Life Without Ed® (with Jenni!) discussion
Help...I Need Encouragement!
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Christina
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Jan 20, 2018 04:41PM

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This is basically going to be a list of things either I tell myself or have helped me in the past.
Do the next right thing, which you have by posting this. Take it one day (hour, minute...whatever you need) at a time. Put it in the past, you can’t take it back. What’s done is done.
I personally don’t think its necessarily a bad thing to feel bad about what you did in a sense, but it is NOT an excuse to beat yourself up. Im talking no longer than a couple minutes - enough time to think about what you did so that hopefully you can move on. You might even be able to figure out what led to you using that behavior in that time. DON’T DWELL! Take the opportunity to learn from your mistake(s).
I know everything I just said is much easier said than done, but those are the “basics”, in a sense. Remember:
“Don’t look back. You’re not going that way.”


If I’m really struggling and I cannot get a hold of any of my ED support system, I will reach out to anyone and just start up a random conversation with them. This just helps me to distract and also think about something else.

Melody, I don't have an alternative to pushing thru. I've been sitting back and not working for a couple of weeks and yesterday my spouse said he is noticing my behaviors but hasn't said anything. He said when he doesn't say anything I "get away with it" and when he does I make excuses and try for a short time. Well, he hasn't participated in any of my counseling or treatment. I go, then come home to the same old crap. No sponsor, no group, no follow up. I told him my therapist is my follow up. He said "She's doing a terrible job, you should fire her". Well, she can't hold my hand all the time, that's kind'a his job. I start feeling suicidal until I think about my family and then I'm brought back to Earth and reality. I can be aware of the present, do what I can that I know to be better. I can come here, journal, attend AA meetings and when my counselor is in the country, see her. My main wall now is how I feel physically after eating. I got so ill yesterday afternoon, I couldn't make my cards despite being so excited about new materials I'd gotten out shopping with him. I was in bed most of the day. I can't give up. Its just not an option. Its not an option for you either, my friend.

Great post, Heidi. You mentioned a lot of great ideas. I hope they help others and continue to help you as well.

Never hurts to ask in situations like that.

Rachel, I don't know about others' situations, but my counseling is covered by my insurance. I've asked counselors in the past about doing a phone session and was told that insurance won't cover it and I can't pay the $112. in cash. Just wanted to give another perspective. My current therapist is local which is great. I've driven over an hour each way at times to see people.



My Dad passed away 4 years ago on February 6 so I’ll be right here with you. We’ll make it together.

So I’m going to be in PHP in April
Yay!
I’m wondering if someone could give me tips and what to expect there?
I’m super nervous!!!!!
Thank you!

A lot kind of depends on the amount of time out of the day/week the program is. I’ve been to programs where PHP is from like 8:00-6:00 Mon-Fri (basically breakfast to dinner), one from 9-4 every day then another from 9-2 on weekdays only. That obviously has a lot to do with programming.
Any specific questions, you can always msg me.

My birthday turned out alright. My family wished me happy birthday via Facebook or text.
A coworker brought donuts into work this morning for my birthday. I looked in the box and almost cried.... There was a M&M donut. I told her I had to have that donut, and then explained to her how my favorite grandpa used to get the M&M donuts for my cousins, siblings, and I all the time, and it has been years since anyone in my family has had one, because we can't find them anywhere.
Then, my second shift nurses bought me a cake and had all the kids sing happy birthday to me. I ate a very small piece of cake. The nurses also invited me to their pot luck, so I ate some of the food.
Had a few food challenges today with all of this, but I survived them. 😊

I wish you well!! Good job taking care of yourself!!


Sorry, way TMI, but I DO keep baby wipes or something like that by my bed at all times and shower anytime I have to leave the house. I’m also ironically OCD about changing the sheets and pillows on my bed.

I know I've been rather absent....I haven't been doing great at all. I'm not in a very good spot. I'm actually very nervous to see my dietician tomorrow. I know it's not going to be good. I see my therapist twice a week now. Monday was a really, really difficult session. I won't even go into it as I basically cried the entire session because of what we were working through- which is still a very big work in progress. I just have a gut feeling that php may possibly be mentioned tomorrow. I'm not entirely sure, but I'm pretty positive that it's going to be a difficult appointment. I actually sent an email to my dietician today apologizing for how much I've been struggling and how much it's been difficult to get back on track. I just pray that the appointment goes better than I expect it to.
I'm sorry that I haven't been as active here.

