What’s the Holdup?

Miracle Man adjusted my mirrors so that I could see more easily the people who would sit in the two chairs. Great. Now I have one more mirror to adjust for the window view. Jennifer left me more zucchini bread. Whoo-hoo. It will be lemon pound cake next week. I definitely no longer have eating or weight concerns. I’m probably four pounds heavier. I’ll have the staff weigh me today.

I’m progressing more slowly than I like, or that’s normal for me. It’s like I am in a temporary funk. Possibly, it is a letdown after reaching some of my goals. Or, maybe my plateau is the result of a sustained push for so long. Whatever the reason, I have got to get it into gear and burn some rubber. There are a lot more miles on this journey.

How are you doing with your detours, road bumps, and traffic jams? Disease and disabling conditions will try to mess up our journey of life and our lifestyles. We must do things differently, and sometimes more slowly than we’re accustomed to, but keep it moving. You’ll get through the aftermath of the devastation detour called diagnoses. You will get over the road bumps and potholes of lost abilities. Possibly, you will be grateful for the standstill plateau when nothing is getting worse.

I applaud you for staying in our motorcade of miraculous men and women. Maybe it is a race against mortality. How much road and experiences can we get in before our traveling days are over? The Ancient Book says the race isn’t won by the quick, nor is the battle victors for the strong. But, rather, we just have to hold out until our end, whenever that is. One day at a time, Baby. That’s all I’m asking of you Simplysaidbysimon. ALS – A Lasting Soldier. Thanks, Jilliane. Don’t count the days make the days count. Mohammad Ali.

Author of ALS: A Life Surrendered, Flowers of the Heart, Prayers: Simply Said By Simon, and Imminent Death: Living with a Terminal Disease.