Salt in My Soul: An Unfinished Life
Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately rage ...more
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This book is the story of Mallory Smith, who was diagnosed with Cystic Fibrosis at age 3. CF is a terminal, incurable, genetic disease of the lungs and digestive system. She kept a journal on her laptop. Before she had a lung transplant, she gave her mother her password. Her mother waited until Mallory died before opening her journal.
The journal was written by Mallory between the ages of 15 and 25, when she passed. She had a antibiotic resista ...more
SALT IN MY SOUL: AN UNFINISHED LIFE is Mallory Smith's story in her own words. Published posthumously from her journal at her request, Mallory gives the reader a first hand view of her tumultuous short life and battle with Cystic Fibrosis. Diagnosed with the "deadliest strain of the deadliest bacteria known to CF lungs" caused an antibiotic resistant superbug in her system that ultimately ended her young 25 years of life on November 15, 2017....post lung transplant.
As the parent of a child with CF, this is the book I wish all my friends would read. This not only conveys my fears for my child as his parents, but also my hopes and dreams for him to be a "normal" teenager, have his own hopes and dreams, fall in love. All the things that get called into question for the future when a CF diagnosis is made.
The writing is made ...more
This is Mallory’s story, moving, inspiring and terribly sad. It’s also a story that is so very close to home for me, I almost didn’t read it. But it’s the first time I’ve ...more
Until I read Mallory Smith’s memoir, Salt in My Soul , I knew very little about this condition. When I read a review of the book in our local newspap ...more
Immensely positive and determined to live her best life, even in the face of cystic fibrosis and rare bacteria B. cenocepacia, Mallory Smith is a girl everyone loved. From the beginning readers know Mallory tragically dies young; however, it is how she lived her life that will inspire readers. Her "live happy" mantra carries her through frustrating hospital stays and discharges and he ...more
This book is an amazing reminder that life is too short. Material thi ...more
Cystic Fibrosis, which is a progressive genetic disease, is cruel in that it worsens as a person enters what should b ...more
ΦBK, Stanford University, 2014
From the publisher: Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she'd never lead a normal life, Mallory was determined to "live happy," a mantra she followed until her death. Mallory worked hard to make the most out of the ...more
I was not prepared for how I would fall in love with Mallory through each page, feeling as though I was talking to a friend about her daily life and struggles and about boys and friends and family. I was not prepared for how emotional I would feel at the end of the book and how h ...more
I am in awe of Mallory. I suffer from chronic illnesses that are not nearly as severe as CF and she had a better outlook and was more active than I ever was. She even would swim in the ocean!
I am thankful that her mom created this book from her diary entries to give us a more intimate detailed loo ...more
Newly widowed, I couldn't ho the last few chapters . . . residual grief impaled me. The fact I didn't finish, in no way reflects poorly on the quality of writing or the genuine importance of the words written.
I found the second half of the book and the look into phage therapy to treat multi-drug resistant bacterial infections utterly fascinating. The Herculean efforts of Mallory’s family, medical team and phage researchers were heroic and awe-inspiring.