I've actually found that a weighted blanket really helps my anxiety. Last week when my anxiety was the worst it's been in a long time, I ended up sleeping with my weighted blanket to calm my body down and it did help.

So I’m going to be in PHP in April
Yay!
I’m wondering if someone could give me tips and what to expect there?
I’m super nervous!!!!!
Thank you!"
I actually find php really helpful. Every program is different, but the one I was in the past three times- the first two times I was there, it was the most helpful and I made a lot of progress there. I found it more helpful for me, than residential.
What program are you going to be in?

So a few select girls (it seemed) walked around with these and use them in groups and I finally found out what they were when one day in group I not only was asked to put my feet on the floor, but also put away my blanket. At the same time, one of said girls was not only laying down but also got to keep this blanket. I’m not one to say anything, but the tech sitting in talked to both the person laying down and group leader about it. I asked her what these blankets were all about and she told me what they were for. She also told me they belonged to the lodge and the girls who had them were constantly told to give them back.
They had them for people to use while experiencing high anxiety, to stay grounded before (if they could catch it) or after flashbacks, etc. I had a corner I would always end up in when I was upset or just wanted to be alone. It used to be my closet, but they moved me to a room that didn’t have the “walk-in”, just one the size of a locker. (By the way, that didn’t stop me. I just climbed into there and hoped my roommates weren’t in there! Haha) I was bad. The thing is, at night, I’d dissociate and wander off and end up in my corner and have flashbacks, sometimes to the point I could have gotten hurt. Every time, whoever got me out of it, asked if I wanted to try the blanket, and every time, they were all nowhere to be found.
It’s so frustrating because they’re so expensive and I can’t spend so much on something that could possibly do the opposite. (I don’t think it would be bad, but I have a thing about feeling trapped and suffocated. I’ve thought about getting a child size since they’re cheaper because I don’t think I’d be able to use one past my legs anyway, possibly stomach.

The best I can say is try to follow your meal plan as much as possible, but if, say, you’re on 3 meals a day, break up those exchanges into smaller meals more like snacks (or if there are a couple things you just couldn’t get in during one meal, eat it as a snack an hour or two later). That, and stick more bland foods if you need to. If it’s a stomach virus that’s when I personally leave it at do the best you can. It sort of defeats the purpose and can possibly be triggering to some people.
Call your dietician if you have one and are able to and see if she has any advice. She might at least have some good food ideas for you to try or other tips.
Sorry I’ve been pretty MIA. I’m FINALLY passed my “5 months of back to back anniversaries”. That was fun.
I was also out of a medication for over a month. Other than my typical up random hours of the night (yet much less than usual), there were days I could barely get out of bed, some I actually slept most of the day. I swear CVS was just too lazy to put the order in since I’m sure there are probably 2 more places to sign because of what it is. 👎🏼They kept me hanging for 3-4 weeks saying it was on backorder until I called the actual company they get it from (it’s generic), and they said it wasn’t on backorder. For the first time, I was able to talk to a pharmacist at CVS, who blamed it on their vendor and she couldn’t do anything past submit an order to them. I didn’t buy it and she knew it. Magically, a couple days later, she called to tell me put in the order and said they’d have it by the end of the week, but would call if it came in sooner (which it did - Tuesday). Here I am trying not to keep bothering them so I wait to call until the next Monday (2 days ago), giving it a full week.
You don’t always realizing how much a medication is helping (especially if you’re on a lot) what one is specifically doing until you don’t have it. Realized pretty quick yesterday I should have halved the dose not taken the full amount after so long. Luckily I did think about it for the afternoon dose!


I’m sorry about the med thing. I’m also on many things and find it hard to I.d. Whats helping or not. Some of the psych meds have really bad symptoms when the med is stopped suddenly. You advocated for yourself and the staff saw you weren’t someone to be lied to. You used your voice- great job.

