Just an unnecessary irritation

Unfortunately, the people I deal with have no clue or understanding that inactivity can cause an ALS person to lose that function partially or entirely, dependent upon the duration. It is relatively easy for them to think, have no problem, and just start up again. Well, It’s not so simple, especially for someone late in the ALS cycle. The little bit of reading that our caregivers do doesn’t begin to tell our story. Sometimes, no amount of explanation can give adequate information on the actual experience. Ignorant and clueless, how else do you describe it?

We just stay in the fight for our basic human rights, trying to stay upbeat for the strength necessary to battle physical, emotional, and external obstacles on our journey. They think they know, but they don’t know. I understand better why some are overcome with sadness and just cry all the time. They are overwhelmed, feel hopeless, and are forgotten, but still, we fight on.

Challenging the meaning of life is the truest expression of the state of being human. Viktor E Frankl. Hope is being able to see that there is light despite all of the darkness. Desmond Tutu. Yes, you’ve gotta have heart. Simplysaidbysimon, I don’t know how long I can hold out, but I only have to focus on one day at a time. ALS – A Lifetime Soldier. Thanks, Jilliane.