Rebecca VanDeMark's Blog, page 261
May 10, 2016
HYATT PLACE: PHOENIX- NORTH, ARIZONA

As y'all might remember I often stay at the Hyatt House at Belmont/Redwood Shores in California when I go for treatment and I was interested in finding another Hyatt so that I could continue to build up points for my upcoming Port surgery and stay to help save money. Overall I was unfortunately not pleased with my stay at this property.
Hyatt Place Phoenix- North is conveniently located just off of Interstate 17. As the conference that I was speaking at was held at Grand Canyon University (exit 203 off of I-17) Hyatt Place Phoenix-North was off of exit 208. Despite heavy traffic I never spent more than 35 minutes traveling between these two places, making this a wonderful option for those attending events at Grand Canyon University. In addition Hyatt Place Phoenix-North is just minutes away from Arizona State West Campus, the MetroCenter Mall, and the outlets of Anthem. It is also 12 miles north of downtown Phoenix and also 12 miles from the Cardinals Football Stadium.

For those who are ill and traveling to the Phoenix area for medical treatment the Hyatt Place Phoenix-North might be an option. All of the Hyatt Hotels are smoke free and this particular hotel has wonderful options for a variety of rooms that will make you feel like you are living in the comfort of your own home. There is free high-speed internet along with a guest laundry facility and there is a complimentary breakfast buffet that offers many wonderful nutritious choices. In addition I found most of the hotel staff to be very pleasant to speak with. Finally, I felt that there was lots of handicap parking for those who are needing this that was close to the entrance of the hotel.
To be fair though and to give a bit of a warning I was extremely disappointed in three aspects of my stay at the Hyatt Place Phoenix-North and have to admit that I am not sure I would stay at this particular hotel again nor could I fully recommend this to others.

Unfortunately I encountered something that I can honestly say that I have never encountered at a Hyatt property which was a very rude response. I tried to explain that I thought something might be wrong with the air conditioning but before I could even share the background story I was cut off and abruptly told that there was nothing that she could do for me. I tried again to explain and ask if something could be done to which I was told very flippantly, "we are overbooked and there is absolutely nothing I can do". The way that she said this implied that it was my fault that the hotel was overbooked and that I was lucky to receive a room. (For the record I had booked my hotel several months in advance for this trip.) When I tried to "push" this and ask if there was anyone else I could speak with or if there were any suggestions or other Hyatt properties in the area that I may be transferred to she offered to bring up two small fans "when she could". I tried to explain that I have health issues and that heat is a problem for me and she just told me that it was not her problem.
She did come with the two very small fans quickly, but then as she stepped into the room she said "well its not that bad" and then told me it was my fault for not setting the temperature to 50 degrees. Honestly I have never ever heard of setting a temperature thermostat to 50 degrees before and after having been assured by the front desk a couple hours earlier that setting it to 65 was adequate I found this to be very confusing. I have to admit didn't appreciate the whole way that everything was handled. As the time difference is 3 hours behind in Arizona from East Coast time I was literally to exhausted to do anything about this situation that evening. I also have to admit that the situation was not fully resolved as the temperature never went below 75 degrees (despite being set at 50 degrees cool) and each time I spoke with someone different I was told that there was nothing that could be done.
To be honest this was extremely disappointing as I have never encountered this before at a Hyatt property but it would make me hesitant to recommend this property to others and for me to stay there again. I had been assured that the hotel was "very disability friendly and accommodating" and it was extremely disappointing that this situation occurred. To me this was a definitely a disappointment after being told that the hotel was "very disability friendly and accommodating".


