This was such an amazing, thought-provoking book, and I'm still unpacking all my feelings about it.
(Spoiler alert: they're 99.9% GOOD feelings.)
So basically . . . it's the story of a sick boy and a sick girl who meet at the hospital. Sasha has Gaucher disease and Isabel (Ibby) has rheumatoid arthritis. They form a bond. Become best friends. Fall in love. Also--they don't die at the end.
Which, until I read this book, I didn't realize what a huge, gaping hole there is in sick-kid representation in YA and even general fiction (obviously, that's a blind spot of mine cuz I'm not chronically ill, and I realize & accept that). It seems like it's ALWAYS gotta be "#edgy #boy or #saintly #pale #girl with a fatal sickness, who will fade into oblivion by the end but leave the protagonist Forever Changed," or what have you. Most of which books are written by HEALTHY people who are, y'know, lowkey fetishizing the whole "only the good die young" thing. Sooooooooooooooooooo--yeah. Sick Kids in Love being an own-voices book about sick folks who deal with challenges that *don't* kill them--that's actually revolutionary and I am Here For It.
Sasha and Isabel's perspectives really opened my eyes to the prejudices chronically ill people are forced to deal with. Like Ibby's dad won't even allow her to say she's SICK in his presence, which, given she's dealing with never-ending pain and fatigue and occasional full-on collapses, seems utterly OUT OF TOUCH WITH REALITY????? And he's all "don't define yourself by your illness," which, again, as Sasha says--"what does that even mean?" And then Isabel's friends are constantlyyyyyyyyyy trying to guilt her into doing stuff that will make her pain worse ("come skiing with us! come skating with us! you're our friend so you have to enjoy the same things we enjoy!") They never even seem to consider--not for one second!--that maybe being friends with a chronically ill person is more about being THERE for them and participating in the non-physically-demanding stuff that THEY find pleasurable, instead of insisting they participate in all your "healthy person" activities to fulfill some arbitrary vision of "living life to the fullest." Which, again, and I'm pretty sure good ol' Sasha says this at one point: What does living life to the fullest even MEAN?
This book comes down solidly on the side of "living life to the fullest means being with the people you love," even in quiet or 'boring' circumstances, even on days that don't feel much fun. There's this brilliant, brilliant scene where Isabel goes to Sasha's house for the first time, and she's like, I hate to spoil our date but my joints really hurt right now--and Sasha doesn't even skip a beat! He encourages her to go take a hot bath to soothe her arthritis while he sleeps off his chronic fatigue . . . and then, when they're both finished, they just laze around and watch horror films on Netflix together. It's simple. It's peaceful. It's purely what THEY want, not what somebody else tells them is 'fun.' Best. first. date. ever.
[That was the moment I decided I shipped these kiddos to the moon and back. <333]
My heart ached for Isabel, for her pain being constantly stifled & ignored by the people around her, even her so-called friends. Everybody EXCEPT Sasha. It was such a huge relief when she started hanging out with Sasha more and more--not like he's perfect (he ain't, he's human), but at least he u n d e r s t a n d s.
At the end of the book, Ibby does cut off her worst, most insensitive "friend," and she does call out her other friends at least to a degree . . . although I wanted her to say MORE and be louder about it . . . but hey, at least she said something. (I was super annoyed at Maura, in particular, "We're sorry we treated you badly but we didn't KNOW you didn't like being treated that way, how were we SUPPOSED to know"--um, girl, USE YOUR FREAKIN' IMAGINATION. *huffs @Maura*)
Okay, so I've said a ton about the sickness/disability rep but I haven't really given you an idea of what these characters are like, personality-wise. Which must be remedied!! Because their personalities are vivid & great!!!
- Isabel: highkey ME, cautious, anxious, overthinking, afraid of the future, studies hard, wants to curl up with a good book, will fight you over a good book.
- Sasha: soft, pure, but also annoying, but also pure, talks too much, kNITS, lENDS YOU HIS COAT, wHAT MORE DO YOU NEED TO KNOW
[also can I randomly say here, I loved the casual LGBT representation; as in, quite a few of the side characters were gay, and they never gave an 'explanation' for themselves, like "why are you allowed to be gay, this isn't a Gay Book," they were just THERE, which pleases me muchly.]
I really, really loved the chronic illness storyline and the way it challenged me to explore my own prejudices, but I loved just as much the solid relationship development between Isabel and Sasha. They are suuuuuuuuuuuuuch a good example of how two damaged people (and aren't we all? in some way?) can still build a strong romance, if they're willing to work at it. They are so sweet and supportive of each other, and so respectful, even when they argue.
Here's one thing I found incredibly convicting, in a good way: Sasha was willing to change his bad side for Ibby, but Ibby took much longer to change her bad side for Sasha, because she was afraid of changing her identity for a boy, yet--here's the key--she didn't realize that her idea of "her identity" was wrapped up with some Actual Toxic Crap. Like pervasive self-hatred and self-doubt and crippling fatalism, stuff which [she eventually figured out] would sabotage not only her relationship with this guy, but HER ENTIRE LIFE, if she kept holding onto it.
It's subtle, but it's totally awesome. She goes from "you can pry my anxiety and chronic indecision out of my cold, dead fingers!!!" to "wow, actually, I'm tired of my anxiety and my chronic indecision and I think it's time I chucked 'em overboard." She goes from somebody deathly afraid of change, to somebody who actually embraces change. And sure, Sasha is the catalyst for all that--but Ibby's not doing it for Sasha. She's doing it for herself.
There's one beautiful, beautiful line in here I'll remember for the rest of my life:
"I think I need me to be someone that I'm not."
Because it's not about who other people need you to be. It's about who YOU need you to be--only sometimes, that isn't the person you thought you were. Sometimes, it's somebody bigger. Brighter. Braver.
Happier.
So, I think you've gathered by now, this book is heckin' awesome, and I recommend it to every single person on my friends' list, as long as they're okay with the content I hereby list below:
[semi-frequent swearing, including some use of the f-word (most of it in Ibby's internal monologue), some fairly mild kissing, one shirtless scene, and one implied but invisible sex scene. as in, they have sex but you only hear about it afterwards.]