Susan Parker's Reviews > The Sacred Disease: My Life with Epilepsy

The Sacred Disease by Kristin Seaborg
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it was amazing

Dr. Seaborg thank you for sharing your story about your life with epilepsy. I, too, have epilepsy. I had my first seizure at about 7 (it was a petit mal one). My first grand mal seizure (collapsing to the floor, losing consciousness and biting my tongue) came at the age of 14. This kind of seizure is brutal, as you well know. It would take me hours to recover. Only my immediate family and doctor knew about my epilepsy. I was too ashamed to confide in anyone else because of the stigma attached to it. I could relate to a lot of things that Dr. Seaborg said. For example, she said she knew all of the hiding places in the hospital in the event an aura came on, which could portend an oncoming seizure. When I would attend press conferences as a journalist, I would take notice of all the exit signs in case I had to get away fast.
When I was growing up, my family usually knew that I would have a seizure before I would. I can still hear one of my sisters telling my mom, "Susan's staring." And I almost always had a seizure that day. I have been seizure-free for almost 30 years. But I still take epilepsy medicine, make sure I get an adequate night's rest and abstain from alcohol. This book is a must read for anyone with epilepsy and for parents of children with epilepsy.
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Started Reading
October 17, 2018 – Shelved
October 17, 2018 – Finished Reading

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message 1: by Gina (new)

Gina Briganti I'm glad this resource is available and that you have found a safe way to live!

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