Again, I have never had these situations happen at a Hyatt property before and am hoping that these were exceptions and not the routine at this property. Unfortunately being a Hyatt Gold Member did not help in any of these situations and hope that this was not the routine of how things are handled at this property. I hope that y'all have found this review of the Hyatt Place Phoenix-North helpful! Please let me know if you have any questions regarding this hotel! I would be happy to answer them!
Published on May 10, 2016 04:37
May 9, 2016
a quick update after Phoenix, Arizona

I am also looking forward to how this trip has opened up some new speaking engagements and I look forward to sharing that more with y'all in the upcoming weeks. (If you are ever interested in having me speak at an event, bible study, class, etc. you can find out more about what I speak on at my personal website by clicking HERE!)
I am reminded that we are gently and lovingly carried by the Lord and met with grace for each day (Psalm 68:19). As I returned home and am facing these next few weeks of lots of things on my plate (moving out of my grandmother's house to our camp, working on things for the shop, finishing up last minute edits for "When Mercy Beckons", starting a precursor round of drugs before the port, and other things) I am gently reminded that God will continue to meet me each day. So today there is a mixture of hard and good. Tears and rejoicing. Struggling and trusting. And knowing that my pain and discouragement will be preciously and tenderly met by the God of love that bids me to trust Him in new ways.
As I continue to finish up this "precursor round" of treatment before heading out to California, our specific prayer request for the Port placement would be that it would go smoothly and that I would be able to handle the first round of trial drugs with no severe reaction. We might have to try different meds to figure out which is the best and this for me is of great concern and I appreciate your faithful prayers. I also appreciate your continued prayers for all of the financial means to come in for this trip.
Words can't express how grateful I am for all of your kind support and love during this time. I can't wait to share more with you about my Phoenix trip!!
Thank you again for all of your support, love, and prayers. You are a blessing!
Published on May 09, 2016 07:01
May 1, 2016
What is Lyme Disease?

They hesitate... and then the questions start.
"Is that what happens when you get bit by a tick?" they ask. "Yes" I answer. "When did that happen?" they ask. "2007. May 19, 2007 to be exact." I reply. "Not to be rude or anything but you know that you can just go to the doctors and get antibiotics for that." they state. "Yes, I am aware of that." I reply. "Did you get the bulls eye rash? You just need to go get medicine and get better" they state (most of them very kindly, a few a little sarcastically, and one who accused me of "simply making it up to get attention"). "No seriously, if you had the rash you should go get medicine. My ___________(insert some long lost family member's sisters friends cousin's name here) had Lyme and they got better in a few days...maybe a week at most. Why are you waiting?" they state more insistently. I hesitate and then with a quiet sigh my reply comes.
"I was bit by a tick on May 19th, 2007 hiking in Great Falls, Virginia. I remember the date exactly because my ex-finance and I talked about marriage that day. The next day as I was training for a 1/2 marathon I noticed the bulls eye rash on my upper right arm. I received medication (yes, I finished the full dosage) and was seen at John Hopkins University Hospital Lyme Center. After completing the medication I was declared "Lyme free". Except I wasn't..." I calmly reply.
Absolutely silent they look at me. And some say what I am sure everyone is thinking... "So what the heck is Lyme Disease and how in the world is this making you so ill?"
To be frank it is a question that I have asked myself thousands of times as I approach the 9 year anniversary of contracting Lyme. At a recent Lyme Disease conference it was stated that "Lyme Disease is the growing epidemic and health crisis of the 21st century" and that "in the fullness of time the mainstream handling of Chronic Lyme Disease will be viewed as one of the most shameful episodes in the history of medicine."
Lyme Disease is contracted by a tick bite that has been infected and then infects the person that it has bitten. While a bulls eye rash is common in most cases, in recent years there are more and more cases that occur with the person never seeing a bulls eye rash. In addition to this in recent years studies have shown that in addition to a tick transferring Lyme you can also contract Lyme through being bit by a mosquito, flies, or fleas.


