Invisible Illness Quotes

Quotes tagged as "invisible-illness" (showing 1-22 of 22)
Emm Roy
“Mental illness

People assume you aren’t sick
unless they see the sickness on your skin
like scars forming a map of all the ways you’re hurting.

My heart is a prison of Have you tried?s
Have you tried exercising? Have you tried eating better?
Have you tried not being sad, not being sick?
Have you tried being more like me?
Have you tried shutting up?

Yes, I have tried. Yes, I am still trying,
and yes, I am still sick.

Sometimes monsters are invisible, and
sometimes demons attack you from the inside.
Just because you cannot see the claws and the teeth
does not mean they aren’t ripping through me.
Pain does not need to be seen to be felt.

Telling me there is no problem
won’t solve the problem.

This is not how miracles are born.
This is not how sickness works.”
Emm Roy, The First Step

Jennifer Starzec
“I often wished that more people understood the invisible side of things. Even the people who seemed to understand, didn't really.”
Jennifer Starzec, Determination

Jennifer Starzec
“People who don't see you every day have a hard time understanding how on some days--good days--you can run three miles, but can barely walk across the parking lot on other days,' [my mom] said quietly.”
Jennifer Starzec, Determination

Whoopi Goldberg
“It never occurred to me that somehow women did know about it. It just never occurred to me. Yes I am wearing sneakers too. You are in a suit, I am comfortable. So when she explained to me that this was the first event really of its kind, it floored me. So I called my daughter who is in her 30s now and I said “do you know what endometriosis is?” She said, “what? Have to pack the pack the busters.”

I said “no man, you have never heard of it?” No she said. I do not know what it is, and it occurred to me that my 30-year-old daughter who I told about endometriosis and it didn’t stick. If she didn’t know, and she is one of the hippest people I know, and her daughter doesn’t know, she has 19-year-old and she is a 13-year-old. The boy, we don’t care much about if he knows about it so much. There is other stuff for him to learn. Like how to roll a condom, things like that.

You know, and it occurred to me that if they didn’t know that there were hundreds of thousands girls out there that don’t know. It is not because their mothers don’t want to tell them, because it’s not religion, it’s pure ignorance. We don’t know, we don’t have the information, we have it now, and so now is why this very first gathering is happening. Now is why we’re all sitting here looking really fabulous as you are...

[Whoopi Goldberg on endometriosis awareness from the 2009 Blossom Ball]”
Whoopi Goldberg

Heidi Cullinan
“When you have an invisible disease, your sickness isn’t your biggest problem. What you end up battling more than anything else, every single day, is other people.”
Heidi Cullinan, Carry the Ocean

Whoopi Goldberg
“We have a duty tonight. Everybody, and guys this for you as well because I know you know women. You have a duty tonight. You only have to tell one other person what you heard. Just tell them what you heard, or ask them have you ever heard of this? If the answer is no, share what you learn tonight.

That’s all. You don’t have to do anything else. You just have to tell somebody else. You have to take whatever stigma people think that is there. You have to take it. It’s not male or female. It has nothing to do with that. It has to do with, here’s a disease you don’t know about and you need to know about it. It’s that simple. It’s not rocket science.

[Whoopi Goldberg on endometriosis awareness from the 2009 Blossom Ball]”
Whoopi Goldberg

Sarah Todd Hammer
“I had learned quickly that life doesn't always go the way I want it to, and that's okay. I still plod on.”
Sarah Todd Hammer, Determination

“I am so fed up of having to explain to people that Danny is not just tired; if only that were the case. We have lost friends, good friends, when we ran out of patience with explaining that Danny was off school so much, not because he had friendship issues or didn’t like his classes, but because he had an illness that seemed to be eating him up from the inside, despite it not really being visible on the outside.”
Sonya Chowdhury

Joseph Dumit
“Because doctors can’t name the illness, everyone—the patient's family, friends, health insurance, and in many cases the patient—comes to think of the patient as not really sick and not really suffering. What the patient comes to require in these circumstances, in the absence of help, are facts—tests and studies that show that they might “in fact” have something.”
Joseph Dumit

Andy Carrington
“Invisible illnesses exist - within body and
mind (you just don’t always see the patients taking
their pills).”
Andy Carrington, What's Wrong with the Street!

Kelley Armstrong
“Schizo. It didn't matter how many times Dr. Gill compared it to a disease or physical disability, it wasn't the same thing. It just wasn't. I had schizophrenia. If I saw two guys on the sidewalk, one in a wheelchair and one talking talking to himself, which would I rush to open a door for, and which would I cross the road to avoid?”
Kelley Armstrong, The Summoning

Sarah Todd Hammer
“The video was still playing, although I didn't know why. It seemed as if the able-bodied dancers were mocking me.”
Sarah Todd Hammer, Determination

“Self-stigma can be just a big a problem as the negative attitudes of others.”
Megan A. Arroll

“He said that my problem was that I was perfectly healthy and had the illusion that I would be able bodied forever. I could only begin understanding his problem if I gave up that illusion and that would be very difficult, given how healthy I was. I understand, I mistakenly said, and he said no you don’t.”
James C. Coyne

It is a perfectly normal side-effect for someone to have depression because he cannot move
“It is a perfectly normal side-effect for someone to have depression because he cannot move or function in his job. That is all that it is: a side-effect. Those with disabilities and debilitating illnesses probably have more to get depressed about than others.”
Dominic Hubbard

Jennifer Starzec
“The weekend was a much-needed breath of fresh air; Monday always seemed to not only take that breath right back, but add a few extra pounds to my shoulders as well.”
Jennifer Starzec, Determination

“I hope you are not saying that (ME)CFS patients are not as ill as HIV patients. I split my clinical time between the two illnesses, and I can tell you that if I had to choose between the two illnesses (in 2009) I would rather have HIV.”
Nancy G. Klimas

“Luckily, we are seeing less and less post-exertional malaise, the symptom that stops Danny’s body and brain recovering properly after expending any energy, even just watching TV.”
Sonya Chowdhury

Sarah Todd Hammer
“Dancing with a spinal cord injury is a challenge like no other, but I aspired to prove to myself that I could still be phenomenal dancer even with an SCI”
Sarah Todd Hammer, 5k, Ballet, and a Spinal Cord Injury

Jalina Mhyana
“It dawns on me that maybe I'm just terrifically lazy; that I might be appropriating other people’s invisible sicknesses and disorders and scribbling them on the clipboard at the end of my bed to fool the nurses; so I can indulge in rest cures all day, every day. That I’m even fooling myself.”
Jalina Mhyana

“If I only could explain
how much I miss
that precious moment when I was free
from the shackles of chronic pain.”
J.J.Toivonen

“If I only could explain
how much I miss
that precious moment when I was free
from the shackles of chronic pain.”
J. J. Toivonen