Epilepsy on Our Terms: Stories by Children with Seizures and Their Parents

Brainstorms

by Georgia D. Montouris, Georgia D. Montouris

This enlightening book presents the firsthand personal accounts of children with seizure disorders and their parents. In their own words, these children and parents vividly describe the experiences of handling the crisis of the initial seizure, adjusting to the diagnosis of epilepsy, coping with seizures, managing medications and side effects, and dealing with health care providers, teachers, schoolmates, siblings, and friends. Reveals the terror, uncertainty, and frustration felt by children and parents after an initial seizure or a diagnosis of epilepsy. Documents the ongoing trials, tribulations and triumphs of coping with seizures, medication schedules and side effects, health care providers and hospitals, schoolmates, siblings, relatives and friends. These accounts provide realistic insights into the myriad issues encountered in living with childhood epilepsy. The book also includes a straightforward medical discussion of childhood seizures, written in layperson's terms by
Dr. Pellock; a glossary of medical terms; and a guide for schoolteachers and parents written by William Murphy, the Executive Director of the Epilepsy Association of Massachusetts. Appendices provide a directory of Epilepsy Foundation of America affiliates; a list of recommended books, publications, and videotapes; and information about the Epilepsy Foundation of America's Winning Kids program.

192 pages, Paperback

First published October 17, 2007

Reviews

[Heather · Rating 5 out of 5]

Don't ask why the sudden increase in interest in epilepsy book. Maybe because with Zach starting preschool soon, we have to create action plans for Zach's teachers. So far this book is great~ just started it at 3am last night and I'm already 1/2way through. It's VERY interesting to read about others' experiences. I learn a lot from it, and it definitely makes me grateful for how lucky we are with Zach!