I’m pretty sure what you wanna look for after their name is “CEDSRD”. I know Jenni posted it somewhere not too long ago because therapist’s are CEDS and I know RD is added, just don’t know if there’s a space between the two. Either way, that means they not only have experience but also have been trained and probably taken courses or have to complete CE’s specifically on the issue.
It also doesn’t hurt to look into interns (working under CEDSRD, of course). They just have to complete so many hours working under “supervision” before they can get the technical certification. They are almost always a lot cheaper. When I was inpatient once, the therapist was one of the best I’ve ever had. It wasn’t until about 3 weeks in (with 3 sessions a week) that we were signing discharge paperwork and I saw intern after her name. I was honestly shocked. Choosing someone in this case is just like a therapist or doctor. You don’t have unlimited options, but you can always ask them to call when they have a few minutes to talk and get a feel for what they are like.
And yes, the meds...I will be getting off Effexor soon to switch to Lexapro. I’m not sure if you’ve ever taken that but it is known to have the worst withdrawals of any antidepressant (even if you ask doctors). Even worse, it is a capsule so you can’t go down as slow as you should because it can’t be cut. I swore after being on a much lower dose years ago that I would never take it again. Unfortunately, they had me on Brintellex (now Trintellix) while inpatient and when I got out it was gonna cost about $500 a month. This was closest to it and my doctor hated taking me off. Worst part is I’ve now been on the max (as in “only recommended if absolutely necessary” max) dose.



Have they always or is this fairly new? That could be the cause, and it’s possible that it is even emotional in some way but has gotten so bad it’s coming out physically. I’m dealing with something similar (Not with food but in terms of not feeling the emotions so things are coming out up, down, sideways...any way they can). There is also always the possibility that when you have had an eating disorder for a long time, then start trying to do what’s right, your body doesn’t know what to do and freaks out. It’s kind of the same thing. I’m glad you’ve gone to doctors to make sure but it’s just kind of more of a reason to consider. Just like with Sara (?), I kept saying consistence is key. I’m not saying push yourself to eat every one of those foods every mean, but if it’s a case of there being no other options, maybe try the lesser of two evils? Possibly you need to see a gastroenterologist and get further testing? Talk to your therapist about this.
Oh, can you PM me that program? I’m just really curious how it works.


Hi Michelle, I'm having similar issues. Can you let me know the online program too. I have been on a couple but found it really tedious and draining being on the computer all the time. But it can be less scary than going to a group which I have yet to do! Thanks Sara


Remember that recovery isn’t always rainbows and unicorns. There is no straight line (unless, of course, you’ve given up and in that case it’s possible to be going downhill).
I like to compare it to a roller coaster because it’s very easy to visualize. Then one day, I randomly started picturing actual, real ones I had been on ride (a lot of my favorite, of course 😄). All were different, but they all had their ups, downs, twists and turns.
As I sit here, I’m actually associating certain ones with different times throughout my ED/recovery process, all based on the way they move, if that makes sense. Interesting.
Whether you like to look at it as a line with ups and downs, mountains and valleys or the all too familiar “stairs” (fall down 7 times, get up 8). It’s all the same, some people just like different ways, or whatever.
The most important thing I’m trying to say I guess is that struggling is normal. It’s how you choose to deal with it that makes the difference. It’s one thing to be struggling, but pushing through any urges to act out on physical behaviors. Dealing with the emotional issues is also important, I think that’s a given. Unfortunately, sometimes you just have to ride out the wave, just don’t think of it as an excuse to stop trying. Just take it one day, hour, MINUTE at a time.
You’re stronger than you think, braver than something, and I don’t remember the quote but I’m sure you know what I’m talking about.

