love Andrew’s honest desire not only to keep me working out– which is really what I hired a trainer for, to make sure someone made me workout and monitored my form so that I did not hurt myself– but he also works to help me improve my health in addition to my fitness.

All of the guys at Apex Training have been so good to me, and they have been instrumental in keeping me motivated, sane, and committed to overcoming all this crap that keeps coming my way. I don’t bounce back quite like I did when I was younger, and I am so grateful to have these gentlemen on my team. I might not be as athletic as I really would love to be, but Andrew has helped me become the best version of myself I can be.

The Evening and The Almost Fall

The Teenager made “radiator pasta” — radiatori — and mixed in some black olives, some sausage, some mozzarella, and some marinated roasted peppers. I ate too much, but damn did it taste good. We ate about 7 p.m. I took my medicine at 6:20 p.m.-ish. About 7:30 p.m., we went upstairs. I had my hands full and I felt myself sway. But I did not fall. Went about my business, but did check my blood pressure. It was dropping. I hung out with The Teenager and my cat Fog in her bedroom, and while I was walking around her room, I started swaying more insistently. I took my blood pressure again. It had dropped even more.

I showered. Another drop.

I drank my electrolyte drink. My blood pressure raised by five points, top and bottom, but an hour later, by the time I wrote this, it dropped again.

And my pinky has been tingling like crazy.

Walking into a birthday party

I returned to work today, after a month and two days away from the Stitch Fix Bizzy Hizzy.

My blood pressure started normal– which has been unusual– so I almost didn’t have my morning coffee. But it wasn’t quite 5 a.m. and I thought that I should find out how much caffeine does impact my blood pressure.

I went for my blood test, and my phlebotomist asked questions about working for Stitch Fix, and when I answered them, she initiated a conversation about how striving for a career isn’t as beneficial as we all once believed. She pointed to the medical industry. “It’s not easy. Everyone’s burnt out.”

I’ve said for years that I’m tired of the stress and I’m tired of an employer benefiting from my creative energy. I told her about my little side business and she nodded knowingly.

When I arrived at work, I found my name on the morning head count and went to find my table. My usual table. My boss stopped me and said he thought they changed my table, which another supervisor confirmed, but then someone was at the new table, so I was sent to my regular table.

“Welcome back,” she said. “Some things never change.”

“Well,” I replied, “they did paint the bathroom.”

Much to my surprise, they raised my table to the height I requested so that was amazing. And Southern Candy was across the aisle from me!

My entire day was delightful. It turned out the Bizzy was celebrating its 7th anniversary with a birthday party, pizza and cupcakes. The team got new, vibrant tie-dyed t-shirts and wore them for photographs. A lead brought one to me and I put it on over my existing t-shirt to join the crew.

I made more than 100% on my numbers, which no one expected me to do, and I was pretty proud of that until one little five minute interaction with someone who was “dealing with the rejects.” Now, I’ve had interactions with this person before and it’s the one person in the whole warehouse who lacks diplomacy in her people skills.

And the funny part of what I’m about to type is that in my previous interaction with her, about six months ago, her complaints about my work were quite similar.

She tossed the box on my table. She might have dropped it, but it seemed like she was throwing it with emphasis.

“I’ve had to deal with six of your rejects today,” she said.

I was embarrassed, and running through everything I might have done six times. I’d completed 100 boxes at this point.

“I’m sorry,” I said. “Let me see.”

She moves aside and points dramatically at the fix. “Your sticker is off center.”

“I can redo it,” I said and reached for the package.

“I’ll rewrap it,” she snapped at me.

“I’ll be more careful,” I said. “But it’s my first day back today, so I must have turned it and not noticed that it was off center.”

“Well, you have to go slower.”

“If you see anything else I need to be aware of, please let me know,” I said.

And she left.

I don’t like the way she handled the interaction. As a figure in a position of authority, she did not have to wait until six of my boxes had such a rookie mistake to mention it to me. Maybe, if she’d mentioned it at box three, she wouldn’t have been so annoyed with me. I know why it happened– and why I didn’t notice– and I spent the rest of my day being ornery about my sticker placement.

I don’t mind feedback. I love being told how I’m doing. Here’s another way she could have approached it: “Hey, Angel, I’ve been fixing rejects today and several of yours have had off center stickers. Can you address that?”

Words matter.

The heart all-clear, but what about the orthostatic hypotension?

I am so sick of medical-related posts. I want to get back to the silliness I enjoy everyday, and straighten out the mess my finances are in, and get back to work before the mortgage is due. But there’s so many questions I have– and have to admit– that idea of taking another fall like my last one is terrifying.

My normal, stumble-over-my-own-feet kind of falls are scary enough. But these… the sensation of suddenly being in the air with no tactile connection to the mechanics of the fall… are different.

The brain fog is still heavy, and I think most of what I am struggling with now are side effects from the beta blocker, or potentially hormonal, and I thought I had a TSH check today at my local quest. It was part of why I didn’t go back to work today, I wanted to discuss the heart monitor, my TSH levels and my orthostatic hypotension with my doctor. (Orthostatic hypotension means blood pressure that drops too low when you recline or lie down.)

I’m going to tell the story a little backwards…

Tuesday Morning

I originally set my alarm for 4:45 a.m. I planned for today to be a practice wake-up day for work tomorrow and I have a 6:40 a.m. appointment for a TSH blood draw at Quest. Then, I would hopefully discuss with my doctor today the state of my orthostatic hypotension (confirming that it is orthostatic hypotension and that I am not at an increased risk of falling since my work involves standing all day), the results of the Zio heart monitor and my TSH levels.

