Wonder (Wonder, #1) Wonder discussion


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august's face

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Mrs.purple/elizabeth what do you think his face looks like?


Karla Rades His sister kinda describes id dosen't she?


michelle His sister does describe it. It's described as a face melting.


Randy If you google the name of the syndrome (Treacher-Collins Syndrome), you will be able to see real photos of children, and you get a good idea of how Auggie looks.


Lurisse Ann Randy wrote: "If you google the name of the syndrome (Treacher-Collins Syndrome), you will be able to see real photos of children, and you get a good idea of how Auggie looks."

Aww.. just googled that Syndrome and it broke my heart upon seeing those images! I thought of Auggie! Reading this book have made me care for Auggie and all those people being judged by their appearance!

Kinder than is necessary.. :)


Gabby I googled them...wow.


Gabby Yeah. I was scared to look at first, but then...it really wasn't that bad.


Gabby Yeah!


Gabriel Papa i just feel bad for him i would hate to have to be bullied because of my face


message 10: by [deleted user] (new)

It really makes you think twice about a bad hair day or a pimple making you bummed out!!


Audrey Klosterman Sage wrote: "I looked them up... I got freaked out for nothing."

Are you sure? I'm still sorta afraid to.


Audrey Klosterman nevermind. it's not that bad


Gabby It's not :)


Gabby Where?


BookCupid So sad. And no they don't look like Dark Sidious. I wanted to smack Julian for that.


Audrey Klosterman Natali.D (BookCupid) wrote: "So sad. And no they don't look like Dark Sidious. I wanted to smack Julian for that."

IKR?!


Gabby I actually wanted to hit the mother more than Julian. Photoshop August out of the school picture? That lady has to deal with me first.


Jamie Searcy I've worked with a child that has Treacher-Collins Syndrome and their face was as it was described in the book but he had other issues as well. The child I worked with had hands that were not fully developed, was really small for his age, and also severely mentally handicapped. I was not sure if this was because there were different degrees of the syndrome or if it was tweaked by the author.


Gabby August did not have Treacher-Collins Syndrome. The Author said this is the closest syndrome she could find to what August had. She didn't want to go into detail about how August was. The story was not about his syndrome, it was about his life.


Gabby Yeah, but if you go onto the Authors website, she specifically says that he doesn't have Treacher-Collins Syndrome.


Gabby From her website:


What kind of research you did into Auggie’s medical condition?
"I spent a few weeks researching genetics—specifically craniofacial anomalies in children. There are many syndromes out there, all with varying degrees of abnormality. I decided not to get too specific about Auggie’s malady in the book, but in my head he has a severe form of Treacher-Collins syndrome complicated by cleft lip and palate and some other unknown mysterious syndrome that makes his particular condition a medical wonder."


Micah august's face well the author described it as ugly and desformed but when your readin a book you have to look in the words that the author uses and then feel the real person thats what ive learned about readin books but august was a great charchter in the book hes my favorite chachter in the book


Maria Honestly, their faces were not as bad as I pictured Auggie-He had talked about his mouth and how he couldn't chew, the kids faces that I saw seemed to have normal mouths. Maybe Im looking at the wrong thing?


Samantha what is the syndrome called?


message 25: by [deleted user] (new)

Treacher-Collins Syndrome.


Samantha thanks!


Samantha Read Message 30 and it tells you things the author said about Auggie.


message 28: by [deleted user] (new)

Auggie has Treacher-Collins Syndrom but that doesn't explain his ears, right? The book said his ears were like lumps on his head, or something like that. None of the kids on google images looked like that.


message 29: by [deleted user] (new)

Would someone answer my question, please? *Strain from fake smile*


Samantha Idk


message 31: by [deleted user] (new)

*Sigh*


Samantha Like she said, he has a sort of mix of syndromes, so the ears could be from another syndrome mixed i guess


message 33: by Gabby (last edited Apr 19, 2013 08:38PM) (new) - rated it 4 stars

Gabby Allets wrote: "Auggie has Treacher-Collins Syndrom but that doesn't explain his ears, right? The book said his ears were like lumps on his head, or something like that. None of the kids on google images looked li..."

No, as i explained above, he does NOT have Treacher-Collins Syndrom. The author specifically said that was the closest she could to find what Auggie looked like. The reason he looks like he does is because of genes.

Here is what i posted before from the authors website. You can check if you don't believe me.

