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The Sacred Disease: My Life with Epilepsy

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4.39  ·  Rating details ·  38 Ratings  ·  12 Reviews
Young Kristin Seaborg had the world at her fingertips: a loving family, happiness and security, early admission to medical school. Her future seemed certain, until the frightening diagnosis of epilepsy threatened to destroy both her career path and her health. Living in constant fear that her seizures would intensify and prevent her from practicing medicine, Kristin kept h ...more
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Sherrey
As I read Kristin Seaborg's memoir, The Sacred Disease: My Life with Epilepsy, my emotions ran the gamut from fear to frustration to happiness as Kristin lived with this determined disease. Her story rings with the same range of emotions, and yet she never gave up hope on the life she dreamed for herself.

Kristin's epilepsy began at a very young age (16 months) during a bout of influenza accompanied by high fever. Leaving the hospital a physician commented the seizure that brought her to the emer
...more
Jess
Dec 17, 2015 rated it it was amazing  ·  review of another edition
I’m often drawn to books about topics I can relate too; as an Epileptic, I could very much relate to this. The book was not only very well written it described aura (“weirds”) very well, and takes you through the day to day of living with seizures. Saying that I enjoy hearing of others on the same meds as I am on, seems sick and wrong, but it’s not often you hear of others on Zonisamide as it’s a fairly new drug, so it was reassuring to see she was also taking it. It’s great to know that others ...more
Corinne Rodrigues
As I was reading this book it brought back memories of a family friend who lived on the charity of his family and others because of the crippling effects of epilepsy. He lived in times when there was only one medication available and that caused his brain to be dull. Although he cycled around the city, he never knew when he would get a seizure. I recall his excited anticipation of the kite flying festival in India. However, almost every year, being excited and out in the sun flying kites would r ...more
Amanda Erickson
Nov 03, 2016 rated it really liked it
This is a book that is for someone who is considering being a doctor or someone who wants to focus on epilepsy. This book describes Kristin Seaborg's life as she deals with epilepsy. She has had epilepsy her entire life and couldn't imagine life without it. She can dream of what it might be like to live without the constant fear that a seizure could strike at anytime of her day, but she doesn't know how it feels. She decides not to tell anyone about epilepsy because she doesn't want to be known ...more
Nicole
Dec 01, 2015 rated it really liked it
I really enjoyed reading this book for several reasons. 1. I am amazed at the perseverance of people who are faced with disease/challenges such as these and have the strength to keep moving forward. 2. I really enjoyed the parts of the book that discussed real perspective, science, and quotes having to deal with epilepsy, I have learned from this book as well 3. I had tears at the end, good tears, but it was definitely moving to see her passion and comfort in advocating for her disease. I know o ...more
Wisconsin Alumni
Kristin Seaborg ’97, MD’01
Author

From the author:
Young Kristin Seaborg had the world at her fingertips: a loving family, happiness and security, early admission to medical school — until the frightening diagnosis of epilepsy threatened to destroy both her career path and her health. Living in constant fear that her seizures would intensify and prevent her from practicing medicine, Kristin kept her condition a closely guarded secret, leading a tenuous double life as patient and practitioner.

A mem
...more
C.
Jan 16, 2016 rated it it was amazing  ·  review of another edition
Shelves: nonfiction
Reading Dr. Seaborg's book The Sacred Disease brought back many memories from this time. The looks from people, the stares... being treated like an experiment by neurologists all the while still being second-guessed that I had really experienced seizures -- I could easily empathize with her. I am so impressed by her willingness to share so many of her experiences and knowledge with us, the readers, when so many other physicians try to appear infallible. Which probably explains why she was treate ...more
Amanda Bryant
Apr 28, 2016 rated it it was amazing
Heart wrenching and eye opening. Kristin Seaborg shares her very personal and touching story of living in dual roles as both a physician and a patient with Epilepsy. Epilepsy affects a staggering 1 in 26 people, yet often comes with a sense of shame and loneliness because of the stigmas and fears associated with a lack of understanding. Kristin's book is the perfect combination personal stories and factual information about Epilepsy.
Julie
Oct 09, 2016 rated it it was amazing
Kristin is a friend and former colleague, and even though I already knew some of the information, hearing it fully in her own words was engaging and enlightening. She brings to light not only the struggle many people face with chronic illness, but also the struggle we all experience with balancing aspects of our personal and professional lives. Bravo Kristin, it is a beautiful telling of your own story.
Maria Van
May 12, 2016 rated it it was amazing
I read this book one week after my 13 year old son was diagnosed with Epilepsy. Reading about Kristin's honest experience and journey with Epilepsy was truly inspirational. It was emotional as well as factual and informative. I learned many things I had not known yet about Epilepsy. I was left with a feeling of peace and hope after reading it.
Neil
Mar 04, 2016 rated it it was amazing
Shelves: netgalley, biography
I received a free copy of this book from Netgalley in return for a honest review.

The book was very well written explaining how the author lives with epilepsy from day to day.
This book was so uplifting showing how even in this day and age she had to fight the ignorance of her professional colleagues and the side of effects of her meds.
Brilliant.
Kristoffer Marvin
Mar 25, 2016 rated it it was amazing
Shelves: epilepsy
i love it.........
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