Benjamin J. Carey's Blog, page 19
August 14, 2020
Tackling Cancer

A year ago my 10 year old was running touchdowns. Today we're tackling cancer. Can you imagine?
I still find the circumstances stunning, but my guy is doing his thing and we are determined to make this just another series in the playbook of life.
Sully's spirits are unbroken in spite of the many things that most 10 year olds never have to consider: swallowing a handful of pills twice a day, reporting for chemotherapy sessions almost everyday, having to get a needle of some sort everyday whether it be a finger stick or having his medi-port accessed. Then there are the other things like the frequent stomach aches, loss of muscular strength, constipation, lethargy, easy bruising, and the spinal taps and bone marrow biopsies. The chemotherapy kills all of the cells even some of the good ones, so once in a while he needs to get blood transfusions if his levels drop too low. There are also periods where his immune system gets dangerously low and when that happens we quarantine him for a bit. Right now he is fishing his 2nd stage of his chemotherapy plan and getting ready for the 3rd stage which will be more intense and require a couple hospital stays.
We take everyday as a gift while trying to keep things as normal as possible for him, and while trying to manage our own emotions, finances and responsibilities. I sometimes don't know whether I'm coming or going or what the future holds, but I make sure to find something to be happy about on a daily basis and I share that energy with Sully.
The combination of COVID-19 and his cancer diagnosis have made this our most challenging year ever, but the support of our friends and family have helped tremendously.
Sully's last MRD reading was negative which is very promising. All we can do is keep at it, enjoy each day, and pray. I know he'll beat this, and although he can't hit or fully participate in football this fall, you can be sure he'll be suiting up and making some practices with his teammates. In the meantime he's getting some blood on today's visit!

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Tackling Cancer

A year ago my 10 year old was running touchdowns. Today we're tackling cancer. Can you imagine?
I still find the circumstances stunning, but my guy is doing his thing and we are determined to make this just another series in the playbook of life.
Sully's spirits are unbroken in spite of the many things that most 10 year olds never have to consider: swallowing a handful of pills twice a day, reporting for chemotherapy sessions almost everyday, having to get a needle of some sort everyday whether it be a finger stick or having his medi-port accessed. Then there are the other things like the frequent stomach aches, loss of muscular strength, constipation, lethargy, easy bruising, and the spinal taps and bone marrow biopsies. The chemotherapy kills all of the cells even some of the good ones, so once in a while he needs to get blood transfusions if his levels drop too low. There are also periods where his immune system gets dangerously low and when that happens we quarantine him for a bit. Right now he is fishing his 2nd stage of his chemotherapy plan and getting ready for the 3rd stage which will be more intense and require a couple hospital stays.
We take everyday as a gift while trying to keep things as normal as possible for him, and while trying to manage our own emotions, finances and responsibilities. I sometimes don't know whether I'm coming or going or what the future holds, but I make sure to find something to be happy about on a daily basis and I share that energy with Sully.
The combination of COVID-19 and his cancer diagnosis have made this our most challenging year ever, but the support of our friends and family have helped tremendously.
Sully's last MRD reading was negative which is very promising. All we can do is keep at it, enjoy each day, and pray. I know he'll beat this, and although he can't hit or fully participate in football this fall, you can be sure he'll be suiting up and making some practices with his teammates. In the meantime he's getting some blood on today's visit!

