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Compassionate Comments & Hugs > Compassion and Hugs for People with Serious Complaints

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message 51: by Anil (new)

Anil (loykalina) | 303 comments Hugs back to Ljeoma.


message 52: by Kendra (last edited Apr 15, 2013 04:59PM) (new)

Kendra (book_lover_too) | 337 comments JustJen, I hope you feel better soon! During my second pregnancy I had kidney stones that made me feel like I had been kicked in the back. Holy cow, I would seriously rather give birth than have kidney stones, they hurt!

Hugs (but not too tight so I don't hurt you)


message 53: by [deleted user] (new)

BIG MANLY HUG FOR ANIL
Hope you are back in England at College soon.


message 54: by Anil (new)

Anil (loykalina) | 303 comments Bear hugs to Lucas. I hope so, too.


message 55: by Macky (last edited Apr 02, 2013 01:32PM) (new)

Macky (mactut)

You men and your big manly hugs!! This is for you Anil... Sweet and cheesy and about as manly as Rue Paul.. But sometimes we all need a bit of cheese! Lol!


message 56: by Anil (new)

Anil (loykalina) | 303 comments Thanks, Macky. Cheese is nice, but why am I having wrong thoughts?


message 57: by Macky (new)

Macky (mactut)
Puppy pile anyone!


message 58: by Macky (new)

Macky (mactut) Anil wrote: "Thanks, Macky. Cheese is nice, but why am I having wrong thoughts?"

LOL! I'm too innocent to even go there! :)


message 59: by Kendra (new)

Kendra (book_lover_too) | 337 comments Anil wrote: "Thanks, guys. The good thing is that I won't be prohibited to enter UK. I'm with my dad and brothers and have met one of my friends. Also, it is 18 C (64.4 F, I guess) here in Istanbul, which is an..."

Anil!!! Glad to hear from you! Hopefully things are getting decided for school for you and you get back to the UK soon...maybe you can take some warm weather back with you. Or you can come here to the US and bring it with you, please?


message 60: by Anil (new)

Anil (loykalina) | 303 comments Thanks, Kendra. It seems I take bad weather to wherever I go, because it is estimated to rain heavily in Istanbul tomorrow. It was said to have been shining in London today. I don't think you'd like more of bad weather in the States.:-))


message 61: by [deleted user] (new)

Really upsetting that Helle has to go in the hospital.

Helle,

I hope whatever can be done is done and done quickly to ease your pain. Sending you big healing hugs and fondest good wishes!

Lucas


message 62: by [deleted user] (last edited Apr 03, 2013 09:29AM) (new)

Lucas wrote: "Really upsetting that Helle has to go in the hospital.

Helle,

I hope whatever can be done is done and done quickly to ease your pain. Sending you big healing hugs and fondest good wishes!

Lucas"


Thank you Lucas for your sweet and kind words that means a lot me xx <3

Thank you Goesta, Rick and Lucas for your support and kind words that means a lot to me xx <3

Hugs back


message 63: by Kendra (new)

Kendra (book_lover_too) | 337 comments I am sad to see that you are feeling so bad that you have to go to the hospital, Helle. I hope the new medicine helps to ease what pains you and that you get better soon!

Lots of hugs going your way :-)


JustJen "Miss Conduct" (just_jen) Hugs from me as well, Helle. Hate hearing that you are so weak and suffering so. I really hope the new meds are successful.


message 65: by [deleted user] (last edited Apr 03, 2013 09:30AM) (new)

JustJen wrote: "Hugs from me as well, Helle. Hate hearing that you are so weak and suffering so. I really hope the new meds are successful."

Kendra wrote: "I am sad to see that you are feeling so bad that you have to go to the hospital, Helle. I hope the new medicine helps to ease what pains you and that you get better soon!

Lots of hugs going your ..."


