I have something called Spinal Muscular Atrophy, and I've had it since I was four years old. Mostly I've lived the “do it all” kind of life that the magazines say one must, but there are certain realities at play that challenge much of what popular opinion holds to be true when it comes to decline, attitude and narrative. With a progressive disease, the reality is that there are limits to what you can do physically. Now, you can challenge those limits, and you should, but you also have to deal with the risk of mindless positivity. When you push...
Published on January 17, 2013 00:29