Goodreads helps you keep track of books you want to read.
Start by marking “Care Work: Dreaming Disability Justice” as Want to Read:
Care Work: Dreaming Disability Justice
Enlarge cover
Rate this book
Clear rating
Open Preview

Care Work: Dreaming Disability Justice

4.63  ·  Rating details ·  117 ratings  ·  23 reviews
In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all.

Care Work is a mapping of acc
Paperback, 304 pages
Published October 30th 2018 by Arsenal Pulp Press
More Details... edit details

Friend Reviews

To see what your friends thought of this book, please sign up.

Reader Q&A

To ask other readers questions about Care Work, please sign up.

Be the first to ask a question about Care Work

Community Reviews

Showing 1-30
4.63  · 
Rating details
 ·  117 ratings  ·  23 reviews

Sort order
Danika at The Lesbrary
Mar 02, 2019 rated it it was amazing
This is a powerful, brilliant book. I learned so much, and it made me real confront my own ableism and sit with that discomfort. I was blown away by this. My full review is at the Lesbrary.
Dec 29, 2018 rated it it was amazing
I just finished this book and still try to gather all my thoughts. In short: Please, go read this insightful, brilliant, nuanced essay collection.
Leah Lakshmi Piepzna-Samarasinha writes about the history of disability justice (and fear of this movement being co-opted), rethinking care and access, suicidal ideation, new models of survivorhood, 'call-out culture', and making space for disabled/ chronical ill elders. Centering the experiences and knowledge of disabled/ sick/ Mad QTPoC, especially
Feb 24, 2019 rated it it was amazing
Shelves: read-in-2019
Oh, how I needed this gift of a book. (and by the way, you do too, likely)

The words laid down by Leah Lakshmi Piepzna-Samarasinha in "Care Work: Dreaming Disability Justice" lifted my soul this week. Reminded me of the amazing resilience and gifts that every single one of us brings to this work of being alive and trying to make a better world. Centered me in the ways that we have to constantly be learning new ways forward that tear down old myths/structures/inequities. It also deeply reminded me
Nov 13, 2018 rated it really liked it
this book is fine, it does a lot of important work. for so touchy a subject you may at points wish the whole affair was more programmatically organized and edited. such a mild gripe implicates the paradox of access: perhaps easier to bring to the publisher but not the easiest to read. this paradox frames the long contemporary impasse that the loosely-affiliated genealogical formation of queer crip political life has gotten very comfortably nested in, whether individual need emancipates the group ...more
Oct 22, 2018 rated it it was amazing
In the vein of her other work, Leah Lakshmi Piepzna-Samarasinha's Care Work is incredibly readable and accessible, full of beautifully-written stories from her on-the-front-lines experiences with Disability Justice, Mad movement, care collectives, and much more. This book is about pain and trauma and searching for better ways of being, moving, and relating in the world, and it's also full of hope and wild imagination. Leah is careful to note that these are not her dreams alone, but she collabora ...more
Scott Neigh
A collection of essays on disability justice by sometime-Toronto-based sick and disabled femme of colour activist, writer, and performer Leah Lakshmi Piepzna-Samarasinha. A wide range of different kinds of pieces, to deliberately capture the broad spectrum of shared knowledge – from get-through-the-day life hacks to no-holds-barred critique to expansive dreaming – that a commitment to disability justice requires. As such, the kinds of craft found in each piece varies quite a bit, but all in one ...more
Taz S
Feb 02, 2019 rated it it was amazing
Shelves: favorites
I think EVERYONE should read this book.
Amazing read with thoughtful words from the wonderful Leah Lakshmi Piepzna-Samarasinha as always. It's a book that gave me so many feels, thoughts, hope, inspiration, connection and poignant insight into things that disabled/sick QTBIPOC queers have been living through and saying about community and many other dynamics for yearsssss. It's about time to actually listen, y'all.
I have a copy and can lend it to you if the library is taking too long and we know
Oakley Kiss
Dec 07, 2018 rated it it was amazing
Shelves: favourites
I love this book. Leah Lakshmi Piepzna-Samarasinha lays out so much important, practical information and in-depth, multifaceted analysis. Her voice is accessible, powerful, and inviting. I took notes on and reread a ridiculously high percentage of Care Work because it felt like a balm. I copied the entire 1,500+-word chapter titled “Crip Emotional Intelligence” because I wanted to absorb it and couldn't bear the idea of not having it nearby. It's been about twenty years since I've had this kind ...more
C.E. G
Mar 15, 2019 rated it really liked it
Leah Lakshmi Piepzna-Samarasinha's writing has been very formative for me, and I was excited to pick up this work. She brilliantly brings together different ideas from her networks on the necessity and potential pitfalls of care webs. I hadn't thought before about how "niceness" and likeability and disability intersect, and I found that especially helpful food for thought to consider.

