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Compassion and Hugs for People with Serious Complaints
message 51:
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Anil
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Apr 02, 2013 12:57PM

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Hugs (but not too tight so I don't hurt you)
BIG MANLY HUG FOR ANIL
Hope you are back in England at College soon.
Hope you are back in England at College soon.


You men and your big manly hugs!! This is for you Anil... Sweet and cheesy and about as manly as Rue Paul.. But sometimes we all need a bit of cheese! Lol!

LOL! I'm too innocent to even go there! :)

Anil!!! Glad to hear from you! Hopefully things are getting decided for school for you and you get back to the UK soon...maybe you can take some warm weather back with you. Or you can come here to the US and bring it with you, please?

Really upsetting that Helle has to go in the hospital.
Helle,
I hope whatever can be done is done and done quickly to ease your pain. Sending you big healing hugs and fondest good wishes!
Lucas
Helle,
I hope whatever can be done is done and done quickly to ease your pain. Sending you big healing hugs and fondest good wishes!
Lucas
Lucas wrote: "Really upsetting that Helle has to go in the hospital.
Helle,
I hope whatever can be done is done and done quickly to ease your pain. Sending you big healing hugs and fondest good wishes!
Lucas"
Thank you Lucas for your sweet and kind words that means a lot me xx <3
Thank you Goesta, Rick and Lucas for your support and kind words that means a lot to me xx <3
Hugs back
Helle,
I hope whatever can be done is done and done quickly to ease your pain. Sending you big healing hugs and fondest good wishes!
Lucas"
Thank you Lucas for your sweet and kind words that means a lot me xx <3
Thank you Goesta, Rick and Lucas for your support and kind words that means a lot to me xx <3
Hugs back

Lots of hugs going your way :-)

JustJen wrote: "Hugs from me as well, Helle. Hate hearing that you are so weak and suffering so. I really hope the new meds are successful."
Kendra wrote: "I am sad to see that you are feeling so bad that you have to go to the hospital, Helle. I hope the new medicine helps to ease what pains you and that you get better soon!
Lots of hugs going your ..."
Thank you Kendra and Jen for your sweet and kind words that means a lot to me and thank you for your support xx <3 hugs back
Kendra wrote: "I am sad to see that you are feeling so bad that you have to go to the hospital, Helle. I hope the new medicine helps to ease what pains you and that you get better soon!
Lots of hugs going your ..."
Thank you Kendra and Jen for your sweet and kind words that means a lot to me and thank you for your support xx <3 hugs back


Thank you Anil and Macky for your sweet and kind words that means a lot to me. Thank you for your support, hugs back xx <3
Thank you Macky for the lovely picture, love it <3 <3 <3
Thank you Macky for the lovely picture, love it <3 <3 <3

Thank you Tj, Boyd and Danni for your sweet and kind words that means a lot to me, thank you for your support xxx <3 hugs back and smooches