Lyme is considered the "Great Imitator" and is known to imitate over four hundred different diseases including CFS/ME (Chronic Fatigue Syndrome), Fibromyalgia, IBS, Lupus, MS, Autoimmune Disorders, Alzheimer's, ALS, Migraines, Depression, Meningitis, Lou Gehrig's Disease, and hundreds of others.
Patients in "late stage or chronic stage" Lyme Disease are fighting a complicated and complex battle as many (including myself) are fighting not just the Lyme but co-infections, additional diagnosis', and issues that have occurred due to the fact that Lyme has waged war on their bodies. Due to the fact that the bacteria from Lyme Disease can not only travel but multiply patients are dealing with multiple issues and symptoms. The bacteria with Lyme Disease does not like the fight and will literally "fight back" which causes a "herxheimer reaction" that can be worse than the disease itself. Due to this the "horror stories" (as the news has sometimes labeled it) are true, as some patients have died and many patients end up in the hospital and are fighting for their lives.
The symptoms of Lyme Disease vary but most people struggle from many of the following symptoms: debilitating fatigue, heart issues, heart palpitations, arthritis, facial numbness, blood pressure problems, extreme pain, autoimmune disorders, malnutrition, hair loss, vision problems, skin issues, rashes, panic attacks, adrenal failure (or fatigue), memory issues, food allergies, unexplained allergic reactions, insomnia, inability to absorb vitamins and nutrition, hormonal issues, circulation issues, dizziness, seizures, body numbness, blindness, migraines, paralysis in extremities, heart attacks, inability to handle temperature change, lung function, shortness of breath, menstrual issues, and the list goes on and on and on. I have just listed a few but here are hundreds more.

In addition to the physical aspects of fighting Lyme Disease patients are in for the FIGHT of their life not only physically but mentally, financially, and emotionally too. Most Lyme Disease patients have seen dozens of doctors (I personally saw 273-including some of the top hospitals throughout the US-before I was correctly diagnosed) and after the diagnosis can introduce the most difficult battle that is never expected.
Lyme Disease patients are warriors as they have had to push through hundreds of "all knowledgeable doctors" stating that it is "in their heads" or "they just need some meds". (I had a specialist in 2013 -after we had spent 4 hours in traffic to get to his office-tell my mother (in front of me) that she was "enabling" me to continue to set a "destructive pattern" of desiring attention and that "absolutely" nothing was wrong with me. Within two months of seeing this doctor I not only had been correctly diagnosed with Lyme Disease, but aggressive skin cancer, and Sojourn's Disease.)
Finding a doctor who is willing to treat a Lyme Disease patient long term is also another battle. Due to arguments with insurance companies, Congress, and medical limitations it is extremely difficult to find a qualified and competent doctor. This takes hours and hours and hours of research and it still doesn't guarantee you an appointment. Mentally this is absolutely exhausting for patients. And after the appointment that you have hopefully gotten there is still the treatment to fight through.
And both of these things cost an extreme amount of money.
Money that most patients (like myself) did "OK" with for the first five or six years of wandering the long trail of finding correct answers. But after that time period (and for some it is a much shorter time frame) money is not something that just continues to "come in". It has been spent (wisely, I would like to clarify) on finding answers, traveling to doctors across the country, treating one or two mis-diagnosis', and on numerous treatments (most alternative so insurance does not cover it). ALL of these things add up to thousands and thousands of dollars.
