Childhood Interrupted: The Complete Guide to PANDAS and PANS

by Beth Alison Maloney

Has your child suddenly changed? A host of behaviors—OCD, Tourette’s, anxiety, depression, tics, eating disorders, hair pulling, bedwetting, mood swings—are often symptoms of an undiagnosed infection. The correct diagnosis is PANDAS or PANS. In Ms. Maloney’s straightforward and clear writing style, she what is it, how it makes your child sick, available treatment options, finding and working with the right doctors, dietary interventions, finding personal support, arranging the correct therapy, hospitalization, your child’s legal rights to obtaining an education, and how your child will recover. Top medical experts in the field offer their insights and share their approaches to treating the disorder. This book offers a roadmap to recovery with all the answers you and your doctor need.

Genres: Nonfiction

294 pages, Paperback

First published October 17, 2013

Reviews

[carole williamson · Rating 4 out of 5]

Understanding Pandas! I had no idea this even existed until we had a diagnosis of it. This was an interesting, educational read!

[Averie · Rating 4 out of 5]

I have PANS, the author is very set when talking about Titers and strep. She is most likely semi biased due to her son Sammy. I’ve had symptoms since 5 I was diagnosed with an autoimmune condition two years later ( JIA). But of course I was in elementary school super normal for me to get sick easily. I had strep a mass amount during those year my primary doctor was not very giving on Antibiotics. 8 Years later I had been to the psych ward 3 times in one year. In total I stayed for 3 months. I have a psychiatrist who doesn’t believe in it but my new primary doctor believes in it due to personal experience. I had been in 7th grade when I got mycoplasma pneumonia 4 TIMES. I had really bad psychiatric symptoms and my rheumatoid arthritis and my disautonomia were in a flare. Sooo 😑 I Don’t love certain parts of this book because my doctor when I was five only thought PANS PANDAS were caused from strep but she still denied. But I have “ proof” blood work wise BUT NOT A TITER I forget how this was leveled but I had mycoplasma pneumonia in my blood. Plus I was denied treatment due to me not having tics and then of course I developed 3 years after that appointment. BUT SOMETHING I CAN TELL PARENTS CHILDRENS HOSPITAL DOES NOT BELIEVE IN ANTIBIOTICS WITH PANS PANDAS THEY ONLY GIVE YOU PSYCHIATRIC MEDICATION.

[Jean · Rating 4 out of 5]

An excellent resource for parents and teachers.

[Debbie · Rating 5 out of 5]

What could be better than having the country’s leading advocate, a mom who’s lived your journey, sitting beside you, helping you navigate the complex ups and downs of your child’s illness? That is what this book will do for you. The tips on working with doctors apply to almost every illness. If you find yourself struggling to find a sympathetic ear look no further. And take advantage of one mom’s struggle to learn how to navigate the medical world with simple tips on how to be successful advocate for your child.