I can sympathise to a point with Helle! I also have bouts of pain, not like Helles but I have to go cold turkey because I can't tolerate many chemicals. I hover on the verge of depression all the time now because Anti depressants make me physically ill and most pain killers do the same. So Helle has my deepest sympathies and loads of hugs I have had many terrible doctors visits in the past that have left me in tears with no answers and not a lot of hope. I pray every day for Helle to reach a more comfortable level with her illness, it would be would be wonderful if they find a miracle cure! Chin up sweetheart, one day it will happen. Xoxoxo
Kendra wrote: ":( Sad for Helle. That disease sounds extremely painful and am annoyed for you that your doctor is making you feel like an experiment."
It is because he has never seen a person whose disease had progressed such that he made an experiment with me where I got destroyed my right shoulder and arm, because he wanted to wait medication and two months was my shoulder destroyed, now he will wait four months and what can not be destroyed in this time?!? I can not tolerate common arthritis medication when I got a poisoning of Ipren and then I really need the biological medicine to not ruin the rest of my disability.
I've never trusted my doctor most times he has talked with two tongues and he will need to tell if he's doing an experiment on me, without the patient's consent, this is illegal and he can be punished for this.
Maybe we need to find another hospital and get the real professional help there?!? I do not want the rest of my life destroyed because he Lie and say different things, he need to tell the true if he do not have the kompetence to make the right choices, he already make a huge mistanke that cost my right shoulder.
We need to talk to his boss about all this, maybe there we can feel us safe?!? We never feel safe where we are in all this time I have gone there.
It is because he has never seen a person whose disease had progressed such that he made an experiment with me where I got destroyed my right shoulder and arm, because he wanted to wait medication and two months was my shoulder destroyed, now he will wait four months and what can not be destroyed in this time?!? I can not tolerate common arthritis medication when I got a poisoning of Ipren and then I really need the biological medicine to not ruin the rest of my disability.
I've never trusted my doctor most times he has talked with two tongues and he will need to tell if he's doing an experiment on me, without the patient's consent, this is illegal and he can be punished for this.
Maybe we need to find another hospital and get the real professional help there?!? I do not want the rest of my life destroyed because he Lie and say different things, he need to tell the true if he do not have the kompetence to make the right choices, he already make a huge mistanke that cost my right shoulder.
We need to talk to his boss about all this, maybe there we can feel us safe?!? We never feel safe where we are in all this time I have gone there.
Thank you Kendra and Macky for your sweet and kind words that means a lot to me, thank you for your support xxx hugs back
I hope you are right Macky, but it's hard when you are with start again like 2 1/2 years ago, same words but no help :-(
A lot of hugs and smooches to you Macky, I know how to feel when you have depression. Have gone through a depression and given Prozac for this once, but I changed personality so I went out of the medication myself without the doctors knowledge, I are constantly on the verge of a new depression and therefore I close my feelings down until I can feel that I'm not breaking down. So my parent know that I am making myself cold and therefore not react crying, but are cold and angry, but not much energy to react others ways.
I hope you are right Macky, but it's hard when you are with start again like 2 1/2 years ago, same words but no help :-(
A lot of hugs and smooches to you Macky, I know how to feel when you have depression. Have gone through a depression and given Prozac for this once, but I changed personality so I went out of the medication myself without the doctors knowledge, I are constantly on the verge of a new depression and therefore I close my feelings down until I can feel that I'm not breaking down. So my parent know that I am making myself cold and therefore not react crying, but are cold and angry, but not much energy to react others ways.


