Buckle up. Here we go.

My second-line treatment of fulvestrant and palbociclib stopped working. I didn’t need the test results to find out. The truth is in my chest, in that lumpen foreign mass prodding my right lung with each inhale, prickling my mind when I lie in bed at night. 

Do you have asthma? You know how, with asthma, when you breathe in it feels like everything’s full already and you can’t get more oxygen? A lung met is a little like that:  an uncanny something taking up space where the air would like to be. 

It’s a very weird feeling. 

I think I also have a new small met in my throat which says “hello there” when I swallow. Gotta wait on the next scan to confirm that one.

I’m at the crest of the roller coaster. When I gaze around I can see for decades.  But right now my hands are gripping the harness and I’m focused on the track ahead: there are corkscrews and a 360 in front of me. 

When I went to Disneyland with Katie in 2017 we rode California Screamin’ for hours, heading back down to the ‘single rider’ queue again and again. 

There’s no do-over this time. 

I have more medication options. Not as many as I’d like. I am waiting on next steps. 

I have to finish the story I’m working on.  That’s priority. I have to prune everything else and focus on rest, on writing, on pulling in a paycheck to pay the bills, on the people I care about. When I have confirmed there’s less than 6 months left I can cash in my retirement fund and stop work and just focus on three out of those four. Ain’t that a double-edged sword.

I can make five years, surely? I can make five. March 2023. That’s nine more months. Wow, that feels like a big fucking ask right now.

Still, I’m asking, Universe. Give me the five.

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Published on May 18, 2022 13:47
Comments Showing 1-7 of 7 (7 new)    post a comment »
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message 1: by Fifi LaFleur (last edited May 21, 2022 09:14PM) (new)

Fifi LaFleur I have no words of wisdom or anything. I just wanted to say i hear you and i'm listening. Also sending a smile and a hug or a lean or maybe a foot bump. Whatever works for you as a comfort or encouragement. Glad you're still here. Kracken is still a cracking tale.


message 2: by M. (new)

M. Caspian Fifi LaFleur wrote: "I have no words of wisdom or anything. I just wanted to say i hear you and i'm listening. Also sending a smile and a hug or a lean or maybe a foot bump. Whatever works for you as a comfort or encou..."

hello! And thank you for the foot bump. I appreciate the encouragement SO MUCH. Today was a good day, plus I wrote over 6K this week. I am just working on living one day at a time and enjoying the sun when it's out. I hope you are well and thriving.


message 3: by Fifi LaFleur (new)

Fifi LaFleur Sending a little sunshine your way....☀️ 🌞 ☀️ 🌞


message 4: by Trio (new)

Trio Hugs and all my best wishes 💗, you're in my heart.


message 5: by Pierre (new)

Pierre I'm sending plenty of good vibes and best wishes.


message 6: by M. (new)

M. Caspian Trio wrote: "Hugs and all my best wishes 💗, you're in my heart."

thank you so much Trio, that means a lot. Onward to 2023.


message 7: by M. (new)

M. Caspian Pierre wrote: "I'm sending plenty of good vibes and best wishes."

thank you! i love your vibes and will groove on them into 2023.


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