Like myself, most Lyme Disease patients are not able to work full time and those that have to struggle to survive day to day. Without a set source of income bank accounts, savings accounts, retirement funds, etc. are quickly depleted. I have been asked by hundreds of people- "didn't you save for a rainy day"? Or... "What about your savings account?". I am going to be incredibly honest here and share something very personal. I had a wonderful savings account (I was a Dave Ramsey's graduate *smiles*) that by year three of this "adventure" was being drained and then at years five and six was completely depleted. (Just to give you a slice of a picture I have spent in the last eight years approximately $75,000 on medical issues, supplies, supplements, travel to doctors, etc. desperately trying to get well!!) I, like most other Lyme Disease patients, have lost any "saved money", savings accounts, retirement accounts, etc in the desperate fight to get better. Many patients like myself have limited funds and to answer the questions that I am sometimes asked- no I do not know where the resources that I am going to need for today and the rest of this week let alone the months and years ahead (until I am able to work full time again) will come from. I am a christian who is madly in love with her savior and have learned to trust that He will always provide for me - each step of this journey.
Lyme Disease patients worry about things that most people don't think about. I will debate for hours and hours each week on which supplement or antibiotic I should do "without" due to money. We have concerns and stresses that are impossible to explain. We have sold everything we can think of, have had to humble ourselves to ask for money and are embarrassed to admit we have done so, and have asked every family member, friend, and stranger for help. In the process most of our relatives and friends have depleted their savings accounts and bank accounts to help us. Let me say what most Lyme Disease patients are thinking about all of the time but are ashamed to admit:
We don't care about the battles of politics and insurance. We don't care about "which treatment" is supposedly the best. We don't care about "this or that". What we do care about is fighting for our lives and our health and most of us are so scared that we can never get better because we do not have financial ability to do so.
And I think it takes absolutely no explanation about why Lyme Disease patients also struggle emotionally. The rigor of this fight takes a courage that I never knew before. It takes bravery to face what is realistically going on in your body and the courage to fight for hope despite the odds. It takes courage to look around and realize that your life has been crushed, accept the loneliness of "friends" walking away, and to come to terms with giving up a job that you loved and to recognize that you might never be able to return to it, to find joy despite the pain, to hold on to Hope when it seems so dark, and to believe (against what you have been told) that you can fight this silent and vicious killer. While there are days of tears and darkness Lyme Disease can not silence love and that is what each and every person fighting Lyme is holding onto.
May is Lyme Disease Awareness Month. Will you please spread the word about this disease and give a BIG hug to those you know who are fighting it? Your kindness in recognizing and spreading the word will touch the hearts of ALL who fight each day. If you would like to spread the word please feel free to use either of these two pictures and link to this post on social media!
I, like every "lymie" I know, longs to see a world where "Lyme Disease" are words that are understood by the medical community along with friends and family understanding it. We long to see knowledge that is spread so that someday we will have a cure so that no one else has to live this fight. Thank you so much for spreading the word.