I hate that Helle is in pain still with no new treatment because with the medications available there is no reason for anyone to be in pain day after day.
I'm sorry Helle. Macky is right that you need an advocate to intervene. Is there a process to appeal, get a second opinion or change doctors?
I wish I could offer you more than prayers and hugs but those are what I give to you dear Helle.
Sending warm , caring thoughts —Lucas
I'm sorry Helle. Macky is right that you need an advocate to intervene. Is there a process to appeal, get a second opinion or change doctors?
I wish I could offer you more than prayers and hugs but those are what I give to you dear Helle.
Sending warm , caring thoughts —Lucas
Well we think to get a second opinion, with a privat hospital with someone we trust he was the first that warn about Morbus Becterew and say that I should begin with medicin asap, but because someone from OUH scanning say they could not see anything then I got biological medicin to late. The city Vejle have a good reputation and we may need to run the treatment there instead.
My father says he has been in appeal board of the municipality and know what they can and can not, he has found several shortcomings of the doctor I have and says that if we do not get proper answers then their boss get involved and the doctor reprimanded for what he has done for his lie several times and be patient with such a doctor who lie are uncomfortable and scary, because we know many things about my illness that disproves what he has said.
Thank you Macky for your sweet and kind words that means a lot to me, thank you for your support xxx <3 hugs back and smooches
My father says he has been in appeal board of the municipality and know what they can and can not, he has found several shortcomings of the doctor I have and says that if we do not get proper answers then their boss get involved and the doctor reprimanded for what he has done for his lie several times and be patient with such a doctor who lie are uncomfortable and scary, because we know many things about my illness that disproves what he has said.
Thank you Macky for your sweet and kind words that means a lot to me, thank you for your support xxx <3 hugs back and smooches
Helle wrote: "Well we think to get a second opinion, with a privat hospital with someone we trust he was the first that warn about Morbus Becterew and say that I should begin with medicin asap, but because someo..."
I see why they don't give you the biologics. According to what I've read the biologics are very expensive—they cost about $1,000 to $3,000 a month. This evil doctor is trying to save money whie you suffer!
I see why they don't give you the biologics. According to what I've read the biologics are very expensive—they cost about $1,000 to $3,000 a month. This evil doctor is trying to save money whie you suffer!
Thank you Lucas for your sweet and kind words that means a lot to me, thank you for your support xxx Hugs back
All your advices are we thinking to do and my dad know many things about The health system so he will make sure something will happened and that I will get biological medicin, because I can't live the rest of my life with pain killers and become so disabled that I need in nursing homes and this can this doctor prevent but he talk lies and does not help, I do like to maintain the mobility I still have.
My dad have work in the health care as a dentist, before his retirement and know many things and rules they have to follow, he have already many things that the doctor have done wrong. The doctor will wish he never have get my dad angry for he will make sure the doctor will pay for what he have done, I am not a experiment that the doctor can do what he want with. Just because he never seen a case like me.....
All your advices are we thinking to do and my dad know many things about The health system so he will make sure something will happened and that I will get biological medicin, because I can't live the rest of my life with pain killers and become so disabled that I need in nursing homes and this can this doctor prevent but he talk lies and does not help, I do like to maintain the mobility I still have.
My dad have work in the health care as a dentist, before his retirement and know many things and rules they have to follow, he have already many things that the doctor have done wrong. The doctor will wish he never have get my dad angry for he will make sure the doctor will pay for what he have done, I am not a experiment that the doctor can do what he want with. Just because he never seen a case like me.....
Lucas wrote: "Helle wrote: "Well we think to get a second opinion, with a privat hospital with someone we trust he was the first that warn about Morbus Becterew and say that I should begin with medicin asap, but..."
Yep that what we also think, he will want to see where I end without biological medicin and what about their oath, to save life and help the people in pain so that they are painless?!? He has no honor and is a snake, because he talk in two tongues.
Yep that what we also think, he will want to see where I end without biological medicin and what about their oath, to save life and help the people in pain so that they are painless?!? He has no honor and is a snake, because he talk in two tongues.

All good wishes, big hugs!
G.
Goesta wrote: "I know I write oodles but in life, words tend to fail. Just want to add my moral support for you, Helle. I gather you're in Denmark, so should be getting excellent medical support. I've been round ..."
Thank you Goesta for your sweet and kind words that means a lot to me, thank you for your support xxx hugs back
My dad have the experience and knowledge to make the right questions and know the whole health system. Therefore he can fight on and know where he should contact if we get lies again.
We have help from neighbors who support and help us, their daughter is a doctor and knows how to treat patients. So this doctor can not hide anything from us, my medical records, I can also print, and we know someone who knows the codes.
It's just me that not have the energy to fight, but family and friends fight for me. That doctor should never have the responsibility for patients when he does not have the right skills for this. A least not for me...
Thank you Goesta for your sweet and kind words that means a lot to me, thank you for your support xxx hugs back
My dad have the experience and knowledge to make the right questions and know the whole health system. Therefore he can fight on and know where he should contact if we get lies again.
We have help from neighbors who support and help us, their daughter is a doctor and knows how to treat patients. So this doctor can not hide anything from us, my medical records, I can also print, and we know someone who knows the codes.
It's just me that not have the energy to fight, but family and friends fight for me. That doctor should never have the responsibility for patients when he does not have the right skills for this. A least not for me...

Many hugs for you. Know that you are not alone in this and that you have friends and people all over the world thinking about you and wishing/hoping/praying for you and your health.
I hope you find some relief soon.

