Dementia Reimagined Quotes

“How was he to know how we saw her, as someone who enjoyed her life, walked miles a week, had no particular physical ailments, and was a force of nature?”
― Tia Powell, Dementia Reimagined: Building a Life of Joy and Dignity from Beginning to End

“A doctor might say, “There’s a chance your mother could recover from her pneumonia if we put her on the breathing tube and send her to the ICU.” A chance? That sounds great! A more accurate statement might be something like this: “We could put your mother in the ICU on a breathing tube. I don’t recommend that, because she will suffer, without likely benefit. The tube is so uncomfortable she will have to be sedated, so she can’t communicate with you. She may get restrained so she doesn’t pull out the tube. If she gets through this pneumonia, she will be weaker than before, and more likely to get sick again. This pneumonia signals she is in the final phase of dementia. I recommend that you consider hospice care and a do-not-hospitalize order, focusing on comfort care without the pain and trauma of repeated transfers as she grows weaker.” A family member will have a clearer picture of how this treatment fits into the larger scenario of old age, dementia, and frailty.”
― Tia Powell, Dementia Reimagined: Building a Life of Joy and Dignity from Beginning to End