Thank you Kendra and Jen for your sweet and kind words that means a lot to me and thank you for your support xx <3 hugs back


message 66: by Macky (new)

Macky (mactut) And from me too Helle. I hate that you have to hurt everyday. Life can be so unfair sweetheart! I hope and prey that the new meds start to at least alleviate some of the pain if not all of it. I'm sending so many hugs hopefully you'll be too wrapped up to feel the pain. Take care my love and know we're all thinking of you! ((((((((((Hugs)))))))))) <3 <3 <3


message 67: by Anil (new)

Anil (loykalina) | 303 comments I am really sorry to hear that you have been suffering from this pain. Hopefully the new medication will get you feel better. *hugs*


message 68: by Macky (new)

Macky (mactut)

For our lovely Helle xoxoxo


message 69: by [deleted user] (new)

Thank you Anil and Macky for your sweet and kind words that means a lot to me. Thank you for your support, hugs back xx <3

Thank you Macky for the lovely picture, love it <3 <3 <3


message 70: by Tj (new)

Tj (bluesmokey) | 632 comments Awww, Helle! I'm so sorry that your pain is getting so bad:( I hope the meds and all get you some relief real soon!


message 71: by Boyd, Hunk of hunky burning passion (new)

Boyd (boydwalker) | 2304 comments Hang in there Helle. We will be thinking of you. Hugs - Boyd


message 72: by Danni (new)

Danni | 248 comments Big smooches Helle. Mwah!


message 73: by [deleted user] (new)

Thank you Tj, Boyd and Danni for your sweet and kind words that means a lot to me, thank you for your support xxx <3 hugs back and smooches


message 74: by Kendra (new)

Kendra (book_lover_too) | 337 comments :( Sad for Helle. That disease sounds extremely painful and am annoyed for you that your doctor is making you feel like an experiment.


message 75: by Macky (new)

Macky (mactut) Kendra wrote: ":( Sad for Helle. That disease sounds extremely painful and am annoyed for you that your doctor is making you feel like an experiment."

I can sympathise to a point with Helle! I also have bouts of pain, not like Helles but I have to go cold turkey because I can't tolerate many chemicals. I hover on the verge of depression all the time now because Anti depressants make me physically ill and most pain killers do the same. So Helle has my deepest sympathies and loads of hugs I have had many terrible doctors visits in the past that have left me in tears with no answers and not a lot of hope. I pray every day for Helle to reach a more comfortable level with her illness, it would be would be wonderful if they find a miracle cure! Chin up sweetheart, one day it will happen. Xoxoxo


message 76: by [deleted user] (new)

Kendra wrote: ":( Sad for Helle. That disease sounds extremely painful and am annoyed for you that your doctor is making you feel like an experiment."

It is because he has never seen a person whose disease had progressed such that he made an experiment with me where I got destroyed my right shoulder and arm, because he wanted to wait medication and two months was my shoulder destroyed, now he will wait four months and what can not be destroyed in this time?!? I can not tolerate common arthritis medication when I got a poisoning of Ipren and then I really need the biological medicine to not ruin the rest of my disability.

I've never trusted my doctor most times he has talked with two tongues and he will need to tell if he's doing an experiment on me, without the patient's consent, this is illegal and he can be punished for this. 

Maybe we need to find another hospital and get the real professional help there?!? I do not want the rest of my life destroyed because he Lie and say different things, he need to tell the true if he do not have the kompetence to make the right choices, he already make a huge mistanke that cost my right shoulder.

We need to talk to his boss about all this, maybe there we can feel us safe?!? We never feel safe where we are in all this time I have gone there.


message 77: by [deleted user] (new)

Thank you Kendra and Macky for your sweet and kind words that means a lot to me, thank you for your support xxx hugs back

I hope you are right Macky, but it's hard when you are with start again like 2 1/2 years ago, same words but no help :-(

A lot of hugs and smooches to you Macky, I know how to feel when you have depression. Have gone through a depression and given Prozac for this once, but I changed personality so I went out of the medication myself without the doctors knowledge, I are constantly on the verge of a new depression and therefore I close my feelings down until I can feel that I'm not breaking down. So my parent know that I am making myself cold and therefore not react crying, but are cold and angry, but not much energy to react others ways.  


