Building your world

I’m going along building my new world. Like the fun of Leggo Land, I have discovered a whole new world since my legs have gone. It is fascinating to explore the wheelchair, therapy, walking aids, and lifts.

Fascinating? I try to stay away from thoughts of depression, debilitation, despair, distraught, debased, and every despondent possibility of disease. I’m definitely not allowing thoughts of death to permeate my mind, with few exceptions.

One of the first things I did after receiving my diagnosis of ALS was to review my life insurance. It’s a sickening experience to realize that there is not enough money for the family plans to be fulfilled. Even though we were living in our dream home and our daughter would finish her education in mostly private schools, everything could possibly change with my death.

Some changes are financial, but the family has emotional hurdles to overcome whenever dealing with death. My suggestion is to have a prolonged life when possible. There are different choices; everyone is different and handles disease differently. I’m just reviewing how my world changed with the loss of my legs, arms, and finger’s abilities to function. I have built a new world that is doable for me. Disability and disease aren’t the end. They initiated a new world for us that we continue exploring and going on exciting adventures.

Progress was all right. Only it went on too long. James Thurber. Independence is happiness. Susan B. Anthony. Faith is the bird that feels the light when the dawn is still dark. Rabindranath Tagore. Simplysaidbysimon, keep singing with the birds. ALS – Another Lesson Learned. Thanks, Belinda.