Anil, the weather is temporary. In Northwest Ohio we always tell each other that if you don't like the weather, just wait five minutes and it will change. As for bigger issues, I hope things work out for you. I know from first hand experience how frustrating universities can be. A year ago I turned in all the requested paperwork and was denied financial aid because I did not turn in all the request paperwork. So I turned it in again. And a third time. Each time the response was I just needed to turn in the request paperwork. It was extremely frustrating and dehumanizing. I felt as if my life had become a Franz Kafka story (I even stopped reading a collection of his stories because it was becoming so surreal). I ended up not being able to take classes for a semester until I was finally able to get things worked out - even though they never actually recognized that I turned the requested paperwork in. Hang in there - while I won't say it will all work out - the situation will eventually change, and I hope it does so in your favor.
Thank you Rick for your sweet and kind words that means a lot to me, thank you for your support xxx hugs back
Sorry to hear that your friend have been through all this, a lot of hugs and smooches
Just found out the last bad news, my doctor have make a false record of my progress with my destroyed shoulder and beginning to biological medicine with enbrel and why we stopped this. Several things which he may be convicted of, so this is the final proof that I am an experiment :-(
So now we need a jurist to help us and have some friends that know what we should do in this case.... It's more difficult that we thought, we have no more patient with that doctor and will talk with his boss asap about it.
Sorry to hear that your friend have been through all this, a lot of hugs and smooches
Just found out the last bad news, my doctor have make a false record of my progress with my destroyed shoulder and beginning to biological medicine with enbrel and why we stopped this. Several things which he may be convicted of, so this is the final proof that I am an experiment :-(
So now we need a jurist to help us and have some friends that know what we should do in this case.... It's more difficult that we thought, we have no more patient with that doctor and will talk with his boss asap about it.
Helle wrote: "So now we need a jurist to help us and have some friends that know what we should do in this case.... It's more difficult that we thought, we have no more patient with that doctor and will talk with his boss asap about it."
I think in a way this is good because you are not putting up with him any more and you and your father know what to do. Knowing what to do is progress.
I think in a way this is good because you are not putting up with him any more and you and your father know what to do. Knowing what to do is progress.

Helle, I hope you will sue that excuse of a doctor and his licence will be revoked.
Hugs for both of you.

Thank you Anil, Lucas and Tj for your sweet and kind words that means a lot to me, thank you for your support xxx hugs back
so sorry to hear that you have lost your mother, you and your brother need to Grief both in your own way. Good to hear that you love your brother and will support him. Grief change sometimes ones personality, this is perhaps the way your brother is going through his grief. both of you must remember that you are allowed to grieve and love can help in healing both of you.
Your brother is only 12 years, but even at that age you understand more than adults think, a lot of conversations and love will help you through this. You need to understand that even if you are the adult and the strong one, you need to talk, grieve, cry and need the support from family and friends.
Hope I have write this right, because I am not trying to offend you.....
A lot of hugs and smooches to you xxx <3
so sorry to hear that you have lost your mother, you and your brother need to Grief both in your own way. Good to hear that you love your brother and will support him. Grief change sometimes ones personality, this is perhaps the way your brother is going through his grief. both of you must remember that you are allowed to grieve and love can help in healing both of you.
Your brother is only 12 years, but even at that age you understand more than adults think, a lot of conversations and love will help you through this. You need to understand that even if you are the adult and the strong one, you need to talk, grieve, cry and need the support from family and friends.
Hope I have write this right, because I am not trying to offend you.....
A lot of hugs and smooches to you xxx <3




Hugs for you and your family xxx
Anil, I was so sad when I read your message:
"It is even hard for me to comprehend and accept my mother's passing away. I still think it is a nightmare, I'll wake up and mom will be here.”
There is nothing I can say that you don't already know and feel so once again I can only send heartfelt warm thoughts and condolences. You are a good guy and I'm glad you have been my Goodreads Friend.
"It is even hard for me to comprehend and accept my mother's passing away. I still think it is a nightmare, I'll wake up and mom will be here.”
There is nothing I can say that you don't already know and feel so once again I can only send heartfelt warm thoughts and condolences. You are a good guy and I'm glad you have been my Goodreads Friend.