Salt in My Soul: An Unfinished Life
Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately rage ...more
This book is the story of Mallory Smith, who was diagnosed with Cystic Fibrosis at age 3. CF is a terminal, incurable, genetic disease of the lungs and digestive system. She kept a journal on her laptop. Before she had a lung transplant, she gave her mother her password. Her mother waited until Mallory died before opening her journal.
The journal was written by Mallory between the ages of 15 and 25, when she passed. She had a antibiotic resista ...more
SALT IN MY SOUL: AN UNFINISHED LIFE is Mallory Smith's story in her own words. Published posthumously from her journal at her request, Mallory gives the reader a first hand view of her tumultuous short life and battle with Cystic Fibrosis. Diagnosed with the "deadliest strain of the deadliest bacteria known to CF lungs" caused an antibiotic resistant superbug in her system that ultimately ended her young 25 years of life on November 15, 2017....post lung transplant.
As the parent of a child with CF, this is the book I wish all my friends would read. This not only conveys my fears for my child as his parents, but also my hopes and dreams for him to be a "normal" teenager, have his own hopes and dreams, fall in love. All the things that get called into question for the future when a CF diagnosis is made.
The writing is made ...more
Until I read Mallory Smith’s memoir, Salt in My Soul , I knew very little about this condition. When I read a review of the book in our local newspaper ...more
Immensely positive and determined to live her best life, even in the face of cystic fibrosis and rare bacteria B. cenocepacia, Mallory Smith is a girl everyone loved. From the beginning readers know Mallory tragically dies young; however, it is how she lived her life that will inspire readers. Her "live happy" mantra carries her through frustrating hospital stays and discharges and he ...more
This book is an amazing reminder that life is too short. Material thi ...more
ΦBK, Stanford University, 2014
From the publisher: Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she'd never lead a normal life, Mallory was determined to "live happy," a mantra she followed until her death. Mallory worked hard to make the most out of the ...more
Cystic Fibrosis, which is a progressive genetic disease, is cruel in that it worsens as a person enters what should b ...more
I am in awe of Mallory. I suffer from chronic illnesses that are not nearly as severe as CF and she had a better outlook and was more active than I ever was. She even would swim in the ocean!
I am thankful that her mom created this book from her diary entries to give us a more intimate detailed loo ...more
Salt in My Soul: An Unfinished Life definitely opened my eyes to the "good, bad, and ugly" of CF. Young Mallory Smith kept a journal beginning at t ...more
Thank you to Mallory for writing. It was an honor reading.
Going into it, I was aware that the only reason I could read the memoir meant that it was published posthumously. Mallory kept meticulous, over 2500 pages worth of journal entries surrounding her journey with Cystic Fibrosis(CF). Before her double-lung transplant in 2017, she entrusted her mother with these entries, with the desire that if anything should happen to her, that her mother compile them into a cohesive ...more
As someone who spent months of their life in Stony Brook Hospital pre- and post-kidney transplant, this book really affected me.
This is easily the most personal, and influential book I’ve ever read in my entire life.
I found myself reliving all the little losses and victories ...more