Understanding Rett Syndrome : A Practical Guide for Parents, Teachers, and Therapists

by Barbro Lindberg

Rett Syndrome is a severe neurological disorder whose cause is currently unknown. It leads to a variety of problems, often involving retardation, serious motor handicaps, epileptic seizures and difficulties with communication. The syndrome is found only in girls, and usually only becomes noticable during the second year of life. The disorder is estimated to occur in one out of every 10,000 female births worldwide, but as the characteristics of the problem are becoming more widely known, new cases are being reported at an increasing rate. This work on Rett Syndrome attempts to explain the problem and the implications for the individuals involved, their parents, teachers and those who work with them. As no cure is available yet, medical science has little to offer in the way of help to the families involved. This book provides practical insights and techniques for those working with this problem.

184 pages, Hardcover

First published January 1, 1994

Reviews

[Claudia · Rating 2 out of 5]

It had lots of information- but it was outdated. I really didn't like that she kept saying that the girls had mental retardation and that they would stay at a mental capacity of a 2 year old- Because everything else I have learned about Rett Syndrome, they say these girls are very smart and they grow mentally and are pretty much age appropriate. It just seemed like she did this research in 1986 and some of the stuff was very interesting- but it definitely is outdated, considering that so much has been discovered since that time.