RICK “SHAQ” GOLDSTEIN SAYS: “THE AUTHOR & I HAVE KNOWLEDGE BY EXPERIENCE, AND NO KNOWLEDGE BY DESCRIPTION CAN MATCH THIS.”
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Five-and-one-half years ago I almost died during brain tumor surgery. Going into brain surgery, you would think that my fear of dying was my biggest fear… but it wasn’t! I told my son Justin that I wasn’t afraid of dying, because I know I raised him correctly, and he became the man he is today… and being the man he became, I was prouder of him than anything I had ever done in my entire life… so I knew he would be ready to carry on. I also was able to say goodbye to him the way I wanted to, as the second’s ticked away leading to my surgery. A lot of people watch too many movies, so they think everybody gets to be like John Wayne… and get to give a big emotional speech as they die in someone’s arms. My absolute biggest fear… which I told my son, and my brain surgeon… is becoming a “vegetable”… or having this super-fast brain I was blessed with… locked in a body… and not be able to communicate. I made my son promise to tell me the truth, and not lie to me after the surgery, if I made it through, and couldn’t repeat certain key statistics to him such as all fourteen Major League ballplayer’s who won the triple crown.
I survived the surgery (I wasn’t told for three weeks about what really happened during the surgery.) despite some unexpected developments, including bleeding in the brain, which occurred during the surgery. When I was allowed to go home, I didn’t know what Jello was… I didn’t know what a lamp or dresser were… I didn’t know what a bagel was. And probably the most heart-wrenching memory “shortcoming” was that periodically I knew who Justin was… but I couldn’t remember that he was my son. It was the most frightening thing I had ever experienced… and remember I just went through major brain surgery. I had always felt such empathy for the poor human beings that suffered from the ever growing curse of Alzheimer’s disease. Many people wonder, “What does that feel like?” Here’s the best way I can explain it to you from firsthand knowledge: IT’S LIKE OPENING UP A FILE CABINET DRAWER TO GET SOME INFORMATION THAT’S IN A FILE FOLDER. YOU KNOW THE FILE FOLDER IS IN THERE… BUT THE DRAWER IS TWELVE INCHES DEEP… AND YOU CAN ONLY REACH IN TEN INCHES. IT DOESN’T MATTER HOW HARD YOU REACH… IT DOESN’T MATTER HOW HARD YOU STRETCH… YOU CANNOT REACH IT! That’s what it feels like, when your brain no longer automatically gives you information you know you have… but can’t get at.
The author, Canadian writer Howard Engel, is the creator of “the beloved detective Benny Cooperman series.” Howard did not have to count down the hours and minutes to brain surgery… he simply went to bed one night… woke up on July 31,2001, went to the front door to pickup his newspaper, “and it looked the way it always did in its make-up, pictures, assorted headlines and smaller captions. The only difference was that he could no longer read what they said. The letters looked like Cyrillic one moment and Korean the next. Where he could make out the text, the letters of the words appeared as though he was trying to make them out through a heat haze; the letters wobbled and changed shape as I attempted to make them out.” He was put in the hospital and was diagnosed as having had a stroke, which resulted in alexia sine agraphia, which means he can still write… but he can’t read… what he just wrote!
Howard leads you through a very brief tour of his early life in which he informs the reader that his absolute greatest passion in life has always been reading. Now, about the stroke he says: “which put us out of the writing business by robbing me of the thing I loved above all things: the ability to read.” To me, the real benefit to potential readers, is understanding a phrase I learned in a book written by a religious author, who stated one of the first steps in coming back from a major health/physical setback, is “ACCEPTING THE NEW NORMAL”, and Howard shares his courageous adjustments utilizing the same theory. Howard finds out that in addition to not being able to read… he can’t seem to remember people’s names and match them with faces. He experiences the EXACT SAME HEARTBREAK AS I DID with his son Jacob. “When asked, I think I was unable to pinpoint my exact relationship to Jacob, which puzzled me more than it alarmed me.”
Howard starts devising tricks to help his memory of people’s names… which offices to get to by remembering pictures on the wall… he overcame his initial fear of using a computer again, and has worked extremely hard to identify patterns in words to slooowwwlllly identify them. Howard has not only written the book I’m reviewing, but he has painstakingly taken this horrifying personal experience, and used characters and knowledge he’s picked up along the way, to write a new Benny Cooperman book, built around a plot in which Benny has a serious brain injury, and has to solve the mystery of how he wound up in the hospital, without leaving the grounds.
I feel this very short book would be very helpful to any patient or family member that is facing brain surgery, or overcoming any type of stroke. It gives hope and guidance without a single instruction… Howard just shares with readers the notes he took along the way. And by the way… I am cancer and tumor free five-and-a-half-years later… and MY SON JUSTIN is my best friend in the world! I have been blessed!