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Creating Moments of Joy Along the Alzheimer's Journey: A Guide for Families and Caregivers, Fifth Edition, Revised and Expanded
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Creating Moments of Joy Along the Alzheimer's Journey: A Guide for Families and Caregivers, Fifth Edition, Revised and Expanded

4.45  ·  Rating details ·  150 ratings  ·  26 reviews
The beloved best seller has been revised and expanded for the fifth edition. Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer's disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with ...more
Kindle Edition, 298 pages
Published November 15th 2016 by Purdue University Press
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Caidyn (he/him/his)
This is a good book for practical knowledge on Alzheimer's, especially for caregivers who have no idea what to do. I read this for my practicum in hospice since I'm doing a project for the agency on Alzheimer's. The only cons for this book are that it felt really sexist at times. I think it's just my lens, but it really got annoying reading the stereotypical sexist things. It made me feel like all people with Alzheimer's are sexist, but it's definitely not the case. Just an annoyance that bother ...more
Feb 24, 2019 rated it liked it
Shelves: nonfiction
An easy to read book of suggestions and anecdotes for caregivers, both family and professional, of people with Alzheimer’s disease. Somewhat repetitive, and very focused on moderate to late-stage disease. A few too many sweeping generalizations but written with a lot of heart, humor, and compassion.
Michelle Jerome
Jun 16, 2018 rated it it was amazing
This is the most human book I have ever read. Don’t wait until your life is affected by Alzheimer’s. Read this book now. Trust me you will find value.
Oct 08, 2020 rated it liked it
Very down to earth advice that can be used by anyone dealing with a loved ones brain injury too. Also heartbreaking in places.
Apr 21, 2017 rated it liked it
This is an informative and helpful book for any caretaker. Brackey writes in a very warm and compassionate tone, and she includes many primary accounts. Her general advice is to recognize where the person is along her journey of the disease, (or, in my Mom's case, simply old age) and respond lovingly and supportively. Brackey also reminds all caregivers to not only be gentle with the older adults, but also with themselves. I love this quote from the Buddha: "You, yourself, as much as anybody in ...more
Laura Wiebe
Nov 28, 2017 rated it it was amazing
Shelves: health
a book of hope.
so helpful to understand what is going on and to realize that regardless of the circumstances, we can bring joy to others.
struggling with loving someone with dementia can be overwhelming, but this book provided a multitude of little things we can do to make a difference and feel a little less out-of-control.
Jun 09, 2019 rated it it was amazing
Shelves: kindle
If only every care facility had stacks of this book available to families and caregivers of Alzheimer's patients. Totally worth the read. Gave me comfort on hard days and insights I may never had considered. ...more
Kristy Moondaughter
Oct 13, 2020 rated it it was amazing
This review has been hidden because it contains spoilers. To view it, click here.
Oct 06, 2019 rated it it was amazing
As a caretaker for over two years, I have read a number of books that provide guidance on what I should do and what we need to plan for. This was one of my favorites, and I recommended it to all of the adults in our family and members of a Alzheimer's Support Group that I go to. Although the book spends a lot of time on what caretakers at nursing homes or memory units should do and plan for, most of the discussion can still be used by caretakers in the home. It also provides insight for how othe ...more
Jul 03, 2019 rated it it was amazing

