Rage and anguish exist underneath the veneer of niceness, no matter how sincerely a person mistakes the facade for her true self. “My mother is still alive, and I love her dearly,” says the sister of a man diagnosed with ALS two years ago, “but she is very domineering, superficial in her understanding of emotions and insensitive to other people’s needs and wants. She does not allow you to have your own self. It was very difficult to find your own identity with my mother. When I consider my brother’s illness, I think we all did our work to figure out how to become separate individuals. It’s
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