Published on May 01, 2016 03:34
April 29, 2016
Path of Hope Press Release
FOR IMMEDIATE RELEASEDate:April 27, 2016Contact: Rebecca VanDeMark rebeccavandemark@gmail.com
First Spiritual Book on Hope for Lyme Patients Released
Path of Hope, by: Rebecca VanDeMark
At a recent Lyme Disease conference it was stated that “Lyme Disease is the growing epidemic and health crisis of the 21stcentury”. While not well known and maybe not well handled there are hundreds of thousands of Lyme Warriors that struggle each day just to live. Many of them cannot get out of bed due to extreme and debilitating fatigue and pain. Many are lying in hospital beds with doctors who don’t know what to do. Many others are struggling emotionally under the weight of loss. Many others feel completely isolated and forsaken. In the midst of all of this there is a voice and a helper that calls through the dark night and says that He will never abandon or forsaken us. But in the midst of sickness and pain it is hard to sometimes know how to celebrate the holiday season.
“Path of Hope”, written by Rebecca VanDeMark, is a thirty-one topic prayer and reflection devotional for those fighting Lyme Disease and their loved ones specifically addressing the topic of hope. Spoken from a heart of compassion and understanding, Rebecca understands the Lyme Disease journey well as she saw over 273 medical practitioners before being correctly diagnosed with Advanced Late Stage Lyme Disease.
Rebecca states in her introduction, “The book that you hold in your hand has been written from my heart. I found out I had Advanced Late Stage Lyme Disease the day after my 33rd birthday. For the previous six years prior to that day I had experienced a myriad of intricate and confusing health symptoms that never made sense to any doctor. I had spent hundreds of hours traveling across the United States talking and consulting with some of the best in the country. No answers came and I was eventually told that either (a) this was “in my head”, (b) I had a very “complex case” of Chronic Fatigue Syndrome (for which I had been diagnosed for) or (c) “stress was contributing to these issues”. Finally, after seeing 273 doctors in one year, seven years of searching, hundreds of invasive and painful tests, and thousands of prayers, I was correctly and accurately diagnosed with Advanced Late Stage Lyme Disease.On this journey with our disease we may experience feeling hopeless about the present and the future, but our God of hope quietly and tenderly reminds us to hope even when everything feels hopeless. I have always found great comfort in the Psalms, but none so much as since this journey began. As I approach another anniversary of when this season began and everything was shattered, I look back on the now tattered pages of the book of Psalms in my Bible with a smile. These 150 chapters have provided much comfort and hope, especially on days where I felt I could do nothing but cry.”
"Path of Hope: Daily Reflections on Hope from the Psalms for the Lyme Disease Journey " (ISBN: 0-9975361-9-5) is an 92 page devotional. “Path of Hope: Daily Reflections on Hope from the Psalms for the Lyme Disease Journey” can be purchased where books are sold, including Amazon. Rebecca VanDeMark is an author of three previous books, Praying through Lyme Disease, When Light Dawns, and Prayers for the Single Journey. She is also a blogger, and speaker and can be found at her website: www.rebeccavandemark.com and her blog: www.caravansonnet.com.
- rebeccavandemark@gmail.com-
First Spiritual Book on Hope for Lyme Patients Released
Path of Hope, by: Rebecca VanDeMark
At a recent Lyme Disease conference it was stated that “Lyme Disease is the growing epidemic and health crisis of the 21stcentury”. While not well known and maybe not well handled there are hundreds of thousands of Lyme Warriors that struggle each day just to live. Many of them cannot get out of bed due to extreme and debilitating fatigue and pain. Many are lying in hospital beds with doctors who don’t know what to do. Many others are struggling emotionally under the weight of loss. Many others feel completely isolated and forsaken. In the midst of all of this there is a voice and a helper that calls through the dark night and says that He will never abandon or forsaken us. But in the midst of sickness and pain it is hard to sometimes know how to celebrate the holiday season.
“Path of Hope”, written by Rebecca VanDeMark, is a thirty-one topic prayer and reflection devotional for those fighting Lyme Disease and their loved ones specifically addressing the topic of hope. Spoken from a heart of compassion and understanding, Rebecca understands the Lyme Disease journey well as she saw over 273 medical practitioners before being correctly diagnosed with Advanced Late Stage Lyme Disease.
Rebecca states in her introduction, “The book that you hold in your hand has been written from my heart. I found out I had Advanced Late Stage Lyme Disease the day after my 33rd birthday. For the previous six years prior to that day I had experienced a myriad of intricate and confusing health symptoms that never made sense to any doctor. I had spent hundreds of hours traveling across the United States talking and consulting with some of the best in the country. No answers came and I was eventually told that either (a) this was “in my head”, (b) I had a very “complex case” of Chronic Fatigue Syndrome (for which I had been diagnosed for) or (c) “stress was contributing to these issues”. Finally, after seeing 273 doctors in one year, seven years of searching, hundreds of invasive and painful tests, and thousands of prayers, I was correctly and accurately diagnosed with Advanced Late Stage Lyme Disease.On this journey with our disease we may experience feeling hopeless about the present and the future, but our God of hope quietly and tenderly reminds us to hope even when everything feels hopeless. I have always found great comfort in the Psalms, but none so much as since this journey began. As I approach another anniversary of when this season began and everything was shattered, I look back on the now tattered pages of the book of Psalms in my Bible with a smile. These 150 chapters have provided much comfort and hope, especially on days where I felt I could do nothing but cry.”
"Path of Hope: Daily Reflections on Hope from the Psalms for the Lyme Disease Journey " (ISBN: 0-9975361-9-5) is an 92 page devotional. “Path of Hope: Daily Reflections on Hope from the Psalms for the Lyme Disease Journey” can be purchased where books are sold, including Amazon. Rebecca VanDeMark is an author of three previous books, Praying through Lyme Disease, When Light Dawns, and Prayers for the Single Journey. She is also a blogger, and speaker and can be found at her website: www.rebeccavandemark.com and her blog: www.caravansonnet.com.
- rebeccavandemark@gmail.com-
Published on April 29, 2016 03:00
April 27, 2016
Path of Hope... the book... RELEASE!

