Endometriosis: Understand your symptoms, get the right treatment, reclaim your life

by Jen Moore

'Comprehensive, accessible and incredibly useful' – Naga Munchetty, BBC Radio 5 Live

Have you struggled to get diagnosed, be believed or get the right treatment for endometriosis? This book is for you.

We still don't know what causes endometriosis, and we don't know how to cure it either. What we do know is that it can cause debilitating pain and seriously affect mental health. Endometriosis is not 'just a bad period'; it is a whole-body disease which is as common as asthma or diabetes, affecting 1 in 10 women. Yet it is barely covered in medical school, leaving sufferers repeatedly dismissed when trying to access care.

Backed with up-to-date scientific knowledge and interviews with endometriosis specialists and those affected by the condition, Jen Moore gives you all the tools you need

- Understand what endometriosis is (and what it is not)
- Deal with the system and get a diagnosis
- Navigate the ins and outs of surgery
- Cope with physical and mental pain
- Fight for better endometriosis care

This beacon of hope is your go-to guide to endometriosis, getting the care you deserve and finally feeling seen and heard.

Genres: Nonfiction, Health

304 pages, Kindle Edition

Published June 19, 2025

Reviews

[Jéssica Pedro]

"It has taken so much from me that sometimes, when I stop and think about it all, I struggle to breath. Beyond the physical symptoms, the pain, (...) this disease has impacted every single aspect of my life. (...) my faith in so many things, my dream for a future that I'll never have - it's a pain that is next to impossible to describe."

❤️‍🩹

[Megan · Rating 5 out of 5]

There are few books out there that truly capture the realistic journey for those suffering with Endometriosis. All too often, we find ourselves hoping for scientific backed research and anecdotes from well respected doctors that can help support us through. Instead, we stumble upon harmful misinformation that strongly insists it is factual and that no other way of thinking is correct. Endometriosis is a condition that its sufferers have to research in order to understand it and its terrible impact on the body. It is also a condition that is rife with medical gaslighting.

This book does not do that. This approach to discussing Endometriosis and refusing to adhere to the “taboo” nature of discussing female anatomy and the impact it has on so many women is incredibly refreshing. We are given factual information supported by reliable sources, information and stories quoted directly from leading specialists in the field who respect patients and their experiences, and supportive stories from sufferers themselves. We get to see every facet of a sufferer’s journey - from pre-diagnosis, the gruelling fight for diagnosis and the reality we are forced to deal with post diagnosis too (from gaslighting to inadequate care to the belief that it’s still all in our heads).

I can only thank Jen a million times over for carefully and thoughtfully curating this book and making it the holy grail that it is. I have dipped in and out over the course of a few months, expanding - and correcting! - my knowledge and seeking reassurance when my personal journey felt too much to deal with. This book is the first one I have read that actually provides information I can use on my own Endometriosis journey - information that can help benefit me in the long run through self-advocacy but also the confidence to know that I can push back when care is not adequate. It provides me with reassurance that the battles I have had to fight, and still do, are not ones I have to deal with by myself. It provides me with the plain truth that I am not alone.

To have a book that makes you feel seen is a very special thing. The fact we not only get that here but also experience validation for what we experience … well, that’s everything.

⭐️⭐️⭐️⭐️⭐️/5

[Gem ~ · Rating 5 out of 5]

A very thorough and up-to-date delivery of current research, advice and support for all with endometriosis. It covers important points on the current system including waiting times, diagnosis, gaslighting, symptoms, management, surgery, etc.
What I particularly liked was that there's a meaty section on extra-pelvic disease especially Thoracic Endometriosis and the specific challenges that come with this for accessing the current system and getting vital specialist care, something that took me 5 years of self-advocating to get.
It covers interviews with specialists and with those who have been affected by the condition, producing a representative and comprehensive guide.
This is the book I wish I could have read five years ago.

[Claire Robinson · Rating 5 out of 5]

A must-have book for anyone with endometriosis (suspected or diagnosed) and their loved ones.

Such a well-researched, well-put together book that includes so much eye-opening and necessary information about a truly horrendous disease. From what it is to ways to manage it, how to advocate for yourself and problems getting a diagnosis AND MUCH MORE!

We are lucky to have Jen fighting for better endometriosis awareness and care 💛

[Christine Bobby · Rating 5 out of 5]

I definitely recommend this book to anyone diagnosed or suspects they have endometriosis, caregivers, or anyone interested in accurate and up to date information about endo. Jen did a fantastic job with literally every aspect of this book and I so appreciate the intersectional inclusion!

[Victoria Wilson · Rating 3 out of 5]

I really wanted a lot more than what this book gave. It was 90% a patient complaining and 10% helpful information.

[Jenn Kause · Rating 5 out of 5]

4.5 stars

I've had endometriosis since I was 12; read a lot of books about since I was 18. This one I think is a really great addition in the sphere of knowledge regarding endometriosis. I learned some new things, which is always great!

I am very much a footnote person so I was bummed to have to always go to the Index (even on a Kindle) to understand what particular studies she was talking about, and while I do think there is some valuable studies here they didn't go into too much depth. Granted this book is by a endowarrior and not a doctor, so makes sense. She does understand a lot from the spoonie side of things, which is just as valuable.

I also think this is a great book to start with alongside some others. Particularly for me, this book I think reads better as a follow-up from some of the other introductory ones, as it expands a lot more into different areas and is less of a soft introduction. Regardless, I still think extremely valuable and one I will recommend to others!

[Elke Swinnen · Rating 5 out of 5]

This book has helped me so much. It helped me validate my feelings and pain, it helped me to understand and navigate the rollercoaster of emotions I’m feeling every day, and it helped me to voice all of this to my husband, friends, family and network in general.

