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Strength: Lives Touched by Cystinosis

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it was amazing 5.00  ·  Rating details ·  3 ratings  ·  2 reviews
Cystinosis.

It’s a word that most people have never heard. There’s a good chance that whoever is reading this right now, has no idea what it is. Cystinosis is a rare genetic, metabolic condition. Not many people have this condition but it has touched more lives than one might think. The ones who have this condition, their family, their friends, the doctors who treat them. I
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Published July 2017
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it was amazing Average rating 5.00  · 
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Amanda Leigh
Nov 24, 2017 rated it it was amazing  ·  (Review from the author)
This book was a labor of love and a long time coming. I'm so proud that Amanda Buck and I (and many others) were able to bring this to fruition.

While many of the stories of cystinosis patients and their families have similarities one of the things I love most about this is how varied the stories are. It shows that we (those affected by this condition in one way or another) are human beings, with different views and experiences. Our own life stories. We are not just lab rats, specimens. Although
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Rebekah Palmer
Jul 28, 2017 rated it it was amazing  ·  (Review from the author)
*biased review as my poetry is included in this anthology*

I love all the different perspectives of living with rare disease written within these pages whether it's in the writer's body, in a sibling, in a daughter or son, in a granddaughter or grandson, in a niece or nephew, or in a patient. Beautiful.
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Amanda Leigh is the multi-genre author of numerous titles, including the Mature YA Paranormal Romance, the Beauty of the Dark series. She’s made up stories all her life, and written them down since she was eight. In college she got her degree in English and Communications, and worked as the Assistant Managing Editor on the literary magazine. Amanda advocates for mental health, cystinosis/rare dise ...more

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