Chronic Complex Diseases of Childhood: A Practical Guide for Clinicians

by Shahram Yazdani (Editor), Sean A. McGhee (Editor), E. Richard Stiehm (Editor)

This new book is a practical guide for physicians and other professionals who care for children and adolescents with complex, chronic diseases. These disorders are a challenge because they require multiple services, the information about the disorders are scattered, and the exact treatments are not available in standard texts. To overcome these barriers, this book provides a summary of the clinical features, laboratory diagnosis, and the general and specific treatments needed for optimal care of these children. The key points are presented in a clear, succinct format, providing recommendations that can be implemented within the time span of an office or emergency room visit. Furthermore, pitfalls that are encountered are emphasized and alternatives are suggested. For example, this resource outlines: - Routine and special vaccines that are needed or contraindicated for these children - Interactions between drugs and diseases that could result in surprising adverse effects - Care of medical devices such as gastrostomy tube and nebulizer machine - Specific medical treatment with the appropriate medication dosage - Chronic wound care - Education and rehabilitation recommendations - Patient support groups This book not only provides a disease specific guide, but also instructions for creating a medical home, information on disease-drug interactions, and references for further study.

ebook

First published January 1, 2011

Reviews

[Hal Bass · Rating 5 out of 5]

Albert Einstein once said, "Everything should be made as simple as possible, but not simpler." This is what Drs. Shahram Yazdani, Sean A. McGhee, and E. Richard Stiehm have accomplished with "Chronic Complex Diseases of Childhood: A Practical Guide for Clinicians." The editors, faculty members at UCLA's David Gefffen School of Medicine and its Mattel Children's Hospital, assembled a first-rate group of contributors, almost all of whom are from institutions in Southern California.

The compendium, which consists of 17 sections, begins with a description of the "medical home," defined by the American Academy of Pediatrics as a "model of delivering primary care that is accessible, continuous, comprehensive, family-centered, coordinated, compassionate, and culturally effective," and ends with sections on medical devices, drug interactions, and stem-cell and organ transplantation. The 14 other sections, with their own table of contents, are arranged alphabetically by disease category, from cardiac disorders (starting with atrial septal defect and ending with ventricular septal defect) to rheumatologic disorders (Behcet's disease to systemic lupus erythematosus), into highly readable individual chapters of three to five pages. The one exception is the chapter on thombophilia and childhood thromboses in the hematologic disorders section, which runs to seven pages.

Each chapter is uniformly organized into etiology; clinical presentation and prognosis; presenting signs, symptoms and natural history; diagnosis; management; and pearls and precautions. Lacking in expertise, the busy generalist (whether in pediatrics or family medicine) with a patient in need of a stem-cell transplant, for example, could use this book as a handy resource to familiarize himself or herself with the subject of stem-cell transplantation when talking with the parents or the child's pediatric hematologist.

While "Chronic Complex Diseases of Childhood" is no substitute for a more comprehensive standard pediatric textbook, or for books and monographs devoted to a single group of disorders (e.g., genetic conditions), it should be on the bookshelf of every physician, physician's assistant and nurse practitioner who cares for children.