CONGENITAL ADRENAL HYPERPLASIA: A Parents' Guide

by C.Y. Hsu, Scott A. Rivkees

Congenital Adrenal Hyperplasia (CAH) is an inherited disorder of the adrenal glands. Its effects can be wide-ranging and serious-from problems of ambiguous genitalia in baby girls; to problems with growth and physical development; to problems with infertility and hormone imbalance. When undiagnosed and untreated, CAH can also be life threatening. While severe forms of CAH are uncommon, milder forms can affect as many as 1 in 100 people. Yet, CAH remains difficult to understand and care for. Congenital Adrenal A Parents' Guide takes a nuts-and-bolts look at CAH-what this condition is, how it is inherited, and how it is treated and monitored. This new book on CAH written for a lay audience will be welcomed by all patients and parents who, until now, have had few places to turn for in-depth information. "As parents you will find this book understandable, complete, and comforting in its upbeat approach. Any pediatrician caring for a CAH child will also be well advised to obtain a copy. I wish I had had one sooner."-Dr. John D. Crawford, Emeritus Professor, Harvard Medical School

308 pages, Paperback

First published August 19, 2005

Reviews

[Emma Bullen · Rating 5 out of 5]

Answers a lot of the questions in a way that's both memorable and easy to comprehend. Recommended reading for CAH parents.

[Cara · Rating 4 out of 5]

This is pretty comprehensive and a great resource for any family dealing with CAH. It's a little hard to read straight through, but is laid out so you can easily look things up. The only thing I felt it was lacking was more up to date warnings on the dangers of dexamethasone prenatal treatment.

[Stacy · Rating 5 out of 5]

This book has great information on Congential Adrenal Hyperplasia. (CAH) Since my son has this, I always refer back to the book if I have any concerns or questions that I need cleared up. Great book.