I love how Jen shares her own experience, her history with gaslighting “experts”, her hysterectomy, and the way it’s impacted her relationship. At one point, there’s an interview with her partner which had a big impact on me. I hadn’t really talked to my husband like that before and we now planned on going through these same questions as well.

If you have endo or if you don’t, if you know someone with the disease, or if you’re a doctor seeking to understand the disease better from a patient’s POV, this is absolutely the book you need.

Thank you Jen, for this beautiful gem. 💎

[Sarah Mather · Rating 5 out of 5]

This book has help me understand a lot more about what’s happening with my own body. As being treated for Endo in February 2024 I’m only now in September 2025 having a follow-up appointment after having a scan diagnosis in February 2025.
This book can be read by not only the person who has endometriosis but also their family, friends and partners to better understand what we go through.
It has helped me understand what questions to ask when having my follow-up appointment and how to make sure my concerns get across.
It has also help me understand how to talk to others about having endo and especially how to communicate my concerns with my partner who has been amazing through my diagnosis and my flare ups.
This is a must read!!!

[Sam · Rating 5 out of 5]

This is the information I wish I had 15 years ago! ⭐⭐⭐⭐⭐

I cannot recommend this book enough, whether you are already diagnosed with endometriosis, fighting for a diagnosis or are a family member/friend or even work in the medical field. This is the most up-to-date, well-researched, and presented book on endometriosis that I have read, and it includes some excellent resources for those of us navigating everything that comes with this condition.

And, honestly, it is so refreshing to read a piece of literature that makes it very clear that this disease is not a gynaecological one, but a full-body one.

[Emma · Rating 5 out of 5]

Wow, such an informative, well researched and well presented book! I bought to help prepare for my second laparoscopy and help understand my symptoms better and help deal with my day to day life with endo on the run up to seeing a specialist (despite convincing myself I probably don't *actually* have endometriosis, and the expert will think I'm silly). I'm now also wondering if I have adenomyosis too, because of past symptoms and what Jen described in this book. who knows. I wish I'd had this 5 years ago

[Emily Bird · Rating 5 out of 5]

I wish I'd had access to this book when I first had symptoms (19 years before my diagnosis). I will be buying a second copy to give to my doctor.

Jen uses research and case studies to highlight the physical, mental, emotional and intersectional aspects of this disease, which affects more of the population than are affected with hayfever. She clearly and succinctly describes treatment options as well as how to advocate for yourself or for a loved one. A must read.

[Ari Imi02 · Rating 3 out of 5]

I loved this, to the point where goosebumps appeared every time I resumed. I felt seen and understood reading this, journal like piece. It was so informative yet simple to understand. Every chapter was supportively and gentle with the diagnosis. I’m glad that the condition is being recognised and Hope that there is a cure to help combat the disease. I especially appreciate the idea of creating templates for victims to utilise and amend as necessary.

[VK Ireland · Rating 5 out of 5]

A comprehensive and very helpful book on endometriosis. As somebody who was recently diagnosed with endo this was invaluable to me, with heaps of up to date research and information, as well as being so emotionally supportive it brought me to tears a few times. I feel better prepared for whatever happens to me in the future, and I'm grateful beyond words for that.

[Amy Cook · Rating 5 out of 5]

This book has made me feel so validated in my experiences. After a confusing and disjointed diagnosis over 5 years ago, and then being left to my own devices, I've been winging it ever since. This has brought me clarity in ways I didn't imagine, and has re-established my want to fight for myself medically again, with new doctors and new consultants to get the answers and treatment I deserve.

[Emma · Rating 5 out of 5]

This book is phenomenal. Not only did it teach me so much about this horrific disease and how to advocate for myself, but it also provided me with so many stories that made me feel less alone. From the physical to the mental, this book covered everything, including medical professionals. Thank you Jen :)

[Joanna Hadler · Rating 5 out of 5]

Love love love this book! It doesn’t promise a cure (which so many books do), it offers support, empathy, tips and as much up to date information as possible. I will be reading again and again. Made me feel so validated. Thank you for writing this book Jen!

[Library Mouse · Rating 5 out of 5]

Incredibly accessible, empathetic, thorough, and up-to-date. As an endometriosis patient currently stuck in NHS waiting list hell for surgery number three, this book made me feel less alone, more informed, and empowered to take charge of my care.

[Jess Goddard · Rating 5 out of 5]

100% recommend for anyone wanting to learn more about endometriosis. Jen kindly and calmly guides you through learning without sugar coating facts but with gentle humour that keeps it from being too overwhelming. Well researched and trust worthy.

[Cristina Costache · Rating 5 out of 5]

I loved this💙even if the introduction should be amended as it doesn’t do it justice, it’s such a useful book and I will recommend it to all teens I keep suggesting they have endometriosis and being the first one both them and their parents hear this from.

[Valentina · Rating 5 out of 5]

incredibly well written and informative. it teaches the reader factual knowledge about endometriosis as well as empathy and understanding for oneself and others.

[Dani G · Rating 5 out of 5]

Hugely informative and validating. I only wish I’d had this book sooner!

[Kimberly Avery · Rating 5 out of 5]

Great read. Extremely validating and provided insight I was previously unaware of. Really explored all aspects of the disease.

[Clare D]

this bummed me out

[brooke ‧₊˚ ☽ ⋅ · Rating 5 out of 5]

★ 5 stars

—— This has been the best book I have read on endometriosis. It was informative and realistic but not to the point of creating anxiety like other things I have read. It is sad that this book is so needed and I hope one day it is not needed but in the current time it has given me a lot of knowledge to understand this condition.