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Incredible book by someone with an incredible life.
Ariel Henley, and her twin sister, Alixandria, "Zan," were born with crouzon syndrome, a genetic issue where their skulls were fully fused at birth. Already a miracle, they were the first twins to survive the difficult diagnosis and it wasn't without a lot of struggle and surgeries. As babies, children, teens, and into their early twenties, they each underwent surgeries to break their bones and allow for more growth for their developing brains, ...more
Ariel Henley, and her twin sister, Alixandria, "Zan," were born with crouzon syndrome, a genetic issue where their skulls were fully fused at birth. Already a miracle, they were the first twins to survive the difficult diagnosis and it wasn't without a lot of struggle and surgeries. As babies, children, teens, and into their early twenties, they each underwent surgeries to break their bones and allow for more growth for their developing brains, ...more

Teens and adults alike would be moved by this engaging, honest, and inspiring memoir. The author, Ariel Henley, and her twin sister, Alixandria, "Zan", were born with Crouzon Syndrome, a diagnosis that means their skulls were fully formed at birth. They were the first set of twins to survive the syndrome, and underwent numerous surgeries to break the bones in their skull to allow for organ development and growth. They also went through many cosmetic surgeries to reshape or reform parts of their
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Mar 31, 2023
Emily Riley
marked it as to-read