follow Benjamin on Instagram follow Sully on Instagram
DONATE






Tackling Cancer

A year ago my 10 year old was running touchdowns. Today we're tackling cancer. Can you imagine?
I still find the circumstances stunning, but my guy is doing his thing and we are determined to make this just another series in the playbook of life.
Sully's spirits are unbroken in spite of the many things that most 10 year olds never have to consider: swallowing a handful of pills twice a day, reporting for chemotherapy sessions almost everyday, having to get a needle of some sort everyday whether it be a finger stick or having his medi-port accessed. Then there are the other things like the frequent stomach aches, loss of muscular strength, constipation, lethargy, easy bruising, and the spinal taps and bone marrow biopsies. The chemotherapy kills all of the cells even some of the good ones, so once in a while he needs to get blood transfusions if his levels drop too low. There are also periods where his immune system gets dangerously low and when that happens we quarantine him for a bit. Right now he is fishing his 2nd stage of his chemotherapy plan and getting ready for the 3rd stage which will be more intense and require a couple hospital stays.
We take everyday as a gift while trying to keep things as normal as possible for him, and while trying to manage our own emotions, finances and responsibilities. I sometimes don't know whether I'm coming or going or what the future holds, but I make sure to find something to be happy about on a daily basis and I share that energy with Sully.
The combination of COVID-19 and his cancer diagnosis have made this our most challenging year ever, but the support of our friends and family have helped tremendously.
Sully's last MRD reading was negative which is very promising. All we can do is keep at it, enjoy each day, and pray. I know he'll beat this, and although he can't hit or fully participate in football this fall, you can be sure he'll be suiting up and making some practices with his teammates. In the meantime he's getting some blood on today's visit!

follow Benjamin on Instagram follow Sully on Instagram
DONATE






Tackling Cancer

A year ago my 10 year old was running touchdowns. Today we're tackling cancer. Can you imagine?
I still find the circumstances stunning, but my guy is doing his thing and we are determined to make this just another series in the playbook of life.
Sully's spirits are unbroken in spite of the many things that most 10 year olds never have to consider: swallowing a handful of pills twice a day, reporting for chemotherapy sessions almost everyday, having to get a needle of some sort everyday whether it be a finger stick or having his medi-port accessed. Then there are the other things like the frequent stomach aches, loss of muscular strength, constipation, lethargy, easy bruising, and the spinal taps and bone marrow biopsies. The chemotherapy kills all of the cells even some of the good ones, so once in a while he needs to get blood transfusions if his levels drop too low. There are also periods where his immune system gets dangerously low and when that happens we quarantine him for a bit. Right now he is fishing his 2nd stage of his chemotherapy plan and getting ready for the 3rd stage which will be more intense and require a couple hospital stays.
We take everyday as a gift while trying to keep things as normal as possible for him, and while trying to manage our own emotions, finances and responsibilities. I sometimes don't know whether I'm coming or going or what the future holds, but I make sure to find something to be happy about on a daily basis and I share that energy with Sully.
The combination of COVID-19 and his cancer diagnosis have made this our most challenging year ever, but the support of our friends and family have helped tremendously.
Sully's last MRD reading was negative which is very promising. All we can do is keep at it, enjoy each day, and pray. I know he'll beat this, and although he can't hit or fully participate in football this fall, you can be sure he'll be suiting up and making some practices with his teammates. In the meantime he's getting some blood on today's visit!

follow Benjamin on Instagram follow Sully on Instagram
DONATE






Tackling Cancer

A year ago my 10 year old was running touchdowns. Today we're tackling cancer. Can you imagine?
I still find the circumstances stunning, but my guy is doing his thing and we are determined to make this just another series in the playbook of life.
Sully's spirits are unbroken in spite of the many things that most 10 year olds never have to consider: swallowing a handful of pills twice a day, reporting for chemotherapy sessions almost everyday, having to get a needle of some sort everyday whether it be a finger stick or having his medi-port accessed. Then there are the other things like the frequent stomach aches, loss of muscular strength, constipation, lethargy, easy bruising, and the spinal taps and bone marrow biopsies. The chemotherapy kills all of the cells even some of the good ones, so once in a while he needs to get blood transfusions if his levels drop too low. There are also periods where his immune system gets dangerously low and when that happens we quarantine him for a bit. Right now he is fishing his 2nd stage of his chemotherapy plan and getting ready for the 3rd stage which will be more intense and require a couple hospital stays.
We take everyday as a gift while trying to keep things as normal as possible for him, and while trying to manage our own emotions, finances and responsibilities. I sometimes don't know whether I'm coming or going or what the future holds, but I make sure to find something to be happy about on a daily basis and I share that energy with Sully.
The combination of COVID-19 and his cancer diagnosis have made this our most challenging year ever, but the support of our friends and family have helped tremendously.
Sully's last MRD reading was negative which is very promising. All we can do is keep at it, enjoy each day, and pray. I know he'll beat this, and although he can't hit or fully participate in football this fall, you can be sure he'll be suiting up and making some practices with his teammates. In the meantime he's getting some blood on today's visit!