Melody, I've definitely been in my share of funks.
Sometimes a distraction works well. I have a couple of funny TV shows I like to watch that get my laughing, which helps. Going for a walk in the sunshine is also helpful to me. The sun and fresh air helps my mood. Also, being around animals is good for my mood. Petting a dog always cheers me up because they are always so happy. I can't help but be happy too.
I've also discovered that trying too hard to get out of the funk tends to work the opposite. I know it's hard, but if you can embrace that you're in a funk and allow it to pass on its own time, that may help.
Hope that helps.
Laura

Rachel,
I hear you. The adjustments your body goes through are rough. All I can say is that it does get better with time. I've been in recovery for four years now and I rarely have any GI problems anymore, when I used to have a lot during my ED and in the beginning of my recovery. In fact, my body has somehow taken a liking to gluten recently after not being able to tolerate it for several years. You're doing all the right things. Just be patient and take it one step at a time.
Laura

I don't know if there are people on here who have a lot of time in recovery. I was just wondering if there ever comes a point in recovery where you feel really, really good in your body, to the point of feeling sexy and sensual and goddess-like. Perhaps this is just a wish I have and is not a realistic aspiration. I've made leaps and bounds of progress in how I feel about my body but I still don't think of myself as an attractive young woman. Most of the time I don't notice or think about my body in a negative or positive way. I do find myself hoping my significant other will compliment my appearance, wanting external validation about how I look. Anyway, open to your thoughts!
Laura




I apologize for being MIA from here for a while. I needed to take a break from the group for some personal reasons. I’m hoping to get back to being more of a support and reaching out for support again. I probably won’t be around as often as I used to be, but I’ll try not to disappear for months at a time again.
Overall, I’ve been doing alright, but I have had many ups and downs and hit many bumps and road blocks over the past several months. About a month ago, my dietitian joined my therapist and I in a session, this was the first (and so far, only) time all three of us met at once. The two of them informed me they felt I need a higher level of care (PHP or IOP). However, due to many circumstances, it is not possible for me to receive that higher level of care at the moment. This was very difficult for me to hear, because I thought I had been doing so well. We discussed their concerns, my thoughts, and talked about different options. In the end, we decided to continue working as we have been.
My two biggest struggles right now seem to be getting out of the weight loss mindset and figuring out how to get all my meals and snacks per my meal plan in when I’m at work and we are too busy for anyone to step away for a few minutes. Does anyone have any suggestions?

I don't know if there are people on here who have a lot of time in recovery. I was just wondering if there ever comes..."
Hi Laura,
I think everyone recovers differently and at different speeds. I know some people who recovered fairly quickly compared to me and a few others who have been in recovery longer than myself who are still working on it. I also know some who say they are fully recovered and do not have any ED thoughts or behaviors anymore, and some who say they catch themselves on rare occasions having an ED thought. I’ve also had some tell me they do feel pretty and love themselves now, while others say, similar to you, they feel indifferent about themselves.
Just keep taking everything one day at a time and do your best not to be too hard on yourself. 😊


Hi Michelle,
Thank you. I appreciate your suggestion.
I do bring all my snacks and have them on my unit, in an easy to get to spot. There are just some days when I an unable to walk away from a situation, and unable to get my snack. I'm not able to carry it in my pocket otherwise I would.
Something I was able to do this week at work was be more assertive. I told my co-workers (some know about my ED, while others don't) I couldn't help at certain times if I knew my helping would get in the way of my meal plan.

Thank you, Melody. Honestly, things have still been a little rough, but I'm trying to get back on track. Unfortunately, due to our schedules, I'm not able to see them more often. I'll be okay, I just have to get myself back on track, and then stay there. It's not going to be easy, but somehow I have to do it, right?

Thank you, Melody. 😊

Does anyone here have family who just doesn't seem to respect your wishes/boundaries of not talking about your ED triggers? My mom has really been triggering me lately. She has been talking about what she weighs, how much weight she needs to lose, good food/bad food, counting x, and more. I have asked her nicely several times not to talk about that stuff around me. I have gotten into arguments with her. I have not responded to her when she talks about these things. No matter what she is still talking to me about this stuff. I finally told her today that she is displaying ED behaviors and she blew me off saying, "No, I'm not. I'm being healthy." I'm just not sure what to do. Any suggestions?

Books mentioned in this topic
Daring Greatly: How the Courage to Be Vulnerable Transforms the Way We Live, Love, Parent, and Lead (other topics)Almost Anorexic: Is My (or My Loved One's) Relationship with Food a Problem? (other topics)
Goodbye Ed, Hello Me: Recover from Your Eating Disorder and Fall in Love with Life (other topics)
Mom in the Mirror: Body Image, Beauty, and Life after Pregnancy (other topics)