My main gripe with the book is personal - I feel pretty alienated by femme/masc labels, as they've both been assi
Ecaterina Burton
Feb 13, 2019 rated it it was amazing
I found myself wanting to shout after certain paragraphs where Leah completely eviscerated my own deepest sources of shame through her laser beam analysis. Suddenly my mind could roam more liberated in its imagination. For those who are disabled, neurodivergent, sexual assault survivors, this book will feel like it is heaven-sent. It is a labor of love, for our future, and the future of a world where all bodies are seen and held with care.
Danni Green
This is definitely my #1 top recommendation of the year and one of the best and most important books I've EVER read. I want everyone I've ever met to read this book, I want everyone I'm ever going to meet to read this book. If I had a million dollars right now I would buy copies of this book for everyone I know.
Kelly Tobin
Apr 07, 2019 rated it really liked it
I had to read this for a class and honestly wasn’t sure what to expect but I was really surprised by how moving and informative this book was. While definitely a very emotionally heavy read, I feel like I better can understand and empathize with people who live very different lives from my own so I’m really glad I was made to read this
Mar 28, 2019 rated it it was amazing
I wish everyone I knew read this. It is so thorough and straightforward and good. It is stories. It is facts. It is shit about yourself that you didn't know was true until someone else was laying it out. It is a new framework for considering the world. Required reading.
Amelia Eskenazi
Dec 19, 2018 rated it it was amazing
This book is so beautifully written. Reading it felt like such a gift—would recommend this book to everyone.
Mar 26, 2019 rated it it was amazing
Shelves: lgbtqia, nonfic
I needed to read this slowly so I could absorb more of it; it is one to go back to, and hopefully so much to build on.
Ngozi Alston
Apr 03, 2019 rated it it was amazing
Amazing, thought provoking! Leah gave me language to an entire set of feelings, desires, frustrations that I experience daily and never knew how to communicate.
kate price
Nov 03, 2018 rated it it was amazing
if there’s one book you read this year it should probably be this one <333
Dec 19, 2018 rated it it was amazing
Everyone should read this book.
Gavin Morgan
Feb 27, 2019 rated it really liked it
Care Work is the only anti-ableist book I've ever read. It was not an easy book, but it was still mind-blowing just for:
a) revealing subtleties of accessibility struggle,
b) setting unflinching accessibility standards,
c) describing mutual aid care networks, and
d) inspiring me to think about my own disabilities, past/present/future.
rated it really liked it
Mar 16, 2019
rated it it was amazing
Dec 17, 2018
rated it it was amazing
Feb 27, 2019
rated it it was amazing
Mar 09, 2019
rated it it was amazing
Jan 06, 2019
rated it it was amazing
Apr 15, 2019
rated it it was amazing
Dec 08, 2018
rated it it was amazing
Feb 18, 2019
rated it it was amazing
Nov 12, 2018
« previous 1 3 4 next »
There are no discussion topics on this book yet. Be the first to start one »
  • The Remedy: Queer and Trans Voices on Health and Health Care
  • Against Equality: Queer Revolution, Not Mere Inclusion
  • First Person Queer: Who We Are (So Far)
  • Crip Theory: Cultural Signs of Queerness and Disability
  • Asexualities: Feminist and Queer Perspectives
  • Brilliant Imperfection: Grappling with Cure
  • Best Sex Writing 2013: The State of Today's Sexual Culture
  • nîtisânak
  • Queer and Trans Artists of Color: Stories of Some of Our Lives
  • Getting Bi: Voices of Bisexuals Around the World
  • Invisible Lives: The Erasure of Transsexual and Transgendered People
  • The B Word: Bisexuality in Contemporary Film and Television
  • Beyond (Straight and Gay) Marriage: Valuing All Families under the Law
  • The M Word: Conversations about Motherhood
  • Do What You Want
  • Baby Remember My Name: An Anthology of New Queer Girl Writing
  • Blood, Marriage, Wine, & Glitter
  • Questioning Library Neutrality: Essays from Progressive Librarian
The daughter of a Sri Lankan father and a Irish-Ukrianian mother, Leah Lakshmi Piepzna-Samarasinha was raised in Worcester, Mass, an eastern rust belt city known for dirty water and busted buildings. A scholarship baby from the age of 8, she moved to New York at 18 to get a BA from Eugene Lang College / New School for Social Research, but ended up learning a lot more from the student, squatter, sp ...more
“To me, one quality of disability justice culture is that it is simultaneously beautiful and practical. Poetry and dance are as valuable as a blog post about access hacks - because they're equally important and interdependent.” 1 likes
“Disability Justice allowed me to understand that me writing from my sickbed wasn't me being week or uncool or not a real writer but a time-honoured crip creative practice. And that understanding allowed me to finally write from a disabled space, for and about sick and disabled people, including myself, without feeling like I was writing about boring, private things that no one would understand.” 0 likes
More quotes…