Chemical Injury Books discussion

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message 1: by Diane (new)

Diane Castle (dianecastle) | 5 comments Definitely looking for some of these books, too. Have a lot of friends on the Gulf Coast who could benefit from them. I wrote one, but it's fiction. Looking for good nonfiction to share.


message 2: by [deleted user] (new)

Diane wrote: "Definitely looking for some of these books, too. Have a lot of friends on the Gulf Coast who could benefit from them. I wrote one, but it's fiction. Looking for good nonfiction to share."

Please post the one you wrote. I read The Toxic Labyrinth when I lived in NM. It was recommended to me by a nurse in ABQ. I got sick in south Texas.


message 3: by Diane (new)

Diane Castle (dianecastle) | 5 comments I will check out The Toxic Labyrinth. Thanks! Thanks also for asking about my book. It's called Black Oil, Red Blood, and is an environmental / legal thriller. Book summary and trailer are at http:www.blackoilredblood.com.

What made you sick? Exposure to oil refinery waste, maybe?


message 4: by [deleted user] (new)

Black Oil, Red Blood Good, I got it to come up and I will look for it. I got sick in summer of 1983 with what may have been CFIDS. I got my CFIDS diagnosis in 1994 from a rheumie. Meantime I was told I had possible brain tumor, they looked for ms which I was told I had ten years later, Meniere's, lupus, it went on and on. If you have read Osler's Web you will know how many of us suffered. I think what really got me was pesticides as the air in the little town where I got sick smelled heavily of pesticides. I crashed to the point I barely knew what I was doing. My asthma flared very bad and I was super dizzy. When I finally found an environmental illness doctor I was reacting to hundreds of things. She treated me for six years saving my life. I have lots of hatred for the CDC and the average doctor. They really let me down but then there are those who died and I somehow managed to live. Thanks for writing a book.

Osler's Web: Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic


message 5: by [deleted user] (new)

As you may know the CDC thought we were a joke.


message 6: by Diane (new)

Diane Castle (dianecastle) | 5 comments Oh yes. The CDC is, of course, a joke itself.


message 7: by Diane (new)

Diane Castle (dianecastle) | 5 comments Average doctors really let me down, too. Gosh, that's quite a lot of illnesses to be dealing with at once. So glad you finally found some good help!


message 8: by [deleted user] (new)

Its just they don't know how to diagnose. That is partly the fault of the CDC saying there is no such thing as CFIDS. Keep hunting until you find an EI doctor. Call the Clinic at Dallas to ask for one in your area. The rest of them can hurt more than help.


message 9: by Diane (new)

Diane Castle (dianecastle) | 5 comments It's true. Doctors don't spend a lot of time keeping up with the latest research. I have found I have to do my own research and educate the doctors. I am seeing a fibromyalgia specialist who is doing a great job right now. Thankful to have found her.


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