Give Thanks

I’m surrounded by thoughtless, mindless, and clueless people. I work hard every day to maintain my health, attitude, and desire to live. Some can’t think, see, or follow instructions.

Do I work? Have mercy I work harder than anyone should have to just to stay alive. Am I grateful? Every day, I give thanks. You see, I have been left with no response for over five hours. I have been forgotten while sitting on the portable commode multiple times. My ventilator tubing had been accidentally removed, and the staff didn’t have the awareness to know I could not breathe or what the alarm meant. I have had my ventilator unplugged, and the backup battery was saving me and alerting me to the fact that it wasn’t plugged in.

Yes, these and other situations I have worked through. My nerves have been worked. My patience is usually working overtime. Yeah, brothers and sisters, on this journey, I count it all joy to wake up each and every day with a mind alert enough to make up for the deficiencies of those who are paid for my care. It’s my life. I am happy to keep saving it and working for another day to be me. I’m stronger, more creative, more patient, more determined, and more appreciative of the opportunity to have a life because of these people. What can I say? I can do all things… Simplysaidbysimon gotta pray just to make it today. Or, maybe it was Hammer. Either way, ALS – A Lasting Survivor. Thanks, Jilliane.