follow Benjamin on Instagram follow Sully on Instagram
DONATE






Tackling Cancer

A year ago my 10 year old was running touchdowns. Today we're tackling cancer. Can you imagine?
I still find the circumstances stunning, but my guy is doing his thing and we are determined to make this just another series in the playbook of life.
Sully's spirits are unbroken in spite of the many things that most 10 year olds never have to consider: swallowing a handful of pills twice a day, reporting for chemotherapy sessions almost everyday, having to get a needle of some sort everyday whether it be a finger stick or having his medi-port accessed. Then there are the other things like the frequent stomach aches, loss of muscular strength, constipation, lethargy, easy bruising, and the spinal taps and bone marrow biopsies. The chemotherapy kills all of the cells even some of the good ones, so once in a while he needs to get blood transfusions if his levels drop too low. There are also periods where his immune system gets dangerously low and when that happens we quarantine him for a bit. Right now he is fishing his 2nd stage of his chemotherapy plan and getting ready for the 3rd stage which will be more intense and require a couple hospital stays.
We take everyday as a gift while trying to keep things as normal as possible for him, and while trying to manage our own emotions, finances and responsibilities. I sometimes don't know whether I'm coming or going or what the future holds, but I make sure to find something to be happy about on a daily basis and I share that energy with Sully.
The combination of COVID-19 and his cancer diagnosis have made this our most challenging year ever, but the support of our friends and family have helped tremendously.
Sully's last MRD reading was negative which is very promising. All we can do is keep at it, enjoy each day, and pray. I know he'll beat this, and although he can't hit or fully participate in football this fall, you can be sure he'll be suiting up and making some practices with his teammates. In the meantime he's getting some blood on today's visit!

follow Benjamin on Instagram follow Sully on Instagram
DONATE






Tackling Cancer

A year ago my 10 year old was running touchdowns. Today we're tackling cancer. Can you imagine?
I still find the circumstances stunning, but my guy is doing his thing and we are determined to make this just another series in the playbook of life.
Sully's spirits are unbroken in spite of the many things that most 10 year olds never have to consider: swallowing a handful of pills twice a day, reporting for chemotherapy sessions almost everyday, having to get a needle of some sort everyday whether it be a finger stick or having his medi-port accessed. Then there are the other things like the frequent stomach aches, loss of muscular strength, constipation, lethargy, easy bruising, and the spinal taps and bone marrow biopsies. The chemotherapy kills all of the cells even some of the good ones, so once in a while he needs to get blood transfusions if his levels drop too low. There are also periods where his immune system gets dangerously low and when that happens we quarantine him for a bit. Right now he is fishing his 2nd stage of his chemotherapy plan and getting ready for the 3rd stage which will be more intense and require a couple hospital stays.
We take everyday as a gift while trying to keep things as normal as possible for him, and while trying to manage our own emotions, finances and responsibilities. I sometimes don't know whether I'm coming or going or what the future holds, but I make sure to find something to be happy about on a daily basis and I share that energy with Sully.
The combination of COVID-19 and his cancer diagnosis have made this our most challenging year ever, but the support of our friends and family have helped tremendously.
Sully's last MRD reading was negative which is very promising. All we can do is keep at it, enjoy each day, and pray. I know he'll beat this, and although he can't hit or fully participate in football this fall, you can be sure he'll be suiting up and making some practices with his teammates. In the meantime he's getting some blood on today's visit!

