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Living Life to the Fullest with Ehlers-Danlos Syndrome: Guide to Living a Better Quality of Life While Having EDS
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Living Life to the Fullest with Ehlers-Danlos Syndrome: Guide to Living a Better Quality of Life While Having EDS

4.40  ·  Rating details ·  55 ratings  ·  5 reviews
Kevin Muldowney, MsPT has been treating people with Ehlers-Danlos Syndrome since 2005. As a physical therapist, he has developed an exercise protocol to help stabilized the many joint subluxations/dislocations associated with this genetic disorder. This book is intended for the person diagnosed with EDS to both inform them about the healthcare team needed to properly treat ...more
Hardcover, 400 pages
Published July 17th 2015 by Outskirts Press
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A M
Jun 25, 2017 rated it did not like it
Borrow this book from a library if you can, to see if it's right for you. Disappointing. The big problem I see with this is finding a physical therapist willing to follow the protocol outlined here, rather than tailor PT treatments to fit the patient. Not all EDSers are alike! And why on earth is this book so physically cumbersome? A paperback, or maybe even a paperback set (one for the PT, one for the patient) would have been more sensible, given the population.
Benjamin Bookman
Sep 13, 2017 rated it it was amazing
Absolutely life changing! This book isn't perfect - there are some editing errors and formatting issues - but the program it contains is amazing. It has, with no exaggeration, literally changed my life. I have been working through the exercises for over a year now, and can see such a huge improvment in my strength, stamina, posture, movement, and day to day function. I can work again, I can sit in a chair like a normal human being, I can hold parts of my body in place. I know, I know, it sounds ...more
Rachel
Apr 01, 2019 rated it liked it
**2.5 stars**

This book was recommended to me by one of my physical therapists. It helped out with the sacral instability issues I was having, but my concern is that it comes across as being one size fits all for Ehlers-Danlos patients. I would never be able to complete the upper extremity work recommended with the extremely poor condition of my shoulders. One surgical repair done and one soon to come!

The progression is very regimented and while that can sometimes be a goo
...more
Jenna Montgomery
Aug 26, 2018 rated it it was amazing
Was fairly simple to follow and good sized text. Directions mostly simple and was able to find the parts I needed to read and just glance over the parts for the PT. Will update my review after the PT reviews it and sees if it is doable.

Does list some EDS specific movement restrictions, some that last just until you get to the part of the protocol that works that skill, and some that are lifelong for EDSers, so would have preferred to have those in one place (like at front of book som
...more
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