Our Shared Shelf discussion
Jan—My Life on the Road (2016)
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"Always ask the turtle."
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These are little things. I am fortunate enough to have a great support system. But being seen as "vulnerable," that people have to tiptoe around me? That's the worst.

Since I hope to become an activist too, I think that asking the turtle is one of the most important pieces of wisdom anyone can get. Especially because I think we have all been the turtle at least once, but we keep forgetting to ask others. An example of my life?
I'm Mexican, which means my darker skin gives me away whenever I go on vacations to the US, and something that gets to me every time is the condescending looks people give me. People constantly talk to me slowly, as if I was stupid, when they don't know that I've studied English ever since I was two years old. And when I reply with good English they look surprised, it's insulting. As Latins we are constantly misrepresented as illiterate, lazy or even stupid. And even when I know I am privileged, it bothers me that people think they can put an entire nation down just because of the stereotypes they are bombarded with.





I have chronic obsessive-compulsive disorder, and I can relate to your frustrations with the way people assume that I am unable to function, or else the way they assume that I should be able to things the same way others can. There are times I want help, and there are times I just want people to understand my experience without trying to fix it for me.



Sorry! Verbocityitus. ;)
People in my life, tend to assume that whatever ails me, can be done away with by merely: 1. taking a pill (food alleriges) 2. getting therapy for Munchausen (something I do NOT have) 3. Setting lower expectation in men - aka allow them to eat whatever they want with no regard to my allergies, and further, my interests do not belong in the relationship. "After all, opposites attract". Seriously? Just because they married the first person who asked out of abandonment issues.
What do we really need? Will smiling at everything as if we are a vegetable with Alzheimer's who only knows how to smile cure everything? No. Smiling will not pay the bills, will not get true, unconditional love, and will never meet the needs of women everywhere. Women did not win the rights to vote by merely smiling at sexist men who denied us that right to vote so long ago.
Misrepresentation: Society tends to assume that 100% of all people with Developmental Delay Disorder or Fetal Alcohol Syndrome are either
1. lying about their condition Or
2. Is incapable of any work whatsoever (including finding pictures that violate the TOS for decency, Janitorial work, and so on.
3. Would be a detriment to the business if hired for any job whatsoever.
4. Deserve to have less than living wage wages that do not even cover rent, let alone decent healthy food - especially the overpriced foods needed by those with the wrong food allergies, and that their training wage that is often less then $3 per hour (See news story on this subject if its still online, but it used to be less than $3 for certain participants in a specific program I can not name due to Tort Laws).
5. Believing that ONLY those who have a BS or BA degree or better, deserve a living wage. I have a BS and couldn't get a living wage job withOUT someone helping me with my writing of my books. Yes, I am THAT disabled. I have the Fetal Alcohol Syndrome, except in my case, I have random recall. This is why I am still on Dissedability. I tend to ramble, and recall half of a good thought and substitute "crap" for the 2nd half - aural communication. In writing, I catch the crap, and then don't post for a few days until my brain functions again - even on my area of Savantness, which is Sociology, Social Science - especially along the lines of discrimination and inequality. (Why I am only sporadically here.)
Questions I wish they would ask me:
1. What are your needs? I need to be loved like everyone else. I need My interests to actually be Allowed in the relationship. And yes, lastly, I need to be allowed to make a living wage In England such that I can get off of Disability and ditch USA. My interest tend to line up with British sports.
People take for granted that I can eat at 100% of all restaurants out there. I can't. They take for granted that I can do whatever I put my mind too. I can't. They take for granted that they can call up "friend" and do whatever they want. My friends are low mobility, in wheelchairs. Camping is problematic. Cycling is out of the question. Golfing is out. They take their significant others for granted too. I don't have one. I was banned from that too. They take for granted their parent's love, and that they weren't abused as infants. Their are exception too all of this of course. J K Rowling is one huge exception. She would understand what I went through I know. But, even she found love. And, has a child. I was banned from that too. My goals have never been reached except for getting a BS through over-achieving. When can I reach MY life goals? When do I count in this world of discrimination and hate? Why am I sentenced to only needing to "smile" and do not need healing of that which makes my life "hell on earth"? (FAS, Food Allergies).
Thanks!


I have a similar story where a neighbor found a turtle wandering the neighborhood and put it in the community pond only to discover after the fact that it was a neighbor's tortoise (tortoises do not swim they sink) that promptly dropped to the bottom of the pond and drowned.
Not only do people assume their intent to be universal they also think they know what's best for others with taking the time to listen or giving others a chance to express themsleves.

I feel like the turtle every time someone gives me unsolicited weightloss advice. And this happens surprisingly often coming from total stranger, friends or family members. Now I just smile and ask them to ponder what it is about my weight that bothers them so much...
But I confess I also felt called on by this quote. I returned my share of turtles to the water and will definately be more attentive in the future. Thanks again Gloria :-)
But I confess I also felt called on by this quote. I returned my share of turtles to the water and will definately be more attentive in the future. Thanks again Gloria :-)

The way I see it you are the turtle. We all are, and we are doing what we must whether we know our purpose or not. Though others may not ask us where we are headed unlke the turtle we have a voice to speak our truth.

I would love to be asked:
Do you conform as a woman?
Because it is so annoying that everyone assumes I conform as a woman just because I look like one.
And I would like people to be more respectful, I hate it when they assume so much. Like: Look until you have children. (Ahm, why does everybody assume that I will have babies.) Or what is normal.
For any who were also struck by this quote: What about you is misrepresented by other people? What are questions you were never asked but wish you had been?