On going home like it’s a vacation.

Being back in New Jersey was a blur, but in a good way. It really and truly felt like a vacation, and that was wonderful. The first day, I got my hair cut and colored by the endlessly engaging and amazingly awesome Veda St. Vier. I’m in love with the way it came out.

I love feeling beautiful. It honestly makes everything better.

I had so much fun with my friends on Thursday and Friday. It was absolutely wonderful catching up with everyone.

I owe my friends Melanie and Brian so much for their hospitality and generosity. We ordered food and had some drinks at a local brewery, and sitting outside in the evening with great people felt like an absolute dream.

Writing

MOODY BLUE COMES OUT IN TWO WEEKS!

Miracle Maddie

MADDIE GIRL HAD AN ABSOLUTELY SPECTACULAR DAY!! She impressed the pulmonologist at her appointment on Wednesday and made him emotional! He said her recovery is 1 in 1000 and that the PICU wouldn’t believe how far she’s come! He said someone up there is looking out for us AND he’s on board with capping her trach! He supports our inclusion of stem cells and HBOT in Maddie’s recovery plan and he was saying how people probably thought Mom was a little crazy in the beginning but it IS working! Also, Maddie Girl got fitted for her leg splints after PT/OT today! Her legs have been looking so good lately so this can only make them look GREAT!

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