An inspiring true story about the twists of fate that challenge a couple’s expectations of love, marriage, and reliance.
Jennifer Acker and her husband had been married for eleven years when she was blindsided by a mysterious and undiagnosed incapacitation. Accustomed to their independent routines, they will have to reform both their lives to accommodate the enervating...more
The author is telling the story of her illness and how it transformed her life and marriage. What makes it so compelling is her self-awareness and her extremely pleasant and intelligent manner of writing. No self ...more
The author drew me in to her own story. She never packaged this as a poor me, poor us type of situation. She just laid it out. We learned how difficult it is to deal with doctors who haven’t a clue how to help a condition. We learned we have to be our own advocate when it comes to our health.
Ultimately, this story is really a love story, one from which we could all learn. Certainly not “smarmy” in any way, just grown up, matter of fact, adulting maturely. Figuring it out t ...more
This is a fine book if you're looking for a quick read and happen to have Amazon Prime. It reads more like an extended blog post than a novella because it's pretty surface-level. It's an interesting story with potential, but it just never really clicked for me. It was hard to connect on an emotional level, and because it didn't really address any of the issues in depth, it wasn't as compelling as it could have been. ...more
This is a short read that probably affects the the number of stars I gave. I have a family member with very similar issues. So, I will share it with her. When a person has a chronic illness of any kind, you need help. She and her husband both had an illness and they were able to connect and support each other. That’s a gem. I enjoyed the short read.
I loved the way the author described her illness and the challenges that she had to face with her husband with their illnesses. From this story, we can learn that love is about sacrifice and the well-being of you partner. We can learn that love grow in difficult times, and we must put our effort to embrace it.
I did not put four stars because even though it was a very cute story, it was very plain and it didn’t move me the way that I was hoping.
While she is facing slow recovery, six months later, her husband begins to feel a spike of pa ...more
Left wondering about the issues which weren't discussed in enough detail, I felt. I understand the renewed love but the book didn't seem to show enough details as to how they worked together to help each other. Maybe that is the point when there is no known cures. ...more
The book brings an accurate point of view of an ill person with a life-altering condition. The needs, the thinking and the drama feel genuine. Also the perfect writing gives the reader a pleasant voyage trough the efforts lived by the author.
I think the ability to really describe the life changing illness of M.E./CFS & it’s impact on your life, (in a way that will deeply resonate with people - especially non patients) is obviously difficult & I felt this book just really struggled to connect.
But hey, it’s 36pgs total & free on Amazon. If you want to learn a little more about how some people live, you can still check it out.
Jennifer and her husband N. were active, liked to travel and enjoyed going out until out of nowhere, Jennifer is exhausted beyond all belief. Can’t even get out of bed or focus on a book for a few minutes. Her husband gets snippy, and eventually learns that he needs to step up and care for his wife as she recovers. (The turning point when he reads her ...more
This short piece should have been classified as health-related nonfiction or autobiography. This longish but well-written article is about the author’s journey to find a diagnosis and treatment for her debilitating symptoms—which is ME/CFS.
Unlike most people with ME/CFS, the author has a “peripheral connection” to a renowned medical expert and a former FDA director, whom she emails about her condition. He connects her with an “eminent i ...more
I found Acker’s use of descriptive imagery to lend a profound beauty to the pages, as well as her intimate description of the relationship with her husband. There is an openness and fragility that comes with frank discussion of one’s marriage; let alone debilitating illness. In that lies a bravery that lends credence to a truly personal story. While at times, her personal choice of sentence structure seems mildly forced on the reader ...more
I’d never heard of the author before. This essay moved me and I plan to read other books by the author. Chronic fatigue is one of those illnesses along with things like depression that is for the most part invisible, misunderstood and often dismissed. If people look physically fine their insistence that they are ill etc tends to be overlooked or seen as an exaggeration. My heart went out to the author reading this. Her struggle with fatigue, to even get a ...more
A little girl growing up with a hoarder father explains in raw detail how her life was affected then and how that behavior continued to haunt her adult life. We hear about hoarders, but rarely about how the behavior affects children growing up in their homes. This book was a fascinating read that made me feel the helplessness of first a child, and then a young woman who only wanted her family to live a normal life. The constant war of love for her family and hate for how the h ...more
Tackling the difficulties of changing health in a shared life is something that happens to almost everyone in terms of ageing, but what happens if it’s out of the unexpected timeline. Joking about it being the ‘Summer of Me’ resonates with a personal similar family joke but trying to find the positives by looking up at clouds (aka, wider picture) and continue with certain elements of living and life regardless of limitations. The reassurance of finding things to ...more
All the symptoms she describes were hardly new to me . I have had rheumatoid arthritis for over 30 years and my body goes from 60 to 0 in a matter of seconds. It is hard for people to understand the frustrations of living with chronic pain and fatigue. You go to be and wake refreshed. No so with this disease. The short story describes what it’s like for a disabled couple to come together and help each other. Bringing them from estranged to a real couple working together in sync.
On a positive note, I did appreciate the tenderness that the two shared with each other. The give and take of their relationship showed what love is.
For this being a "quick read".... it took me way ...more
Reading this at time was like reading about my life. There are many parallels between the author at me. At times I wonder if I have CFS as well with the near constant exhaustion just a little exertion places on me.
This short piece looks at one woman’s life and how it changes her marriage when she comes down with an unknown condition. It’s a quick read but explores the depths of her marriage when one condition turns into two.
It was great to watch the characters develop through the course of her story. It’s an interesting perspective on sickness and care-taking and how love grows and changes over time. I kept finding myself wondering how her husband would describe certain parts of her story. I wonder what he was feeling and how he has been impacted by the shift in their relationship dynamics. Very raw and tender and thought provoking.
As someone who has a friend that suffers from chronic fatigue syndrome, this touches my heart. A wife (with chronic fatigue syndrome) and husband (with frozen shoulder), are forced to depend and lean on each other physically like never before. This made me think of the importance of really being and remaining there for your partner. The research of their prognosis was inconclusive but not the love they have for each other.