But You Don’t Look Autistic at All (Bianca Toeps’ Books)
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Women and people of colour are underrepresented in the diagnosed autism population,
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It seems that women and people of colour feel forced to mask their autistic traits, due to a lack of diagnosis and out of fear for the consequences of being different.
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Sometimes I look at myself as if my soul has left my body and is floating somewhere above.
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I keep an eye out for every abnormality so I can quickly correct myself as much as I can. Yet I try to be kind, and to rewrite my own story mentally. I’m not a loser. I’m a girl with an invisible handicap.
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When an autistic person says that something is too loud or too bright, the answer usually is: “Get over it!” We are taught to ignore signals, to suck it up, and to definitely not listen to ourselves.
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It’s logical that I put up a mask around clients, but sometimes I feel like I can’t quite be myself even around friends and people I know.
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At home I try to compensate for all the stimuli my work fires at me. I usually eat the same thing and tend not to try anything new. I go to the supermarket I’m familiar with, work out in the same place I always work out. When I have a day off, I enjoy doing nothing. I curl up on the couch under a blanket and watch Netflix, do logic puzzles such as sudoku, or delve into the world of birds. Seeing a rare species of bird can make me really happy.”
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if you don’t automatically pick up on how I’m doing and don’t actively check either, and if you only act when you see me cry – that’s too late. Way too late.
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people with autism supposedly lack empathy. I for one am very intuitive, and 90% of the time I’m open to other people’s emotions. The other 10% of the time I’m so lost in my own thoughts and obsessions, virtually nothing else gets through.”
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the sentence that makes every autistic person’s skin crawl: “But you don’t look autistic at all!”
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“trained” to show neurotypical behaviour. For that reason, most non-autistic-looking autistics tend to be the people who experience the highest psychological pressure.
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Their brain is running non-stop on full capacity, their self-monitoring is so internalised the system can’t actually be turned off anymore.
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One thing that’s become clear is that we aren’t insensitive robots, but we may seem that way sometimes because we close ourselves off. Stimuli – and that includes emotions – are often so intense for autistics that they have developed a defense mechanism.
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Someone who tells you they are autistic is still just a human being with a personality, experiences and feelings. If you have to reject someone’s autism in order to see them as a human being, you’re ignoring an intrinsic part of that person to avoid having to deal with something that makes you uncomfortable.
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They don’t need a cure, they need understanding. And I totally agree with that.
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The difference is whether you look at this from a society perspective or an individual perspective. I’m an idealist when it comes to society, I’m a pragmatist on a personal level. This helps me to stay happy, because if you focus non-stop on everything that is wrong with society – and that’s a lot! – you will only end up incredibly frustrated.
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One of our therapists said: “If you’re waiting for the fashion magazines to change, you’re giving away all control over your eating disorder.” That’s the same attitude you can choose to have when it comes to autism.