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Putrino had been working on a project for dysautonomia patients with Amy Kontorovich, a genetic cardiologist at Mount Sinai who studies the condition and has treated hundreds of patients with it. (After they met, Kontorovich ended up diagnosing and treating Putrino’s wife, who has a form of Ehlers-Danlos syndrome.) And so, as the team showed him the cases, Putrino told me, he felt a leap of recognition. “I looked at the symptoms and was like, ‘Oh my god.’ And I called Amy and said, ‘Help.’ ” Kontorovich recalls that as she learned about long COVID, she had a sinking feeling. “If this is ...more
The Invisible Kingdom: Reimagining Chronic Illness
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