These past three years have been beyond difficult and many times I needed the gentle reminder that there was hope despite feeling incredibly hopeless. I turned over and over and over again to the book of Psalms, and continue to find incredible strength and hope from those 150 chapters.
The timing of finalizing things with this book release and finishing up last minute items with this book has not been lost on me. The journey through this disease has brought a myriad of different emotions: excitement at the progress of healing that I am slowly experiencing, joy at finding a wonderful and experienced medical team to help me, anger over the lack of understanding and support in the political arena of Lyme, discouragement at the extreme lack of energy I have and the way that fighting Lyme Disease prohibits me from living life fully the way that I wish I could, and sometimes hopeless at feeling this journey will never end.
These past weeks alone brought some news that was completely unexpected to me and another delay in this long road of healing. My heart was broken and I have cried more tears, found myself discouraged again, and have laid out my broken heart once again to the One who loves me more than life.
But these weeks are also completely reflective of the entire journey. I have found that there are so many emotions and issues that accompany this journey in fighting Lyme Disease, and yet there is incredible hope to be found in the book of Psalms for the different experiences that we face as Lyme Warriors.
Even as I am sitting here writing this I am humbly thanking the Lord for His strength in helping me complete this project. This was a book that resonated deep in my heart and was written out of a love for those struggling with Lyme Disease and this journey of walking this difficult and painful path. I started writing this book over two years ago ... writing on slips of paper, napkins, medication bags, pharmacy bags, magazine pages, etc... and in a variety of different places... in hospitals, doctors offices, the IV therapy sessions, detoxification protocols, hyperbaric oxygen chamber, etc. Finally, these reflections of my heart and precious Bible verses were combined into a book that is a heartbeat and passion of mine throughout this illness... Path of Hope.
This book, "Path of Hope", is the first and only Lyme patient specific book that focuses on finding hope from scripture in the Lyme Disease Journey. There are 31 topics covered in this book to match the days of the months of the year. Each days devotion has a portion of scripture from the book of Psalms, a reflection, a prayer, an inspiring quote, and highlights a specifically chosen song that relates to this reflection. "Path of Hope" can be used as simple encouragement to those who feel hopeless in this journey or as a guided daily devotional. Either way, "Path of Hope" will provide spiritual encouragement and offer hope to those who feel hopeless in this journey.
On this journey with Lyme Disease patients may experience all of the emotions I listed and more, including feeling hopeless about the present and the future, but our God of Hope quietly and tenderly reminds us to hope even when everything feels hopeless. Our greatest hope lies in the fact that death is not the ultimate answer and that we have a full and perfect life, with no pain, no brokenness, and no Lyme Disease in Heaven. This hope- this beautiful and living hope (I Peter 1:3-4) is for the future but gives us hope for our present. I have always found great comfort in the Psalms, but none so much as since this journey began. As I approach another anniversary of when this season began and everything was shattered, I look back on the now tattered pages of the book of Psalms in my Bible with a smile. These 150 chapters have provided much comfort and hope, especially on days where I felt I could do nothing but cry.
I am SO excited to announce that it is OFFICIALLY released as of yesterday!! You can purchase it where books are sold or on Amazon (also available in Kindle form) and you can click HERE to purchase it!
Thank you to each of you that have already purchased it!! Thank you so much to ALL of you that have been walking this journey with me in prayer! TRULY you are a blessing!!
With Love,
Published on April 27, 2016 04:50
What's Up Wednesday (April Edition)

What We're Eating this Week...

What I'm Reminiscing About...

What I'm Loving...

What I've Been Up To...

What I'm Dreading... Let's be honest... getting a port in June. I would welcome any encouragement that anyone has heard or experienced? Thanks friends! I appreciate your prayers for all of this!
What I'm Working on...

What I'm Excited About...

What I'm Watching/Reading...

What I'm Listening to... I shared this several months ago but if you haven't had the chance to listen to this beautiful song, "Jesus I am resting" yet, take the three minutes and do it right now. I promise you will be incredibly blessed! (Want to find out more about the Wissmann Family and check out more of their music? You can find their website HERE!)
What I'm Wearing... Let's be real... I have been in comfy comfy clothes most of the last few weeks as I haven't felt that great but I am definitely dreaming of spring clothes!
What I'm looking Forward to Next Month... I am looking forward to heading to Phoenix to speak. It is going to be a leap of faith for me, going alone, having the energy for the whole trip, but I am confident that the Lord will provide. I can't wait to see all that He does next week!
I would love to know your answers to these questions friends! Share your thoughts below in the comments!! *smiles* Happy Wednesday!
Published on April 27, 2016 03:00
April 26, 2016
Mother Cabrini Shrine, Peru, New York













Published on April 26, 2016 05:25