Informative beyond measure; filled with insightful tips and touching stories. Read the entire book or just chapters that speak to you. I highly recommend--especially the chapter on visiting! I was surprised to learn I've probably been feeding her underlying stress and fear, but so thankful that I'm learning how to create joy for my loved one.
Suzanne Z
Apr 30, 2020 rated it it was amazing
What a beautiful book. It is nice to just read a few pages a day. It is informative and touching. What a beautiful way to learn and get connected to peoples lives at the same time. I would highly recommend this to someone in the geriatric field as well as just anyone who wants to connect more with loved ones and the elderly.
Nov 11, 2019 rated it it was amazing  ·  review of another edition
This book was given to me after attending a dementia seminar. It’s a very easy read with a lot of useful information and simple ideas, many of which I have used with my mother. Dementia is difficult to deal with unless you are armed with some basic information of what to expect. This book really helps in that regard.
Marta G.
Jul 29, 2019 rated it it was amazing
Užitečná kniha, která se výborně čte. Jako laikovi mi moc pomohla v náhledu na to, co nemocní potřebují. Není důležité to, co si myslím já, co je obvyklé, co se tzv. "hodí", ale to, jak se cítí nemocný. Přeji všem, kteří o takto postižené blízké i svěřené pečují, hodně trpělivosti, citu a lásky. A překvapivě i humoru. ...more
Jan 14, 2021 rated it it was amazing
This is a very informative and helpful guide of this journey into the world of Alzheimer's patients. There are numerous ways to talk to and to work with and to treat a person with dementia. And the author is full of joy and loves her work. ...more
Sharon A. Huley
Aug 05, 2018 rated it it was amazing

I'm dealing with so much of what book describes and it has been very helpful in my understanding of how my husband is acting.
My daughter recommended this book to help me and I thank her very much.
Dec 26, 2019 rated it it was amazing
Shelves: own
Greet each day without expectations or preconceived notions. Don't focus on what your loved one has lost. Become the crazy caregiver; do whatever it takes to create moments of joy. Far too soon those moments will become memories. I can talk the talk because I've walked the walk. ...more
Dec 18, 2019 rated it really liked it
Great information which I will use and look back on often. While a reality for us, each day I see, read and hear about hope coming from the research and trials. I’m proud of my mom (and Dad) for participating in a trial (even if it drove her nuts 😀).
Tyce McLarty
Oct 19, 2020 rated it it was amazing
If you are a caregiver for someone with dementia, this is the first book you should read. How to talk to them in a way that brings joy to them and you. Don't get caught up in telling the precise truth when it causes pain & distress. Wonderful. ...more
Mar 20, 2019 rated it liked it
Shelves: hospice, nonfiction
I like this author's kind and practical approach to caring for Alzheimer's patients. However, she's a bit sexist, and her stereotypic examples are off-putting. There are good suggestions for caregivers in this book, but one has to overlook some poor writing and the cultural bias. ...more
Michael Ambruster
Aug 03, 2018 rated it it was amazing
Thank you for this book.

At this time, I am able to be closer with my Mom. Creating our moments of joy one visit, one phone call at a time.
Cari Niesen
May 09, 2019 rated it it was amazing

A very informative book. I wish I would have read it five years ago. It helped me immensely with my mom.
Jul 06, 2020 rated it really liked it  ·  review of another edition
Shelves: life-lessons
Many many good tips, even if the anecdotes are very American.
Had great information about freaking with someone with dementia. Easy, quick read. I was going it would have more activity ideas rather than communication hints.
Nancy Byron
Mar 29, 2019 rated it it was amazing
Shelves: non-fiction
Extremely helpful insight and strategies for those caring for someone with Alzheimer's. Highly recommend this! ...more
Dana Opperman
Aug 15, 2018 rated it it was amazing
This book has very good advice about many situations that a person faces when caring for someone with dementia. I wish I had read it sooner.
Joel McHale
rated it really liked it
Mar 11, 2019
rated it it was amazing
Jan 03, 2019
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Nov 12, 2020
Clydia Craig
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Feb 07, 2020
Bev W
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Nov 17, 2020
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“There are times when we cannot function and we need to withdraw and regroup. There are situations that we know we cannot handle. In spite of all the pushing and urging of friends and family who insist that we will have a wonderful time, the patient senses that it will lead to his mental devastation. If I do not listen to my body and withdraw from the overstimulation, it takes several days for my intellectual abilities to return. This is very frightening because I can’t help wondering each time this happens if I’ve pushed myself totally over the line of no return.” 1 likes
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