message 78: by Macky (new)

Macky (mactut) Oh Helle that sounds horrible. It all sounds very upsetting and to be experimenting with you doesn't sound good all. Perhaps you should speak to the hospital bosses to see if what he's doing is correct. Its very difficult I know, but your health is not something to mess with. I think if you are uncomfortable with this doctors treatment you should seek out a well known professional in the field of medicine pertinent to your illness and get a second opinion, as soon as possible. So sorry you're having such a bad time. <3<3 <3


message 79: by Macky (new)

Macky (mactut) I get the opposite Helle, I cry and sometimes I cry all day because I feel so low, but I sort of feel better for letting the emotion out. Anyway less of my silly probs. You need to get someone who will seriously fight to get you the right treatment . I can only hope that soon you will be treated by a much more caring doctor. Take care sweetie. We all care about you! Xxx


message 80: by [deleted user] (new)

I hate that Helle is in pain still with no new treatment because with the medications available there is no reason for anyone to be in pain day after day.

I'm sorry Helle. Macky is right that you need an advocate to intervene. Is there a process to appeal, get a second opinion or change doctors?

I wish I could offer you more than prayers and hugs but those are what I give to you dear Helle.

Sending warm , caring thoughts —Lucas


message 81: by [deleted user] (new)

Well we think to get a second opinion, with a privat hospital with someone we trust he was the first that warn about Morbus Becterew and say that I should begin with medicin asap, but because someone from OUH scanning say they could not see anything then I got biological medicin to late. The city Vejle have a good reputation and we may need to run the treatment there instead.

My father says he has been in appeal board of the municipality and know what they can and can not, he has found several shortcomings of the doctor I have and says that if we do not get proper answers then their boss get involved and the doctor reprimanded for what he has done for his lie several times and be patient with such a doctor who lie are uncomfortable and scary, because we know many things about my illness that disproves what he has said. 

Thank you Macky for your sweet and kind words that means a lot to me, thank you for your support xxx <3 hugs back and smooches


message 82: by [deleted user] (last edited Apr 04, 2013 09:45AM) (new)

Helle wrote: "Well we think to get a second opinion, with a privat hospital with someone we trust he was the first that warn about Morbus Becterew and say that I should begin with medicin asap, but because someo..."

I see why they don't give you the biologics. According to what I've read the biologics are very expensive—they cost about $1,000 to $3,000 a month. This evil doctor is trying to save money whie you suffer!


message 83: by [deleted user] (new)

Thank you Lucas for your sweet and kind words that means a lot to me, thank you for your support xxx Hugs back

All your advices are we thinking to do and my dad know many things about The health system so he will make sure something will happened and that I will get biological medicin, because I can't live the rest of my life with pain killers and become so disabled that I need in nursing homes and this can this doctor prevent but he talk lies and does not help, I do like to maintain the mobility I still have. 

My dad have work in the health care as a dentist, before his retirement and know many things and rules they have to follow, he have already many things that the doctor have done wrong. The doctor will wish he never have get my dad angry for he will make sure the doctor will pay for what he have done, I am not a experiment that the doctor can do what he want with. Just because he never seen a case like me.....


message 84: by [deleted user] (new)

Lucas wrote: "Helle wrote: "Well we think to get a second opinion, with a privat hospital with someone we trust he was the first that warn about Morbus Becterew and say that I should begin with medicin asap, but..."

Yep that what we also think, he will want to see where I end without biological medicin and what about their oath, to save life and help the people in pain so that they are painless?!? He has no honor and is a snake, because he talk in two tongues.


message 85: by Goesta (new)

Goesta I know I write oodles but in life, words tend to fail. Just want to add my moral support for you, Helle. I gather you're in Denmark, so should be getting excellent medical support. I've been round the block with anti-depressiva/anxiety meds and like you given up for the moment on that. But a physical ailment should be more directly treatable. Keep fighting! Gather all the support you can, family and friends, I know the patient is often not in a position/state to assert their rights. You need someone objective to help you through the practicalities. To be right there with you in the office and ask the difficult questions and demand to get the clear answers. Do it now!

