Emma Haslegrave

“A daughter’s decree to Lewy body

It was then that you carried me,
throughout the whole of my life,
keeping me safe and away from all strife.

And now that you struggle with everyday things,
I’ll make sure your safe from the pain that life brings.
And now that your quality and love of life’s gone,
I’ll get you the best from each day till you’re done.

And as people wonder and as people stare,
as you’re talking to things that just are not there.
I will stand beside you and I’ll make them see,
if it’s real to you, then it’s real to me.

And the times that you stumble, the times that you fall,
I’ll make sure there’s someone to answer your call.
And when you are dizzy, scared and alone,
I’ll make sure that kindness and compassion is shown.

When I recently asked you what life had been?
you looked at me sadly and said ordinary.
But I will make sure though the best of you’s gone,
that together we create a legacy that’s strong.

So as comprehension is the last thing to go,
I hope you can hear me, I pray that you know,
It is now that I carry you.”

Emma Haslegrave, Same Destination Different Journey: Lewy Body Dementia: Our Journey
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