Keith Jarrett, jazz pianist and his experience with CFS/ME
Keith Jarrett evoking a lot of feeling in me. He was hit by CFS/ME,the same illness I have. He was unable to play the piano at all for two years and still isn't able to play consistently. Eye hand coordination is very difficult...just hand coordination with this illness. One day when his wife was out, as an account goes which I read by him earlier, he felt suddenly as if he could play. He went into his home studio and recorded this simple melody (compared to his power playing) and gave it to his wife as a gift. This is it below.
I have the CD. The other songs are more complex and wonderful, but I'll always love this one. I know what that movement towards getting his life back meant.
Below is the link to one interview about his experience. Please take time to read. It describes how it feels to live with this monster inside you.(This opens in a new Window)
http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind9902D&L=co-cure&P=R972,
Below is an excerpt from the interview/article:
Jarrett's uncertain pattern of recovery and relapse is not uncommon
to victims of chronic fatigue syndrome, an elusive, misunderstood
disorder, its seriousness undercut by the apparent triviality of its
label.
"The stupid thing is that the name of the disease is so
lightweight," Jarrett says. "It sounds like somebody whining to their
mother, 'I don't want to take the garbage out.' Well, OK, you've got
chronic fatigue syndrome.
"But some doctors say that if you want to give the average person
an idea . . . it's like the last four months of an AIDS patient's
life -- but forever. I know people who have had this who have wished that
they had terminal cancer."
I have the CD. The other songs are more complex and wonderful, but I'll always love this one. I know what that movement towards getting his life back meant.
Below is the link to one interview about his experience. Please take time to read. It describes how it feels to live with this monster inside you.(This opens in a new Window)
http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind9902D&L=co-cure&P=R972,
Below is an excerpt from the interview/article:
Jarrett's uncertain pattern of recovery and relapse is not uncommon
to victims of chronic fatigue syndrome, an elusive, misunderstood
disorder, its seriousness undercut by the apparent triviality of its
label.
"The stupid thing is that the name of the disease is so
lightweight," Jarrett says. "It sounds like somebody whining to their
mother, 'I don't want to take the garbage out.' Well, OK, you've got
chronic fatigue syndrome.
"But some doctors say that if you want to give the average person
an idea . . . it's like the last four months of an AIDS patient's
life -- but forever. I know people who have had this who have wished that
they had terminal cancer."
Published on November 02, 2010 07:34
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