All good wishes, big hugs!

G.


message 86: by [deleted user] (new)

Goesta wrote: "I know I write oodles but in life, words tend to fail. Just want to add my moral support for you, Helle. I gather you're in Denmark, so should be getting excellent medical support. I've been round ..."

Thank you Goesta for your sweet and kind words that means a lot to me, thank you for your support xxx hugs back

My dad have the experience and knowledge to make the right questions and know the whole health system. Therefore he can fight on and know where he should contact if we get lies again. 

We have help from neighbors who support and help us, their daughter is a doctor and knows how to treat patients. So this doctor can not hide anything from us, my medical records, I can also print, and we know someone who knows the codes. 

It's just me that not have the energy to fight, but family and friends fight for me. That doctor should never have the responsibility for patients when he does not have the right skills for this. A least not for me...


message 87: by Rick (new)

Rick | 15796 comments Helle, it can be very difficult to find the right doctor. I have a dear friend who also has some sever, chronic health issues and has had some terrible experiences in finding not only the right treatments, but the right medical professionals to help. It has been very frustrating and I can empathize with what you're going through.
Many hugs for you. Know that you are not alone in this and that you have friends and people all over the world thinking about you and wishing/hoping/praying for you and your health.
I hope you find some relief soon.


message 88: by Rick (new)

Rick | 15796 comments Anil wrote: "Thanks, Kendra. It seems I take bad weather to wherever I go, because it is estimated to rain heavily in Istanbul tomorrow. It was said to have been shining in London today. I don't think you'd lik..."

Anil, the weather is temporary. In Northwest Ohio we always tell each other that if you don't like the weather, just wait five minutes and it will change. As for bigger issues, I hope things work out for you. I know from first hand experience how frustrating universities can be. A year ago I turned in all the requested paperwork and was denied financial aid because I did not turn in all the request paperwork. So I turned it in again. And a third time. Each time the response was I just needed to turn in the request paperwork. It was extremely frustrating and dehumanizing. I felt as if my life had become a Franz Kafka story (I even stopped reading a collection of his stories because it was becoming so surreal). I ended up not being able to take classes for a semester until I was finally able to get things worked out - even though they never actually recognized that I turned the requested paperwork in. Hang in there - while I won't say it will all work out - the situation will eventually change, and I hope it does so in your favor.


message 89: by [deleted user] (new)

Thank you Rick for your sweet and kind words that means a lot to me, thank you for your support xxx hugs back

Sorry to hear that your friend have been through all this, a lot of hugs and smooches

Just found out the last bad news, my doctor have make a false record of my progress with my destroyed shoulder and beginning to biological medicine with enbrel and why we stopped this. Several things which he may be convicted of, so this is the final proof that I am an experiment :-(

So now we need a jurist to help us and have some friends that know what we should do in this case.... It's more difficult that we thought, we have no more patient with that doctor and will talk with his boss asap about it.


message 90: by [deleted user] (new)

Helle wrote: "So now we need a jurist to help us and have some friends that know what we should do in this case.... It's more difficult that we thought, we have no more patient with that doctor and will talk with his boss asap about it."

I think in a way this is good because you are not putting up with him any more and you and your father know what to do. Knowing what to do is progress.


message 91: by Anil (new)

Anil (loykalina) | 303 comments Thanks, Rick. It is really frustrating that they make you wait that long for nothing, and they deny to have received your documents.:-(

Helle, I hope you will sue that excuse of a doctor and his licence will be revoked.

