I enjoyed the book, but not as much as my daughter. I'm not sure what I was hoping for, but I think I'm at a point in my life where I wasn't ready for this book or his insights. Not that I don't appreciate them, because I do. Perhaps, I didn't care for the layout, I think I would have a more timeline approach, starting with his birth and perhaps more insights from his parents and what they went through raising this child with half a heart. Sometimes I felt disconnected as it jumped from his blog, which I enjoyed reading, to other comments, time memories. Probably that is what it is. Since I read blogs, and blog a bit, I enjoy the day to day insights and when it gets interrupted I get confused and have to reorient my brain. Maybe the nurse in me wants to understand more, but when I look and the diagrams, I don't understand the procedures done to keep him alive. Part of the miracle of modern medicine, and generally I can figure it out. I studied the diagrams and I still couldn't figure out how they shunted blood around so he could live.
Overall if you want to read an inspiring book about life and living, death and consequence this will give it to you. I loved a concept in the book about sometimes in medicine everything can seem to go right and the patient still dies, and sometimes you have no idea how someone would ever survive and they do. It lets you know that God's hands are involved in the grand scheme of things. We are only there to try to help the miracles that need to happen, have a chance, the rest is in his hands. I have seen it, been there, witnessed the miracle of birth, and the miracle of death. I finished reading another book that talked about 5 kinds of healing. I think this book shares them all,
1. The healing done naturally by the body, our own immune systems
2. The healing of modern medicine
3. The healing of miracles that can not be explained by the two above
4. The healing of the soul and heart given by the grace of God and his love for us and the Atonement of Jesus Christ.
5. The healing of death.
We don't often think of death as healing, but when one suffers, or is suffering death is healing, even when those of us left behind can't see it, understand it or explain it.