This Ichthyosis Awareness Month, I want pride over cures

May is Ichthyosis awareness month. I hope the organisations supporting people with Ichthyosis focus less on going hiking, finding cures and genetic editing, and more on supporting mental health or how to overcome the shame and hatred and yearning to change appearance, or getting a job – when it’s clear that so many people with Ichthyosis struggle with all of these things.

Image: Carly, a woman with a red face and short dark curly hair wearing a floofy purple dress, smiling. She’s against a grey background. Black text is next to her, as above.

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