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Music Our Bodies Can’t Hold
by
Each of these poems is a portrait of someone with or reputed to have had Marfan Syndrome. Many of the poems emerge out of personal interviews, while others are portraits of public figures: Abraham Lincoln, Akhenaten, Mary Queen of Scots , Edith Sitwell, Niccolo Paganini, John Tavener, Sergei Rachmaninov, and Robert Johnson, among others.
Paperback, 96 pages
Published
September 2017
by Hunter Publishers
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This book is an exquisite exploration into Marfan Syndrome, indeed into illness and dis-ability, and is a tender object of empathy and respect. In gifting those who live or have lived with Marfan’s their own story, and doing so through a nuanced mastery of altering voices, Jackson has created an emotional book.
I had a friend who died of Marfan's so many of these poems felt personal, an insight to his life that he didn't have a chance/chose not to share with me. The language is beautiful and this was a beautiful and soothing way to gain insight to an experience different from my own.
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