I think this is by far one of the best books I have ever read. It’s up there with A Man Called Ove, The Perks of Being a Wallflower and even Ann of Green Gables – the only thing in common being how much I loved the character, and the supporting characters who helped the MCs overcome the obstacles that life has thrown in their path.
Melody was born with cerebral palsy. Her parents watch as other babies and children develop and Melody does not. She is ten years old and in fifth grade when she tells us her story.
Melody has severely limited control over her bodily functions. She can’t hold things, sit or stand up, speak, or do more than partially control her thumbs. She cannot control her spasms or her drooling. However, Melody is intelligent, sharp, and sensitive; she sees colors in music; she absorbs knowledge from the television, and a love of words from the books her parents read to her as a small child. Her adoring parents are supportive and nurturing. Although they sense her intelligence, she is unable to communicate her thoughts, feelings, or needs to them. Mrs. V, their neighbor, is her Anne Sullivan. One or two teachers in her school and Catherine, the college student who becomes her classroom aide, are supportive, but for the most part the rest of the world is horrid or at best, indifferent. Hey, wait a minute, I’m sad to say that if we weren’t reading this book, that might be most of us.
There is much subtle drama in this book, and much joy. We can feel Melody’s suffocation and frustration, her embarrassment of the sloppy task of being fed in front of others, being confronted with a steep staircase leading up into a restaurant where the rest of her classmates are already seated, shame at her lack of ability to control her spastic attacks and drooling in front of her classmates, desolation at being dismissed or condescended to, of not being able to tell her parents how much she loves them and how much she appreciates everything they do for her, terror of finding herself face down on the carpet like a turtle flipped onto its shell. These are only some of the emotions expressed. There are predictable heartbreaking moments in this story, but there are also moments when you want to jump out of your chair to clap and cheer - and others when you want to take your fist and punch the wall. One of the most difficult things to read was the indifference to her feelings – like she was invisible, deaf, dumb, and blind – even after she proved time and time again that she was the smartest person in the inclusion class. Stephen Hawking became an inspiration to her when she realized that if she had a computer operated speech and language board on her wheelchair, she would finally be able to communicate her thoughts, feelings, and needs to others. It wasn’t easy getting her family and mentors to understand what she wanted, but once they understood, they moved mountains for her to get that board.
The cover of this book is perfect – a fish out of water is only part of the story, a fish trapped in the fishbowl, perhaps another part. Described as realistic fiction, this book is so much more than the sum of its parts. We dread the inevitable, and there is much inevitable, we cheer with every success and get pissed-off at anyone who dismisses her or stands in her way….
I hope I become a more sensitive person after reading Melody’s story. I don’t believe I would have the strength to walk even a tenth of mile in her shoes.
At the end of the book there are study/book club questions for discussion. I found it interesting that there was no question for discussion regarding Melody’s own attitude, opinions, or feelings toward the other students in class H-2, where the special students were taught (if you could call it teaching). I mention only because Melody was preoccupied with how she was viewed by other able-bodied classmates but I thought I detected some observations of her own regarding some of her H-2 classmates. Human Nature might also be a point for discussion within a sociological and/or anthropological context.
This was a buddy read with my ten-year-old granddaughter, while I was visiting. I devoured the book in just a few hours and I’m not sure that she ever caught up with me or finished. I tried to interest some of my other grandchildren, but I think that Rick Riordan overshadows (sigh!).