
“But at what cost? I mean, don’t get me wrong: I would have given almost anything to be rid of that pain. Yet I have spent my year alternately living on a heating pad or getting tests. I have accomplished survival. I still have so many things “wrong” with my body, and I am tired of being poked and prodded. Perhaps none of this makes sense. Or perhaps it makes sense only if you live through it: the hope, the barrage of tests, the self-blame when your body still refuses to cooperate and just get better. There is a cost to pursuing miracle cures. It is a high cost.”
―
Disability Visibility : First-Person Stories from the Twenty-first Century
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