The cardiologist sent his report last night — the Zio patch heart monitor did not detect any afib, and he would like to keep me on the beta blocker as long as I tolerate it.

And again, if I’m honest, I think the beta blocker is causing the orthostatic hypotension, but in general, I think it has helped calm my system down a lot.

I woke at 2 a.m. I’ve been drinking electrolyte water in the evening and in the morning as suggested by my doctor, which meant it was 2 a.m. and I really had to use the bathroom. But, being the neurotic little patient I am, I had to take my blood pressure to see what happened when I moved around in the middle of the night.

When I woke up, my blood pressure was 96/56, when I arrived in the bathroom it was 113/80, after I relieved myself it was 118/74, and when I woke up at 5:45 a.m., it was 100/56. I had changed my alarm in the middle of the night, forgetting I wanted to take a shower and do stuff. When I realized in the Quest parking lot that my appointment was for tomorrow and not today, my blood pressure was 111/73. So I came home, made coffee, had breakfast (see the brioche bagel at the end of this post) and my blood pressure dropped to 103/64 by 7:30 a.m.

I am trying to incorporate more of my stretches into my daily activities, especially when transitioning from standing to sitting and vice versa. My physical therapy is going very well, but I feel bad that I don’t keep up with it nearly enough at home, but I have so much on my mind with my hand, lingering bruising from the fall which I can’t believe it’s been a month, my blood pressure, and lightheadedness.

Luckily, I try to get to the gym between physical therapy appointments and I try to do balance exercises and finger stretches as part of my day-to-day.

Some random fun food stuff

Yesterday, the Teenager gave me $100 and asked if I could do her grocery shopping for her. Because it’s Easter week, a lot of her pet sitting clients need her. She has almost 20 visits a day most days. I went to Grocery Outlet and bought things I knew she would eat and from her list. For breakfast: muffins, Morningstar breakfast patties, Danish banana pancake balls (which are so good), brioche bagels, orange-pineapple juice, Cookie Crisp, milk. For lunch: salami rounds from Hillshire, snack packs of cheese and meat, precooked bacon, pepperoni sticks. For snacks: salad fixings, bananas, clementines, baby carrots, hummus, diet sodas, Dr. Pepper, and sweet tea. For quick dinners: ramen broth, spaghetti, pasta, red sauce, sliced black olives. My total came to $84. Teenager said she might send me grocery shopping all the time.

The banana pancakes are very good in the air fryer.

I had one of the brioche bagels. They are fiendishly soft and freakishly just a brioche with a hole in the middle.

The Return-to-Work Dilemma

I’ll try to keep this brief, as it is late, and I don’t want to disrupt my sleep schedule. Okay, so it’s 9:30 p.m., but I do plan on returning to work this week so I can’t be partying like a hooligan. I was supposed to return-to-work tomorrow, but I have been having issues this weekend, similar to the issues I had on Wednesday.

I woke up lightheaded– and it took me more than TWO HOURS to drag my body out of bed. I also took my blood pressure when changing positions since the doctor wondered if I might be experiencing postural hypertension. I reviewed my doctor’s notes from Wednesday’s visit, and he said to contact him if my systolic blood pressure fell below 110. It’s been below 110 most of the weekend.

the cake is a bunny

I felt almost drunk. That’s the only way I can describe it.

So I said “F**k it,” and made coffee and had cake for breakfast, thinking maybe I didn’t eat enough with my 6 a.m. meds.

My blood pressure went lower.

I called out sick for tomorrow and maybe Tuesday. I want to talk to my doctor about these numbers first. And I have a blood test Tuesday that I also might want to know the result of before we end this leave.

The Teenager channeled the 90s in her attire today: Vans, fishnets, distressed denim shorts, a crop top and a flannel. I wondered if she should have been part of my college friend group instead of my offspring.

So I did a lot of computer work– which went slowly because my brain fog was so thick when I paused to make toast and eggs (to balance out the cake), I started doing dishes, forgot to turn on the water, struggled with how to make the hot water work, and then almost forgot the toast in the Cuisinart air fryer/toaster oven.

Luckily my cleaned, rearranged bedroom is cozy. So I spent quite a bit of time up there– until the dog spooked the cats and trampled poor old Opie. Louise meanwhile protected him. And apparently, she thinks the air purifier is for her benefit.

I just had to hop on and point out that not knowing what is going on doesn’t bother me, going for random tests doesn’t bother me, but not knowing when my symptoms are dangerous is terrifying. Because these falls seem like they should be easy to prevent. Instead my own body wants to catapult me to the floor.

I feel silly calling out of work. I worry, as anyone does, about money. I don’t want to be “the boy who cried ‘wolf,'” but I don’t want to get hurt worse next time. Because these are getting more dramatic.

Meanwhile, another item my doctor suggested was drinking electrolyte beverages throughout the night. I have some packets of Propel, which I might move to my purse for travel or work. I also bought PowerVitamin Electrolyte Power Plus supplement. I got raspberry, but now I really want lemonade and watermelon. I have been so hydrated even after taking a multi or overnight my urine doesn’t turn dark.

I keep the powder in my bedroom and mix it in the evening into my Sigg metal water bottle with the metal screw on top (from my bicycle). Minimizes threat of spills.

And speaking of my room (for the third time), we removed my old rug (I’m going to need a new one or to refinish my hardwood floors. The teen cut it into strips and placed them in the trash. They look very cool.