Eyeballs Update

 

So I figured I’d give you guys an update on my whole “eyeballs are crazy” issue.  Before I get into the quick update, I wanted to thank everyone who commented on the post, emailed, and messaged so many kind words.

It’s kind of a good news/bad news thing and I’ll get the bad news out of the way. The Retinitis Pigmentosa (RP) diagnosis was confirmed through followup tests. It was discovered that I’d lost roughly 30% of my peripheral vision. The odd thing is… I really didn’t even notice that. Until now. Now, I’m all like *shifty eyed* about things around the sides of me.

Good news is that, as far as I understand, people are born with RP and while any vision loss sucks donkey butt, losing only 30% of side vision is hopefully a good indication that deterioration will continue, but be slow and not rapid. I will be doing a recessive gene test in the near future, and no, I really have no idea what that involves.  I’m hoping they discover I’m a mutant. Anyway, the recessive gene test will help map out what to expect in the near and distant future.

I’ve discovered it’s one of those things that no one really knows what will help or when it will happen, how fast or slow it will be, how much and so on. So I’ll have my vision checked every six weeks for changes and that’s about all I can do. Well, I have to take steroid eye drops three times a day, and that right there is an ADVENTURE for me. Every time I whip out the bottle, I’m all like this:

I have gotten more eye drops under my eye and above it, instead of in it.

 I debated doing an update, because it’s seriously something one can’t really dwell on, but I know many had asked for one, so there it is. Again, thank ya’ll for all the super nice and super supportive things.  You guys are amazing.