follow Benjamin on Instagram follow Sully on Instagram
DONATE






Tackling Cancer

A year ago my 10 year old was running touchdowns. Today we're tackling cancer. Can you imagine?
I still find the circumstances stunning, but my guy is doing his thing and we are determined to make this just another series in the playbook of life.
Sully's spirits are unbroken in spite of the many things that most 10 year olds never have to consider: swallowing a handful of pills twice a day, reporting for chemotherapy sessions almost everyday, having to get a needle of some sort everyday whether it be a finger stick or having his medi-port accessed. Then there are the other things like the frequent stomach aches, loss of muscular strength, constipation, lethargy, easy bruising, and the spinal taps and bone marrow biopsies. The chemotherapy kills all of the cells even some of the good ones, so once in a while he needs to get blood transfusions if his levels drop too low. There are also periods where his immune system gets dangerously low and when that happens we quarantine him for a bit. Right now he is fishing his 2nd stage of his chemotherapy plan and getting ready for the 3rd stage which will be more intense and require a couple hospital stays.
We take everyday as a gift while trying to keep things as normal as possible for him, and while trying to manage our own emotions, finances and responsibilities. I sometimes don't know whether I'm coming or going or what the future holds, but I make sure to find something to be happy about on a daily basis and I share that energy with Sully.
The combination of COVID-19 and his cancer diagnosis have made this our most challenging year ever, but the support of our friends and family have helped tremendously.
Sully's last MRD reading was negative which is very promising. All we can do is keep at it, enjoy each day, and pray. I know he'll beat this, and although he can't hit or fully participate in football this fall, you can be sure he'll be suiting up and making some practices with his teammates. In the meantime he's getting some blood on today's visit!

follow Benjamin on Instagram follow Sully on Instagram
DONATE






Tackling Cancer

A year ago my 10 year old was running touchdowns. Today we're tackling cancer. Can you imagine?
I still find the circumstances stunning, but my guy is doing his thing and we are determined to make this just another series in the playbook of life.
Sully's spirits are unbroken in spite of the many things that most 10 year olds never have to consider: swallowing a handful of pills twice a day, reporting for chemotherapy sessions almost everyday, having to get a needle of some sort everyday whether it be a finger stick or having his medi-port accessed. Then there are the other things like the frequent stomach aches, loss of muscular strength, constipation, lethargy, easy bruising, and the spinal taps and bone marrow biopsies. The chemotherapy kills all of the cells even some of the good ones, so once in a while he needs to get blood transfusions if his levels drop too low. There are also periods where his immune system gets dangerously low and when that happens we quarantine him for a bit. Right now he is fishing his 2nd stage of his chemotherapy plan and getting ready for the 3rd stage which will be more intense and require a couple hospital stays.
We take everyday as a gift while trying to keep things as normal as possible for him, and while trying to manage our own emotions, finances and responsibilities. I sometimes don't know whether I'm coming or going or what the future holds, but I make sure to find something to be happy about on a daily basis and I share that energy with Sully.
The combination of COVID-19 and his cancer diagnosis have made this our most challenging year ever, but the support of our friends and family have helped tremendously.
Sully's last MRD reading was negative which is very promising. All we can do is keep at it, enjoy each day, and pray. I know he'll beat this, and although he can't hit or fully participate in football this fall, you can be sure he'll be suiting up and making some practices with his teammates. In the meantime he's getting some blood on today's visit!

follow Benjamin on Instagram follow Sully on Instagram
DONATE






July 18, 2020
Forever and a Day

Yesterday I heard a song with the expression "forever and a day" in the lyrics. It's an expression that was originally coined by Shakespeare and it means "for a very long time".
As I listened I began thinking how the meaning would change if you twisted the phrase to: "forever in a day"?
That's what some of the days seem like in this journey with Sully. I've done a good job trying to distract myself from the shadows of the Leukemia battle, but when things quiet down, when I am alone, and mostly at night it feels like forever has been squeezed into one single day.
I sit alone and my mind plays a time lapse slideshow of every memory of my life, and then it flashes images of every imaginable uncertainty of the future. It seems like forever in one day.
All we have is the day; the moment that is right here in front of us. It's so important to find happiness in the simplicities of each day. I remind myself that there is always something to be grateful for, always something to appreciate and be positive about.
Sully was readmitted to the hospital to treat some side effects of the chemo. Hopefully we'll be out of here quickly. The peaks and valleys of cancer treatment are becoming more familiar, and we are just taking each day as it comes and trying to manage everything the best we can. His spirits are okay, we are all positive, and we will keep at it hoping for good news at each milestone of his treatment.
We bend, but we don't break.

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