Hugs for both of you.


message 92: by Tj (new)

Tj (bluesmokey) | 632 comments Helle (((hugs))) I've been so fortune with my doctors. When I first thought I might have FM I went right away to find a doctor to make sure and treat me. My primary doctor wasn't happy but it was a good choice. My FM is kept pretty much in check. I feel so bad you have this doctor. It's just not right. Your depression is pretty typical though and I would imagine your circumstances make it almost a fore gone conclusion you would have depression. There are lots of other things you can take for it or other routes to treat it. Your doctor should be more concerned with this since it will up your pain levels and depression medication can help with the pain since they work on the same areas of the brain. I really hope things turn around for you cause that is just awful. More (((hugs))) for you. (the brackets around the word hugs for me mean gentle hugs. I was part of a support group and this is how we represented it.)


message 93: by [deleted user] (new)

Thank you Anil, Lucas and Tj for your sweet and kind words that means a lot to me, thank you for your support xxx hugs back

so sorry to hear that you have lost your mother, you and your brother need to Grief both in your own way. Good to hear that you love your brother and will support him. Grief change sometimes ones personality, this is perhaps the way your brother is going through his grief. both of you must remember that you are allowed to grieve and love can help in healing both of you.

Your brother is only 12 years, but even at that age you understand more than adults think, a lot of conversations and love will help you through this. You need to understand that even if you are the adult and the strong one, you need to talk, grieve, cry and need the support from family and friends.

Hope I have write this right, because I am not trying to offend you.....

A lot of hugs and smooches to you xxx <3


message 94: by Anil (new)

Anil (loykalina) | 303 comments Thank you, Helle. You haven't offended me at all. We all are trying to come into terms with our loss, dad, both of my brothers and I. I am still upset with people who kept telling me that I should not cry for sake of my brothers as I am the oldest one. I don't want my youngest brother to behave like an adult. As long as he has some rules and does what he is expected to do such as getting good grades as much as possible, that is fine, which he does, too. Therefore, I give him his space and he can do what pleases him as long as it doesn't hurt him or others. Thanks for hugs. They mean a lot to me. *hugs back*


message 95: by Macky (new)

Macky (mactut) Anil I can't tell you how much your loss touches me. I think you are a very courageous young man and your little brother is very lucky to have a big brother like you. Its obvious that you, your dad and other brother love him very much and in time, the love you have as a family will help to get you all through your grief. Its extremely early days for you and you must all struggling in your own ways. Crying is natural and one of the best ways to let your emotions out so let the tears flow Anil. Keeping emotions locked up is not good for you at all. My thoughts and prayers are with you and your family. ((((Hugs for you all)))) xoxoxo


message 96: by Goesta (last edited Apr 05, 2013 02:21AM) (new)

Goesta Anil, please accept my hugs as well, added to Macky' pile. My father passed in '10, and mostly I felt numb. I think the first time I managed to grieve a little was very recently, reading Danni's lovely new story. Sharing love is the most precious thing possible in life, and even though you can no longer be with your mother, your grief is your soul's way right now keep sharing your love for her and hers for you all with each other. Don't let anyone tell you otherwise. Your tears are the highest truth we have the privilege as human beings of attaining in life.


message 97: by Danni (new)

Danni | 248 comments Anil, l'm really sorry for your loss. I think Helle and Macky have said it all really. Months is no time at all when it comes to grief.

Hugs for you and your family xxx


message 98: by Anil (new)

Anil (loykalina) | 303 comments Thank you, Macky, Goesta and Danni. *hugs back*


message 99: by [deleted user] (new)

Anil, I was so sad when I read your message:

"It is even hard for me to comprehend and accept my mother's passing away. I still think it is a nightmare, I'll wake up and mom will be here.”

There is nothing I can say that you don't already know and feel so once again I can only send heartfelt warm thoughts and condolences. You are a good guy and I'm glad you have been my Goodreads Friend.


message 100: by Anil (new)

Anil (loykalina) | 303 comments Thank you, Lucas. I'm honoured to hear such great words. Feelings are mutual. I'm happy to have a great guy like you as a GR friend and be a part of this wonderful group.


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