From her website:


What kind of research you did into Auggie’s medical condition?
"I spent a few weeks researching genetics—specifically craniofacial anomalies in children. There are many syndromes out there, all with varying degrees of abnormality. I decided not to get too specific about Auggie’s malady in the book, but in my head he has a severe form of Treacher-Collins syndrome complicated by cleft lip and palate and some other unknown mysterious syndrome that makes his particular condition a medical wonder."


message 34: by [deleted user] (last edited May 13, 2013 06:25PM) (new)

I don't think it was because of genes. The book specifically stated that no one else in his family had ever looked the way auggies does. I think one of the reasons he looks the way he does is because there was some problem with the pregnancy. Maybe his mom accidentally took a drink of something. I'm not saying that explains everything, but I still think that that could be a possibility.


message 35: by Therealbadkitty (new)

Therealbadkitty I just googled the pictures. It just makes me want to cry.


Samantha Ya me too!


message 37: by [deleted user] (new)

I know, right! It's so sad.


message 38: by [deleted user] (new)

i just want to cry when i see those pictures


message 39: by Calvin (new)

Calvin Staropoli The description of August's face doesn't exactly fit Treacher Collins syndrome. I don't think that it really matters what August's face looks like because you really don't need to know. All you need to know is he is disfigured enough for kids to be scared of him, which is enough heartbreak. You don't need to see his actual face and feel even more sorry for him. If the author had included a picture or drawing of what she thought Auggie would look like, I think it would just be too depressing.


Samantha Ya I know I was hoping she would as I read it but now I'm glad she didn't.


message 41: by Therealbadkitty (new)

Therealbadkitty Lurisse Ann wrote: "Randy wrote: "If you google the name of the syndrome (Treacher-Collins Syndrome), you will be able to see real photos of children, and you get a good idea of how Auggie looks."

Aww.. just googled ..."


It's really disgusting what some people are commenting under the pictures of these kids. It breaks my heart twice.


Samantha Oh I know!! People can be so cruel.


Geeky Spice The heartless and disgusting stuff written really breaks my heart. The poor little girl Juliana Wetmor in particular. If only everyone was kind never mind kinder than necessary.


marise I also hoped for a picture when I was reading the book, but in the end I was happy to have imagined poor Auggie the way I saw him.


Ficie Allets wrote: "I don't think it was because of genes. The book specifically stated that no one else in his family had ever looked the way auggies does. I think one of the reasons he looks the way he does is becau..."
Hi Allets,
there are a lot of factors which could lead to syndromes like Treacher-Collins, or like the made-up one Auggie has, but it is unlikely it was caused by drinking (if that's what you meant) during pregnancy - unless the drinking was really heavy. But from what we know of Auggie's mum, she just is not the type.
Anyway, the book explains that the syndrome is genetic - Olivia says it. The reason why the parents and Olivia do not display any symptoms is that they are immune carriers, which means they only carry one mutated gene (out of two). When two people who each carry one mutated gene for the same illness have kids, the kid has 25% chance to get the "ill" gene from both parents - when it happens, the kid will be affected by the illness, like August. Via knows (she says so) she carries the mutated gene (but only one, which makes her a immune carrier), and that's why she says she'll never have kids - because there is a risk they might look like August.
These gene mutations can happen for a bunch of reasons: for examples, chromosomes can make mistakes while duplicating. This happens more often than one imagines, although sometimes the mistakes do not have hugely visible effects. Often one has no power into preventing these mutations.


Samantha Gabby wrote: "Yeah. I was scared to look at first, but then...it really wasn't that bad."

its not bad they cant help it its who they are they are they are proud of it and if they are brave enough to post pictures to show u what its like then go them


Samantha Therealbadkitty wrote: "Lurisse Ann wrote: "Randy wrote: "If you google the name of the syndrome (Treacher-Collins Syndrome), you will be able to see real photos of children, and you get a good idea of how Auggie looks."
..."

seriously!!! its not bad they cant help it its who they are they are they are proud of it and if they are brave enough to post pictures to show u what its like then go them


Samantha Ficie wrote: "Allets wrote: "I don't think it was because of genes. The book specifically stated that no one else in his family had ever looked the way auggies does. I think one of the reasons he looks the way h..."

right on


message 49: by Rh (new)

Rh Anybody who said "it isn't that bad" hasn't seen Medscape photos :( Like many abnormalities due to a genetic defect, there are varying degrees of manifestation. The worst cases end in death within minutes of birth. The best cases still require surgery and not a great chance of looking "normal".

As a parent of two children with minor facial defects, not a day goes by that I don't blame myself for something I must have done during my pregnancy. My children are very lucky though, so far, and the teasing is minimal and health effects though being monitored are minimal too.

The only problem I have with this book, from the view of a disabled person, is that the whole "sanctified disabled person" meme is tiresome. Disabled people are real people. Maybe the point is that he was homeschooled and in and recovering from surgeries so much, he actually is a *better* person than the average kid? I don't find that to be true in real life, some disabled folks including some with facial disfiguration are not nice people.

Looking forward to someone writing a book about a normal person who happens to have a disability, and ends up being self-centered, nasty, and the main character :)


Angelica Hsueh Does it look scary?


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